Dystonia and Depression

Dystonia and Depression

I had another ECT treatment today. It feels like I’m going to have to do this forever. I stopped doing it at one time, and my depression just worsened quickly. Then I had to restart everything. When I restarted, I had to do 2 treatments a week for 4 weeks (at least that’s better then 3 times a week), then once a week for 6 weeks, and since then I’ve been going once every other week. I’m not so sure how well it’s working right now. My depression pretty deep, and my suicidal ideations are almost constant. Even when I try to ignore them or think positively, those thoughts are still there. Even though it doesn’t feel like ECT and all of my meds are working, I know that if I stopped either one of them, either my depression would plummet horribly or I’d go into a major manic episode.

Over this past week, especially the past couple days, my dystonia has gotten a lot worse. I brought it up to my psychiatrist this morning before ECT. He asked me several questions that I answered, but he never gave me a solution. My husband reminded me to email him about it, which I did as soon as I got home. He asked me for a list of all my medications, prescription and OTC, which I gave him right away. Now I’m just waiting for him to call something into the pharmacy for me. Hopefully, whatever he prescribes will help this go away. I can’t stand it much longer.

Overwhelmed Since I’ve Returned Home

Overwhelmed Since I’ve Returned Home

I have been home for five days now, and I still haven’t gone grocery shopping or done laundry. I plan on doing that stuff every day, but for some good reasons, they keep getting pushed to the next day. Yesterday, my husband and I spent the entire day with his mother getting a second opinion on her cancer. We are very grateful that we went there. The Mayo Clinic was wonderful.

Today, we’re having someone come and spray in and outdoors. I think we’re having it done 4 times a year, just to be safe. I keep finding crickets around the house, so I know it’s necessary.

I have to get my monthly Clozapine blood work done soon. I have enough meds to get me through for another 9 days. Instead of pushing myself way too hard, I will make an appointment for Monday and allow myself to catch up on everything else that I missed while I was away.

 

Headed Home – Vacation’s Over

Headed Home – Vacation’s Over

Vacation is over. I’m on my way home today. I was worried about checking my bag. It seemed to be extremely heavy. I thought that it was going to be over the 50lb limit. I had no scale to measure it with. Luckily, when I weighed it at the airport, it only weighed 47lbs. Then, I surprisingly went straight through security in the airport without getting stopped by anyone.

I’m early for my flight. I would rather be early than late. I sit down near my gate but far enough away so I’m basically alone. I’m about to be on a 6 hour flight with people all around me. I’ve decided to have as much alone time as possible. I found a group of chairs up against a wall that are off on their own with no one in them. Granted, they are about 30 feet away from the restrooms, but at least no one is coming to sit near me and start a conversation.

I had a great vacation, and I don’t want to leave, however; at the same time, I’m really looking forward to going home. The thing that I really like about this vacation, and pretty much any vacation, is the time I get to spend with my mom. Since she lives so far way from me (about 2,500 miles), I only get to see her about 2 or 3 times a year. Leaving her is hard, but going back home to my husband is good.

In The Airport – Waiting For My Flight

I’m sitting at a gate in the airport. It’s not even the gate that my flight leaves out of. It was the empty gate when I got here, so I thought that it would be a good place for me to sit. I don’t like crowds, especially when people are all around me, including behind me. I was sitting for less than 5 minutes, when suddenly everyone else thought that the area I was in would be a great place to hang out. UGH!

I made it through security alright. Granted, I did forget to take my laptop out and remove my phone from my pocket. The excuse that I’m using is that I’m taking a red-eye flight and I’m simply overly tired. That’s a good excuse.

I have decided to take only some of my night meds. I don’t want to take my Clozapine because that knocks me out cold. If that happens, then if someone next to me touches me or if the fight attendants wake me up for some reason, I would wake up terrified. Plus, the Clozapine makes me drool (so annoying). And I don’t mean I drool a little bit. It’s a lot. Way too much. So I will take my night meds, minus my Clozapine, and add in a Valium. So that’s the plan. I guess I will let you all know tomorrow how this all went. I’m hoping for the best (at least I’m going into it with a positive attitude).

A Busy Day Before I Leave

A Busy Day Before I Leave

Today has been a big and busy day. I started off late for my first appointment of the day. I ended up making it to the appointment on time, but I was very rushed to make it there. Once I got there, I had to fill out almost an hour worth of paperwork. Thank goodness my husband was there to help me fill everything out; I can’t remember much with my memory loss. This first appointment was for some back pain I’ve been having. It turns out that my spine is in good shape (yay) and it’s just a muscular problem. I’m now taking a tapering dose of Methylprednisolone for six days. I don’t like adding more medications to what I’m already on, so hopefully it helps.

I had two doctors appointments today. This afternoon was when I started packing for my trip; I leave for Cape Cod tomorrow night. I already have my packing list figured out. I just have to run everything through the dryer to make sure all of the bed bugs are gone (which they are).

I’m excited to be on vacation for a week. I can’t wait to spend all of this time with my mom, my sister and husband, and their kids. The kids are growing up so quickly. I can’t believe that the youngest is 14 years old. While I will be loving my trip and enjoying all of my time on vacation, I’m going to miss my husband while I’m gone. My husband is my rock. He helps me get through everything. I don’t think I could handle life without him. I’m lucky to have him in my life.

High Blood Pressure

High Blood Pressure

Today, my blood pressure was pretty high. I had my BP taken by the nurse before seeing my doctor. She first used an electric BP cuff, and it came out to be 167/147. I told her that it’s usually lower when done manually. I also tried breathing calmly while she was taking my BP manually. It worked! It got all the way down to 147/97. It’s still higher than it should be, but it’s lower than it was just a few minutes before. If you look at how stressful life is lately, it makes sense that my BP would be high. It’s something that I’ll keep working on, and hopefully it will get better. However, I can only work on so many things at one time.

It’s almost time for my vacation. I leave, in just one week from tomorrow evening, to go on vacation to Cape Cod. I’m really looking forward to seeing my family, especially the time alone I’ll have with my mom. I wish I would have lost some more weight before my trip. Oh well, I did the best I could, and I will keep trying every day, even while I’m out there on vacation.

Pushing Myself Way Beyond Comfort

Pushing Myself Way Beyond Comfort

The past couple days have been pretty difficult. I’ve been pushing myself to do things that I normally wouldn’t do. I’m doing these things because I know that they would help my husband and mother-in-law. I know I don’t have to do these things. It’s my choice. I’m choosing to do them because I think it’s a way for me to love and support my husband and mother-in-law.

Saturday night, my husband asked me if I wanted to go play darts. I got ready and took a Valium. My husband really just needed to get out of the house. We had a good time. We met his best friend there and got to meet his new girlfriend, who we both like. The hardest part was walking into the bar and through crowds. I was okay once we got to the dart boards. There were a lot of people there. My husband was very helpful. He made sure to always hold my hand when we were moving around and he stood behind me when there were other people standing behind me.

This morning, I decided to go to church. It’s a Christian church. Again, I took a Valium because I knew this would be more than difficult. I knew it would make my mother-in-law very happy, and it did. About half of it was singing. My husband told me a few times that I could sing along (almost everyone did), but I didn’t want to. I didn’t want to sing along with words that I don’t believe in. Honestly, I have no clue what I believe in. I know that there is a power greater than myself; I’m obviously not all-powerful. However, that’s really all I know and believe at this point.

Going to church today really made my mother-in-law happy. It put a huge smile on her face. She even thanked me for coming and acknowledged how difficult it must have been for me to do so. I’ve been trying to figure out why I decided to go to church. I’m not sure if this is a reason or not, but I chose to go because no one ever asked me to going. Everyone knows I have a hard time with church and God. I wasn’t pushed into doing something I didn’t want to do. I was accepted for who I am, and that’s why I went. I’m not sure if I will go again or not. Right now, I’m completely overwhelmed with life. I wish there was a way to simply pause everything.