Clozapine Rechallenge – Day 10

Clozapine Rechallenge – Day 10

Today, I feel the best that I have felt since I started taking this new medication. Last night I took 100mg again and my Seroquel is also down to 100mg. I woke up in the middle of the night, but only because the dog started barking continuously at some random loud noise, but he was doing his job. So I decided to sleep out on the couch in case it happened again, that way I could calm him down quicker. Other than waking up because of his barking, I slept through the night from about 2:00am until 8:00am. Every day, my sleep is improving. I was pretty unsteady on my feet in the middle of the night and when I first woke up, but that went away within 30 minutes of waking up. The pressure in my chest and throat has almost disappeared. My temperature is still doing well at 98.1. I haven’t been experiencing any other side effects today.

I am ecstatic that I’m doing so well. The first time I tried Clozapine last year, I had such a difficult time with it. My biggest issues were dizziness and sedation. I’m doing really well with those issues. I don’t want to get my hopes up, but I really think that it might work this time.

Clozapine Rechallenge – Day 9

Clozapine Rechallenge – Day 9

Last night, I increased my Clozapine dose to 100mg and decreased my Seroquel dose to 100mg as instructed by my psychiatrist. I fell asleep last night around 2:00am and I was in and out until 8:30am. I probably got a total combination of 5 1/2 hours, which isn’t that bad. I woke up with sore muscles and I feel pretty tired, but it’s not as bad as it has previously been. I’m a bit unsteady on my feet, which is a new side effect for me. I still feel pressure in my throat, but it appears to be getting better. The chest pressure is there again, but very minor. And my temperature is 97.7. So I guess I do have a lot of side effects today, but I think they will go away as the day goes on, just like it has been happening every other day.

I have a busy day today that I’m looking forward to. My step-son, who is 24 years old, is coming over to visit. I love spending time with my step-kids. Then we’re going to dinner at my step-daughter’s house, she is 22 years old, which means I get to see my granddaughter again. We saw her this past Sunday, but I felt so weak from the medication that I was afraid to hold her; I didn’t want to drop her if my muscles gave out like they have a few other times. I’m going to continue to try to think positive even though it’s extremely difficult, at the very least, it can’t hurt.

Clozapine Rechallenge – Day 8

Clozapine Rechallenge – Day 8

I slept approximately 4 hours, but I don’t feel too exhausted yet. I just couldn’t fall asleep for some reason. My psychiatrist had me cut my Seroquel in half since I slept almost 12 hours the day before. I was happy to do so; it just made it difficult to fall asleep, but the sleep I did get was good. Physically, the only problem I’m feeling is a sore throat. It’s more like a small lump in my throat on the right side that I feel as I breathe in. Other than that and being somewhat tired, I feel perfectly fine. I think that I’ll feel better as the day goes on, that’s how it usually goes. I have a lot to do today, hopefully my body can keep up with me.

 

I Can’t Even Fake Okay

I Can’t Even Fake Okay

I couldn’t even fake being okay today. I tried, I seriously gave it my all, but between the emotional aspect and the physical side due to medication side effects, I was pretty much a wreck. There was a get-together at my mother-in-law’s house just because, basically to see our granddaughter. Technically, she’s my husband’s granddaughter, but I feel like she is mine as well, and step-granddaughter just sounds weird. She is 6 months old and absolutely beautiful. I wasn’t feeling very well today, I had a lot of physical weakness. I was too nervous to hold the baby because of the weakness; I didn’t want her to get hurt. I have dropped several things I was supposed to be holding, such as dinner bowls, I didn’t want her to be added to that list. So I didn’t have as much time with her as I wanted, and that breaks my heart.

I went to the family get-together in a difficult emotional state to begin with. Earlier in the day, someone seemed upset, so I asked if everything was okay. The response I got was that I ask too many questions and it can be frustrating. The way I took it is that I talk too much; my memory is horrible causing me to ask too many questions, and that I’m overall annoying. I’m sure it wasn’t meant like that, but this is where the bipolar kicks in; my mind always goes to the extremes. So I spent the rest of the day trying not to talk, which is extremely hard for me. My memory is horrible due to ECT and I talk so much and ask a lot of questions because of the bipolar mixed episode that I’ve been in. I guess I don’t take negative feedback very well.

I think it bothered me so much because I don’t feel like I have control over myself, my memory, how much I talk, or what I say. I tried my best to fake feeling happy. I would have tolerated being able to fake feeling okay, but I could barely even do that. I used to think that I could always fake being okay, but today proved that I’m wrong. I don’t want to annoy this person, but if today bothered them because of how much I was talking or asking questions, then I think it must bother them every day. All I can think is that I must annoy this person all the time. Every time I have started to open my mouth that was thought that went through my mind. So I’ve done my best to be quiet, although I know that’s not the best answer. Hopefully tomorrow will be a better day.

Clozapine Rechallenge – Day 7

Clozapine Rechallenge – Day 7

I fell asleep on the couch last night in the middle of doing something. I slept about 2 hours on the couch then woke up and we to bed. Then I slept 9 hours in bed, without waking up! I can’t believe I slept that much. I assume it’s because of the Clozapine; it does have a sedation side effect. I know that it’s not technically possible to catch up on missed sleep, but I really needed that.

I have some pressure in my chest and throat when I breathe deep, but that’s all. I don’t think it’s worse than yesterday. I tend to get tired easier than I normally would. Taking a shower and getting dressed yesterday wiped me out. I was going to go to a friend’s house, but I didn’t have the energy to do it. However, my temperature is still good at 97.0, so I think I’m doing well. Today, I go pick up my prescription for this coming week, since I can only get one week at a time.

Clozapine Rechallenge – Day 6

Clozapine Rechallenge – Day 6

My psychiatrist is having stay at 75mg for a bit because of the side effects I’ve been having. Last night I only woke up once, at 3:00am, and then I was able to go back to sleep without a problem. That was amazing! When I woke up this morning, I didn’t have any of the side effects that I’ve been having previously.

I actually feel pretty good, except when I breathe deep, my chest hurts a little. I don’t think it’s anything. I got my blood test back, there are a few things that are above normal, including my white blood cell count, but I don’t know what that means. I will just have to wait to find out from my doctor. I tried to do research to figure it out, but I still don’t know what it all means. No matter what, I feel better today than I have since I started this medication.

Clozapine Rechallenge – Day 5

Clozapine Rechallenge – Day 5

Today is day 5 of the Clozapine rechallenge. I took 75mg again last night as instructed. My psychiatrist didn’t want we to increase the dose because of yesterday’s side effects. I’m sleeping a little better; I slept for a couple hours in bed and then I came out to the couch where I was able to sleep a couple additional hours straight through. Then I also dealt with sleep on and off for a few hours, but this is still improvement from what it used to be, and that’s all I care about.

Today I have some muscle soreness again, but not as bad as yesterday. My soreness did improve yesterday as the day went on. My psychiatrist had me take my temperature to make sure there was no fever, and it was low at 97.2, which is good. My temperature today is 98.3, which is still good. I get a little dizzy if I stand up to quickly, so I just need to be cautious.

I go and get my weekly blood work done again today. My psychiatrist wrote me a new lab form to hopefully prevent the issues we had last week with my pharmacist obtaining the results.

Clozapine Rechallenge – Day 4

Clozapine Rechallenge – Day 4

Last night I increased my dose to 75mg, per the request of my psychiatrist. I slept a couple hours in the bedroom before coming out to the couch; at that point, I was in and out for the rest of the night. At least I’m getting 6 or 7 hours of sleep each night, even if I can’t sleep through the night, it’s better than nothing.

The only side effect that I seem to have today is that my whole body is sore. Every muscle hurts, as if I just did a major workout a couple days ago, but I didn’t. It seems that this rechallenge is going pretty well. I will schedule an appointment with the lab to get my blood work done again tomorrow.

Explaining Mental Illness to Others

Explaining Mental Illness to Others

I get a lot of comments from people who don’t know that I’m diagnosed with bipolar and PTSD, and also from those that know and simply don’t understand. One family friend simply doesn’t understand. If we are out together in a group and my husband walks away for a moment, I tend to get anxious. I start to look around; making sure that nothing frightening is going to happen while my husband stepped away momentarily. His friend starts to tell me, “Don’t be anxious. Don’t worry, nothing bad will happen. Just relax.” I try to explain to him a little about anxiety and mental health, but he doesn’t get it. I feel invalidated and ridiculous by his comments; I end up feeling as if my emotional reactions are foolish and irrational. I’m not sure if I should bother explaining it to him again. He hasn’t understood it the first 5 times, why would he get it the next time? Even though I often feel uncomfortable in these situations, I accept this guy as a part of my life. I have hope that it will get better over time.

Not everyone is like that individual. I was at a family gathering yesterday for someone’s birthday. It was very obvious that I wasn’t feeling well. I explained that it was due to a new medication. Everyone that I talked to was understanding; some people asked a few extremely personal questions, but not one person was rude or dismissive. There is another person in this family that also struggles with bipolar disorder; they are accepting of her, but they don’t seem to understand much about the illness. Various people asked me questions such as, “Why aren’t you feeling well? How long have you been on this medication? What is this med supposed to treat? Why would you be willing to take something so risky or difficult? Don’t you think you can just get better with time?” Some of these questions were legitimate, some were a bit odd. I answered everything I could, and then I decided to provide some educational information.

I talked about NAMI (National Alliance on Mental Illness) and how it can help those diagnosed with mental illness and their families and loved ones. I talked about the NAMI Family to Family classes that are provided all over the country. I explained that my mother and sister took these classes shortly after I was diagnosed and how helpful it was for them. I described how it helped my mom and sister understand how my brain worked, what they should and should not do depending on the episode, and even how to take care of themselves. The couple people I talked to about this seemed quite responsive and even intrigued. It was really nice to have people seriously interested in what I had to say instead of ignoring me, even when I’m just answering their questions.

In my experience, family has always been supportive and caring; both my family and my husband’s family really seem to care about me and my wellbeing. No one always expresses themselves properly, but I do know that what they do always comes from love. Of course there will be times when they say the wrong thing, but that happens to everybody. In those situations, I need to remember that they didn’t mean anything by it, and that it is okay for me to stand up for myself by saying that my feelings are hurt.

 

Clozapine Rechallenge – Day 2

Clozapine Rechallenge – Day 2

Last night I took 50mg, as instructed. I had some problems falling asleep because I couldn’t breathe; I actually had to go get my inhaler and sit upright for about an hour. It’s a sign of an anxiety attack, except for the fact that I didn’t feel much anxiety. However, once I was finally able to fall asleep, I slept! I actually slept about 6 or 7 hours, and the best part is that I slept straight through the night! That almost never happens to me, I’m so excited.

Once I woke up, I noticed that I was a bit unsteady, but only if I bent over or was too active. So I’ve asked for help with things, and my husband was more than happy to assist me. I also noticed that I’m slurring some of my words, and I did wake up with a sore throat. The longer I’m awake, the better I feel. Both of these things are side effects of Clozapine. I will inform my psychiatrist, but I do not want to quit this medication so quickly. I’m prepared to tough it out.