Halloween is here, whether I like it or not. Halloween is a holiday that has bothered me for a long time. I don’t like people I don’t know knocking on my door. I also don’t like walking around town with strangers, especially when people are dressed up in costumes so I don’t know who is who.
My husband is going trick or treating with our 2-year-old granddaughter, who is dressing up in a my little pony costume. They will be going as a group including my husband, mother-in-law, step-daughter, her boyfriend, and their kid (our granddaughter). Instead of committing myself to something I’m unsure about, I told them that I don’t know if I will be going or not. They think it’s because of my allergies and not feeling well, but it’s really because of my anxiety and PTSD.
I definitely will miss seeing our granddaughter experience Halloween, but I decided that it’s not a good idea to put myself through the anxiety. Instead, I will most likely stay home with my dog. My neighborhood (HOA) does not hand out candy, so there shouldn’t be anyone knocking on my door. I hope that everything goes okay.
For more than a week now, I have had allergies off and on that are extremely annoying. I don’t remember having allergies when I was growing up, but then again, I don’t remember much of anything anymore. My symptoms tend to come and go. I’ve been really tired too. I took a two hour nap this evening, and I’m still tired. The allergies on top of the depression is making life even more difficult. I worry about taking OTC allergy meds, I’m not sure if they will react with the meds I’m already on.
Speaking of medication, I have been tapering off of a couple of my meds. I’m already off the Inositol. I finish taking the Mirapex Monday night, and I finish taking the Donepezil Friday night. I’m hoping that I don’t have any bad reactions by coming off these meds.
I have been trying my hardest to help myself feel better, both mentally and physically. Over the past 6 to 8 months, my depression has helped me to gain weight and feel worthless. I’ve lost some weight, but I’ve been stuck at the weight for over a month now. It doesn’t help that I enjoy cooking and eating (of course). Cooking helps me feel useful. It’s something that I’m good at and I even enjoy it. I’ve decided to cut back on my cooking; and when I do cook, I will be cooking healthier. I think that I should try to find another activity that I can do and want to do.
I can’t believe it, but I actually got my Clozapine prescription filled on the first try. That’s the first time that’s ever happened. Hopefully it will continue like that.
I had plans today to spend time with my husband and his family. First, we grilled some steaks and then played cards with his mother and brother. Then we went to karaoke with his father and brother. I don’t mind doing these things; in fact, I enjoy spending time with my husband’s family. The only part of it that I don’t like is making plans ahead of time. I never know how I’m going to feel when it comes time to follow through with any plans I’ve made, but I guess that’s why I take Valium. Even if I don’t feel up to it, taking medication helps me follow through with plans that I’ve made.
I know that my depression has been weighing on my husband. He already has enough on his mind. Between his mom’s cancer, his brother’s possible heart problem, and his own back problems, he has enough to deal with. The fact that he cares about me is wonderful, but I feel like I’m a downer on life in general; I’m just putting a bigger strain on life. I hate being a drag to others. I wish there was a way around all of this, but there isn’t. So, I just have to accept life the way it is, and maybe things will improve over time.
Memory loss is a side effect I’ve been experiencing from ECT. I have been on 2 medications to help with memory loss for several months now. When I saw my psychiatrist, I told him that my memory is not improving or stabilizing; at least not from what I can remember. He told me that for his patients that have been on these medications successfully definitely noticed a change. If I wasn’t sure if the meds were helping or not, then they most likely weren’t helpful. So, I’m tapering off of Donepezil and I should be off it completely in under two weeks.
I wonder if there’s anything that can help my memory. If the medications I’ve been trying aren’t helping, what’s the next step? I already write everything down and even record certain things when need be. However, ECT continues to screw with my memory. It appears as if my memory will just continue getting worse because I’m doing ECT once every two weeks.
I wish I could stop ECT. It feels as if my mind and body can’t take much more of it. However, I know that if I stop now, with nothing to replace it, then I’ll slip further into my depression. So instead, I continue to go along with what my psychiatrist wants me to do, as long as he explains the reasons why he wants me to do each specific treatment.
Clozapine (Clozaril) can be a frustrating medication to be on. You have to get blood work done every month just to be safe because the medication can have some serious side effects. I’ve never had any problems with the possible serious side effects from Clozapine, but I have had problems getting the actual prescription filled every month for the past year.
I go and get my blood work done (on time, like I’m supposed to), but the pharmacy I go to does not have it together. They always deny getting my lab results, so I end up calling the lab and having them re-send the blood work results. The pharmacy has even told me a couple of times that they weren’t there when the lab faxed over my results, which is why they don’t have them. That is complete crap. Even if my results were faxed over in the middle of the night, they should be there waiting for the pharmacy when they open.
Yesterday, I thought I found a new pharmacy. I talked to the pharmacist, and they were able to register me in the Clozapine database; however, they could not accept blood work results from the lab. So, it looks like I’m going to be staying at the same pharmacy I’ve been struggling with for the past year. I guess, I’m just going to have a sit down with the pharmacist and see if I can get everything figured out.
I believe that I’m fortunate for having so much support from my family and friends. However, I have some people who want to understand, but they don’t. They ask me questions such as, “Why are you depressed?” or “What’s wrong?” and I have no clue how to answer them. I’m depressed because I am, not because of something that happened (at least most of the time). I honestly feel that people can’t understand bipolar disorder unless they experience it themselves, and I don’t wish that upon anyone. Nonetheless, I’m lucky to have people in my life that support me and try to understand. They are open to learning and they listen to what I have to say.
This is the first time I’ve written in over 5 weeks. My depression is continuing to control my life. I’m at the point in my depression where I don’t care about much of anything. I could stare at the wall most of the day and not care. My family has been extremely supportive and caring. Honestly, I wouldn’t have gotten through the past many weeks, as well as other times, without them. My mom, aunt, and husband have been wonderful and are always there for me to lean on.
I saw my psychiatrist today and we agreed to taper off a couple of my medications. That was my goal for that appointment. However, no matter how good the changes could be, they also bring up the unknown, which is scary. I’m nervous as to what the med changes could do to me. I know that mania is a possible side effect, but I’m willing to try going off of meds to make sure that I’m not on anything unnecessary.
I’m going to do my best to keep blogging on a regular basis. I know that it’s a great way for me to express myself, plus I always feel good afterwards. I also find other people’s blogs useful.