Managing My Health

Managing My Health

Sometimes I feel like all I do is go to doctor appointments, pick up my prescriptions, and manage my prescription refills. This week, I have two doctor appointments and another appointment for blood work. That’s about how many appointments I have each week. I feel pathetic. Most of my life is spent attempting to manage my health, especially my mental health.

My current meds are: Lithium 450mg twice a day, Tegretol 200mg one in the am and two at night, Cytomel 37.5mcg in the am, Clozapine 200mg at night, Deplin 15mg at night, Mirapex 1mg three times a day, Inositol 500mg in the am, Depo Estradiol injection weekly, Depo Testosterone injection monthly, Valium 10mg twice daily as needed, Percocet 10mg as needed up to four times a day, and Zofran 4mg once daily as needed. It’s difficult to manage this many medications, but I do it pretty well. I’ve gotten used to it; I’ve developed a system so I get all my meds filled on time without missing a day.

I have an appointment with my psychiatrist on Thursday to discuss my Clozapine dosage. I’ll probably end up with more than one medication change. I’m hoping to get off the Deplin. It’s really expensive and it doesn’t appear to be making a difference. We’ll see what happens on Thursday.

I Completed My WRAP Plan

I Completed My WRAP Plan

I finally completed my Wellness Recovery Action Plan today; even though I started it over a month ago. I did complete most of it on my own, but I brought it to Connecticut with me so I could get some input from my mom. She was my caregiver for many years, and often still is, which gives her a different perspective than I have. She had some really great insights and ideas that I added to my plan.

My WRAP consists of a wellness toolbox, daily maintenance lists, what I’m like when I’m well, identifying my triggers, what to do if my triggers arise, a list of my early warning signs, symptoms that mean I’m getting worse, what to do when I’m declining, questions to ask myself, my crisis plan, who I give permission to make decisions for me, meds I refuse to take, what hospital to take me to, what to do if someone feels I’m in danger, and many more things. There is also a whole other section to be completed during or after a crisis, called post crisis planning.

The wellness toolbox is just a list of tools that I’ve found to be helpful for me. Some examples I listed are to listen to the song Jennifer’s Rabbit (my mom used to sing it to me when I was a child), cook, play the piano, or look through old photos. I also had to come up with a description of what I’m like when I’m feeling well. Some examples are that I sleep well, I don’t ignore my duties, and I’m willing to try things with the help of others. I also had to make a list of things I need to do for myself every day, weekly, monthly, and periodically. Examples range from taking medication daily, cleaning the house weekly, seeing my doctors monthly, and visiting family every 3 months.

I identified triggers that made my symptoms worse such as being in crowds, feeling judged, and a lack of sleep. I have a list of what to do when these triggers occur, like stand with my back to the wall in a crowd, tell my doctors when my sleep is off, and walk away when feeling judged. A list of helpful activities includes blogging, playing Sudoku, and taking the dog for a walk.

It also has a list for early warning signs which include increased negativity, increased foul language, and uncontrollable emotions. Things I need to do when I see these early warning signs are call my doctors, use my wellness tools, and take my medications. Other lists are about symptoms I have when I’m breaking down or getting worse. Some of my examples are extreme paranoia, hallucinations increase, and not making sense when I talk. A few of the things than might help at this point are to keep track of all symptoms, contact my doctor, and make sure the problems are not due to side effects. I also need to ask myself questions such as, ‘Am I rational and reasonable? Do my meds need adjusting? Do I need to consider hospitalization?’

There is also a crisis plan that goes over many of the same aspects; however, it also has a section for who should take over. I was able to make it clear that if I cannot take care of myself properly, then my husband, mother, and psychiatrist are allowed to make decisions for me. My one stipulation is that my husband and mother must agree on the treatments. I can also list who I don’t want involved in my treatment. Personally, I wrote that only my husband, mother, and psychiatrist have permission; no other family member or friend can make any decisions for me. WRAP also has a section on medications. I wrote in my current meds, dosages, and reason for taking them. I also wrote in what meds I refuse to take, and what meds I’m open to taking. I also said that I’m only open to other treatments that my husband and mother choose after doing thorough research. I wrote in which psych hospital I want to go to, and which one to never send me to.

The WRAP crisis plan is very thorough. I hope that I never have to use it, but it’s nice to have it, signed by my husband and mother, so I know that I will receive the treatment I want and need. Not only does it provide comfort to me because I know that my wishes are clearly stated and understood, but it also makes it easier for my husband and mother if and when they need to take over making decisions for me. I know that being a caregiver is an extremely difficult job; by completing my WRAP, I am attempting to make their lives easier.

I highly recommend that everyone who is diagnosed with a mental health illness take the time and complete a Wellness Recovery Action Plan. Hopefully you would never need to use it, but it’s nice to know it’s there just in case.