I’m exhausted. I’m overwhelmed. I keep feeling like I won’t be able to make it through the day, but I continue to push myself. I’m just trying to get through each day, one hour at a time. Every moment that I make it through is a huge accomplishment.
I suppose that since my husband is struggling with his mother’s cancer diagnosis and he’s worried about his brother, I feel like I need to be stronger. I know that if I were to say this to my husband, he would disagree. I know he only wants what’s best for me, but I can’t help but feel this way.
I pretend to be stronger than I really am, but pretending can only take me so far. However, with every passing day, I feel as if I’m getting worse. Every day for the past month, at least, I’ve thought about going to a psych unit; however, I don’t end up going. I know that I’m not going to do anything, but the thoughts keep running through my mind. I wish I could take a break from my mind. If only that were possible.
Clozapine (Clozaril) can be a frustrating medication to be on. You have to get blood work done every month just to be safe because the medication can have some serious side effects. I’ve never had any problems with the possible serious side effects from Clozapine, but I have had problems getting the actual prescription filled every month for the past year.
I go and get my blood work done (on time, like I’m supposed to), but the pharmacy I go to does not have it together. They always deny getting my lab results, so I end up calling the lab and having them re-send the blood work results. The pharmacy has even told me a couple of times that they weren’t there when the lab faxed over my results, which is why they don’t have them. That is complete crap. Even if my results were faxed over in the middle of the night, they should be there waiting for the pharmacy when they open.
Yesterday, I thought I found a new pharmacy. I talked to the pharmacist, and they were able to register me in the Clozapine database; however, they could not accept blood work results from the lab. So, it looks like I’m going to be staying at the same pharmacy I’ve been struggling with for the past year. I guess, I’m just going to have a sit down with the pharmacist and see if I can get everything figured out.
I had a rough day yesterday. I was stressed and my anxiety level was very high. I was able to keep myself from having a panic attack, but the anxiety attack was still pretty rough. The Valium helped. I also used some breathing techniques, just simple breathing in and out, not too fast and not too slow. The breathing helps me stay calm and focusing on it also helps me forget what I’m anxious about, even if it’s just for a minute or two.
Today seems like a better day. I have a normal amount of anxiety. I’m more frustrated than anything else, and I don’t really know why. I generally don’t know why I feel the way I do. I’m going to go get a bunch of stuff done. Being productive often makes me feel better.
I take a lot of medications; most I take daily, and some are taken as needed. I keep very close track of my medications and when they need to be refilled. It’s a big task, but I make sure I’m on top of it all. I have a problem filling my Clozapine prescription every month. I have to do monthly blood work. The pharmacy won’t fill the Clozapine without the blood work results. Filling this prescription is an issue every single month.
Every month, the lab forgets to send the pharmacy my results. It’s always a huge hassle. Even though I filled out the paperwork, I still have to convince the lab to send my results over. I shouldn’t have to call the lab every time. At least I’ve found a way to make the phone call easier and shorter.
I refill my prescriptions about a week early (they can be filled from approximately 3 to 7 days early depending on the script). If I start early (at the 7 day mark), then it’s okay if they run into a problem. I learned this the hard way. Running out of prescriptions is not fun.
I’ve been struggling more and more lately with memory problems. There are so many things in my past that are completely blank, which does have some benefits. However, there are negatives as well. For example, I don’t remember what pushed me over the side and decided to get sober. I don’t remember most of my childhood and I don’t even remember my time in college when I was taking classes on campus.
In addition to my memory problems, I’m also having a hard time finding the right words when speaking. I did some research and found out that this is called Aphasia. There are different types of Aphasia. Mine appears to be Expressive Aphasia, which is when the person knows what they want to say, but has a hard time communicating it to others. I’m worried that this is going to get worse. It’s been pretty difficult and annoying to deal with. I see my psychiatrist at ECT tomorrow morning, so I will probably mention it to him and see what he has to say.
As my days continue to go on, I sit here wondering if and when they will end. Life is exhausting and is often too much for me to handle. I honestly wonder how I make it through all of the “events” and each individual “crisis”. Today, I was so overwhelmed when a company said they didn’t have us scheduled for an appointment, even though the technician wrote down our appointment for us. I was so overwhelmed, frustrated, angry, and stressed that I started crying. Apparently, when I get to my breaking point, I end up crying (which I hate doing). I was able to manage the situation on my own (that’s a big deal for me). I spoke to the manager and was able to have someone keep the appointment and come out today.
In my life, there seems to be one problem after another, and another, and another, and so on. I just want a break; a few days, strung together, where problems don’t keep arising. I guess I just have to do my best to go with the flow.
All of these problems that have been coming up have been causing my blood pressure to rise. By taking in deep breaths, I was able to bring my blood pressure down 10 points, down to 146/102. For some reason, the physician’s assistant to me that I need to work on lowering my blood pressure. She told me that I need to relax. I couldn’t believe it! Was she kidding me or was she just completely ignorant? She knew all of my diagnoses. Telling someone to “just relax” is absurd. Anyway, I’m trying to bring my blood pressure down, hopefully it will work even the slightest bit.
It never stops. It’s just one thing, after another, after another, and so on. When can I catch a break?! Today, it was a notice I received in the mail last night. I’m stressed to the max. Just when I think it can’t go any farther or get any worse, something else happens. I’m not necessarily stressed so much this time because of what this issue is about, it’s just the fact that it’s another issue.
My husband kept trying to cheer me up, but that wasn’t helping. I explained to him that my real worries with this issue is that I might have to go somewhere that I don’t know in order to solve the issue. He offered to take care of that for me, which helped a lot. He said that I take care of him all the time, that now it’s his turn. I’m lucky to have a helpful and caring husband.