I started IV Ketamine this past November. I’m doing the treatment every week (for now). I’m hoping to be able to change that to once every three weeks fairly soon. I was resistant to trying IV Ketamine for a while. Then, my depression got extremely bad, and none of my meds or treatments were helping, so I finally decided to give IV Ketamine a try. It works so well, I wish I tried it a while ago.
The IV Ketamine is working very well for me. It’s the reason that I can finally stop the ECT treatments. I’ve actually already started to wean off of ECT, thank goodness.
I’m back… I disappeared from my blog for more than 2 months. My last post was on November 4th. I said that I needed break, and apparently I took one. My depression has been rough for quite some time, but luckily it has gotten a lot better. I’m fortunate to have family and friends that are understanding, supportive, and honest with me. I’m trying to take everything just one day at a time.
I’m a bit out of it right now because of the ECT treatment I had this morning. I will get to stop ECT fairly soon. In December, we decided to slowly stop the ECT treatments because I finally started IV Ketamine (which is working very well!). I will write about that soon, hopefully sometime this week. I’m trying now to wear myself too thin.
Memory loss is a side effect I’ve been experiencing from ECT. I have been on 2 medications to help with memory loss for several months now. When I saw my psychiatrist, I told him that my memory is not improving or stabilizing; at least not from what I can remember. He told me that for his patients that have been on these medications successfully definitely noticed a change. If I wasn’t sure if the meds were helping or not, then they most likely weren’t helpful. So, I’m tapering off of Donepezil and I should be off it completely in under two weeks.
I wonder if there’s anything that can help my memory. If the medications I’ve been trying aren’t helping, what’s the next step? I already write everything down and even record certain things when need be. However, ECT continues to screw with my memory. It appears as if my memory will just continue getting worse because I’m doing ECT once every two weeks.
I wish I could stop ECT. It feels as if my mind and body can’t take much more of it. However, I know that if I stop now, with nothing to replace it, then I’ll slip further into my depression. So instead, I continue to go along with what my psychiatrist wants me to do, as long as he explains the reasons why he wants me to do each specific treatment.
I had another ECT treatment today. It feels like I’m going to have to do this forever. I stopped doing it at one time, and my depression just worsened quickly. Then I had to restart everything. When I restarted, I had to do 2 treatments a week for 4 weeks (at least that’s better then 3 times a week), then once a week for 6 weeks, and since then I’ve been going once every other week. I’m not so sure how well it’s working right now. My depression pretty deep, and my suicidal ideations are almost constant. Even when I try to ignore them or think positively, those thoughts are still there. Even though it doesn’t feel like ECT and all of my meds are working, I know that if I stopped either one of them, either my depression would plummet horribly or I’d go into a major manic episode.
Over this past week, especially the past couple days, my dystonia has gotten a lot worse. I brought it up to my psychiatrist this morning before ECT. He asked me several questions that I answered, but he never gave me a solution. My husband reminded me to email him about it, which I did as soon as I got home. He asked me for a list of all my medications, prescription and OTC, which I gave him right away. Now I’m just waiting for him to call something into the pharmacy for me. Hopefully, whatever he prescribes will help this go away. I can’t stand it much longer.
I have been home for five days now, and I still haven’t gone grocery shopping or done laundry. I plan on doing that stuff every day, but for some good reasons, they keep getting pushed to the next day. Yesterday, my husband and I spent the entire day with his mother getting a second opinion on her cancer. We are very grateful that we went there. The Mayo Clinic was wonderful.
Today, we’re having someone come and spray in and outdoors. I think we’re having it done 4 times a year, just to be safe. I keep finding crickets around the house, so I know it’s necessary.
I have to get my monthly Clozapine blood work done soon. I have enough meds to get me through for another 9 days. Instead of pushing myself way too hard, I will make an appointment for Monday and allow myself to catch up on everything else that I missed while I was away.
I wonder how much my medications are working. I take 11 meds plus I do ECT once every two weeks. This does not include the medication I take for my physical health. I take so many meds, it’s hard to tell which ones are working and which ones need an adjustment. I feel like something needs to be adjusted, I just don’t know what. My medications are as follows:
Clozapine 100mg – 4 pills at bedtime
Cogentin 1mg – ½ pill in the am, 1 pill in the pm
Cytomel 50 mcg – 1 ½ pills in the am
Donepezil 10mg – 1 pill at bedtime
Inositol 500mg – 1 pill daily
Lithium ER 450mg – 1 pill 2 times a day
L-Methylfolate 15mg – 1 pill in the am
Memantine 10mg – 1 pill 2 times a day
Metformin 500mg – 1 pill in the am, 2 pills at bedtime
Mirapex 1mg – 1 pill 3 times a day
Tegretol ER 200mg – 1 pill in the am, 2 pills in the pm
I had another ECT treatment today. I restarted ECT in February of this year, and since then I think I’ve had 20 treatments. That does not include the first time I did ECT, which was in 2015. While the treatment does help me, it also destroys my memory.
Today’s treatment left me in quite a bit of pain. My husband says it’s always like that, but I can never remember (which is probably a good thing). The anesthesiologist had a hard time getting my IV in. He put it in my wrist, which does not feel good, but he had some problems and it ended up bleeding all over the place. He finally got it in my arm, which did not hurt. I hope he won’t continue to put the IV in my wrist after today’s mess.
My wrist continues to hurt from him digging around trying to find a vein. There’s a big bump there, hopefully that will go away soon. I only have one more ECT treatment before I go on vacation with my mom. It’s nice to have something to look forward to.