Category: Med Management

Clozapine Blood Work Change

Clozapine Blood Work Change

Since the beginning of April, I have been getting my weekly Clozapine blood work done on Fridays. A couple of weeks ago, somehow the day that I pick  up my prescription changed. Instead of picking up my filled prescription on Sundays or Mondays, I’m picking it up on Thursdays.

Since I now pick up the script on Thursdays, it seems a bit ridiculous  to get my blood work done on Friday. I’m going to start by changing my blood work days to Mondays. Depending on how things go, I will either stay with Mondays or change to Tuesdays.

All I know is that my psychiatrist and pharmacist should be getting current blood test results. Right now, by getting blood work done on Fridays and prescriptions filled on Thursdays, none of my results are technically current. I’ll see how Mondays go for a while; I have an appointment right now for Monday at 2pm.

Another Week Of Clozapine

Another Week Of Clozapine

It’s time to refill my Clozapine again. I really hate having to do this every week. I spend so much time making sure the pharmacy can find my blood work results (they usually can figure out where they put the paperwork) and making sure my prescription is refilled or called in as necessary. After I’ve been on this medication for six months, I will be able to do this entire process every other week. Then, once I’ve been on it for a year, I get to do this once a month. So there is something to look forward to, it’s just going to take some time to get there. I started taking Clozapine in the beginning of April, so I still have to do this weekly ordeal until the beginning of October. That time can’t come quick enough.

Even though dealing with this charade is very stressful and difficult, the medication has been helpful. I do believe that Clozapine has helped to improve my depression when nothing else was helping. The reason the blood work and weekly scripts have to be completed is to protect me, and anyone taking the medication, from serious side effects that could occur. So far, I’m doing okay, and I hope that the Clozapine will eventually help me, and maybe even help me become stable. Anything is possible.

UPDATE: I received an email from Walgreens letting me know that my Clozapine prescription has been filled and is ready to be picked up. I’m going to go get it tomorrow afternoon. I’m so surprised. I didn’t even have to make sure they found my blood work or explain that I get the prescription every week. This is the first time that they did it all on their own, and I’ve been doing this every week for over two months. This is wonderful news; maybe it will be this easy to get my weekly Clozapine prescription.

IV Ketamine Scares Me

IV Ketamine Scares Me

The other day I made the decision to stop my ECT treatments and to increase by Clozapine dosage. I’m currently at 200mg and will be increasing my dose by 25mg each week until I reach 400mg. This was one of the options my psychiatrist gave me. Another option was to go back to doing ECT three times a week, but I’m not willing to do that at this point. The third option my psychiatrist gave me was to do IV Ketamine. He has been offering this as an option for many months now, but it’s not something I want to do.

IV Ketamine scares me for a couple of reasons. I used to get high off of Ketamine when I was using. That was a long time ago, and I know that abusing Ketamine and using IV Ketamine are two completely different things; the side effects of IV Ketamine are nothing like the effects of getting high off of it. My biggest fear of trying IV Ketamine is the possibility of dissociation. When I would use Ketamine to get high, I would take so much that I would slip into what’s called a ‘k-hole’, which is pretty much a dissociative state. I couldn’t move or speak, but I could still feel everything that was going on around me. The possibility of dissociating scares me, it triggers my PTSD. I always need to be able to protect myself, and dissociation would take that away from me. Plus, the treatments are especially expensive.

The use of IV Ketamine is highly effective, and it works very quickly. It is known to show improvements by the end of the infusion. Maybe my reasons for not trying it are ridiculous, but they are my reasons. I’m not saying that I’ll never try IV Ketamine; I would just prefer to leave it as an absolute last resort.

How Much Medication Is Too Much?

How Much Medication Is Too Much?

I take a lot of medication, and I really mean a lot. I take medication for both my mental health and my physical health. I already take Lithium, Tegretol XR, Deplin, Clozapine, Mirapex, Cytomel, Valium, and Inositol all for my mental health. I also take Zofran, Percocet, Depo-Estradiol, and Depo-Testosterone for my physical health. This doesn’t even include my multiple inhalers and breathing treatments. I’m hoping that I can decrease the meds over time. The first medication I want to go off of is the Deplin. It’s really expensive and I don’t think it’s been doing me any good. I have to wait until I’ve been off of ECT for a while before making any changes to my mental health medications.

A doctor told me this past week that a certain medication may help my bladder condition, but it would be a lifelong medication. I laughed, sarcastically, and told her that wouldn’t be a problem for me. I’m already on a lot of other meds that are lifelong ventures, adding one more to that list is no big deal. Plus, it would be awesome if I could eventually stop getting bladder installations done every week. The new medication is called Elmiron, and the problem is that it’s very expensive. The cheapest I found it was $224 a month. Luckily, my aunt found a patient assistance program that I’m qualified for. I have already filled out my portion of the paper work. I will have my doctor fill out the rest of the documents (which isn’t much) and then I can send it in. I’m excited to find out how much this program will help me.

I often wonder how much is too much. It’s hard to get off medications once you start them because everything has to be done slowly in order to know what medication is causing or helping each issue. Most of my medications are for my mental health, but there are still many that I take because of my physical health. Also, a couple of my meds from both physical and mental health are taken only as needed, so I don’t take them every day. For example, I only take the Zofran when I’m nauseous, the Percocet for pain, and Valium for anxiety attacks. I try to take these meds as little as possible; I don’t want to become dependent on them. I’m sure that I’ll always be on medication, but maybe one day I won’t have to take as much as I do right now. I wonder how many other people take as much medication as I do.

Standing By My Decision – I Actually Did It!

Standing By My Decision – I Actually Did It!

I was very nervous about my psych appointment yesterday; I was so nervous that I even had an anxiety attack. I’m not used to telling anyone what I want, especially when it’s different from others want. Standing up for my own desires is nerve-wracking for me. I prepared for my psych appointment yesterday by writing down exactly what I wanted to say. I told my psychiatrist that I wanted to stop ECT because it has become too hard on my body and my mind. I’ve been doing ECT for close to a year and a half, and I just can’t take it anymore. I explained my reasons and to my surprise, he was okay with my choice. He explained that he respects my choice; I couldn’t ask for more than that. I’m very happy with the outcome of that appointment.

He gave me several options about what we could do moving forward. He told me I probably wouldn’t like a couple of the options, but he was going to mention them anyway. I’m glad he did mention them (without any pressure). It was nice to see all of my options at once, even though I didn’t like most of them. Together, we decided to slowly increase my Clozapine up to 400mg a night. We will increase the dose by 25mg each week until we reach our target goal of 400mg. We are increasing slowly to hopefully avoid some negative side effects such as dizziness, fevers, and drowsiness. It will take two months to reach our goal. I will see him in three months. This gives me time to get to the target dose and then allow my body to adjust to the dose for a while. I’m really hoping that this change will help. The Clozapine has helped quite a bit so far, I have a feeling that it will continue to help.

My husband pointed out to me that this is the first time that I made my own decision regarding my mental health, and stuck by it. He was proud of me. To be honest, I’m proud of myself. I know it sounds a little ridiculous to be so happy about this decision, but it’s a huge step for me.

Managing My Health

Managing My Health

Sometimes I feel like all I do is go to doctor appointments, pick up my prescriptions, and manage my prescription refills. This week, I have two doctor appointments and another appointment for blood work. That’s about how many appointments I have each week. I feel pathetic. Most of my life is spent attempting to manage my health, especially my mental health.

My current meds are: Lithium 450mg twice a day, Tegretol 200mg one in the am and two at night, Cytomel 37.5mcg in the am, Clozapine 200mg at night, Deplin 15mg at night, Mirapex 1mg three times a day, Inositol 500mg in the am, Depo Estradiol injection weekly, Depo Testosterone injection monthly, Valium 10mg twice daily as needed, Percocet 10mg as needed up to four times a day, and Zofran 4mg once daily as needed. It’s difficult to manage this many medications, but I do it pretty well. I’ve gotten used to it; I’ve developed a system so I get all my meds filled on time without missing a day.

I have an appointment with my psychiatrist on Thursday to discuss my Clozapine dosage. I’ll probably end up with more than one medication change. I’m hoping to get off the Deplin. It’s really expensive and it doesn’t appear to be making a difference. We’ll see what happens on Thursday.