I take a lot of medications; most I take daily, and some are taken as needed. I keep very close track of my medications and when they need to be refilled. It’s a big task, but I make sure I’m on top of it all. I have a problem filling my Clozapine prescription every month. I have to do monthly blood work. The pharmacy won’t fill the Clozapine without the blood work results. Filling this prescription is an issue every single month.
Every month, the lab forgets to send the pharmacy my results. It’s always a huge hassle. Even though I filled out the paperwork, I still have to convince the lab to send my results over. I shouldn’t have to call the lab every time. At least I’ve found a way to make the phone call easier and shorter.
I refill my prescriptions about a week early (they can be filled from approximately 3 to 7 days early depending on the script). If I start early (at the 7 day mark), then it’s okay if they run into a problem. I learned this the hard way. Running out of prescriptions is not fun.
I have so much to do lately, but it’s extremely hard to get any of it done. The main reason for the difficulty is because I’m having a hard time remembering just about anything. The ECT is causing a lot of memory loss, despite the fact that I’m on two different medications (Memantine and Donepezil) to help my memory. I can’t remember what I’m supposed to be doing, what I have done, or even what I do or don’t enjoy doing.
I miss my memory. You don’t always realize how important something is, until you don’t have it anymore. I wish I had the ability to respond to people accurately. I wish I had the ability to know what I truly wanted in life. I wonder if there is anything that will help my memory come back. Will these medications ever kick in?
Yesterday ended up being an okay day. It was my birthday, and I got to spend my day with a friend and the night I spend with my husband.
My memory is still really bad. I tend to forget things that I’m told anywhere from less than an hour to a month or so. It’s making my life very difficult. I’m already taking two medications for Alzheimer’s, Memantine 5mg and Donepezil HCL 5mg, but they don’t seem to be working yet. I’m not sure when they’re going to start working, if they’re going to work for me at all.
I’m doing my best to write everything down in my new bullet journal. It helps me organize my days, weeks, and months. I’m hoping that I’ll be able to keep track of everything. In order remember everything, I have to write it down as soon as I’m told. If I don’t write it down right away, then I’m sure to forget it.
This is the third time in a row that I’m having problems getting my Clozapine prescription filled. The lab automatically faxes my blood test results to the pharmacy, but for some reason, the pharmacy cannot find them. Yesterday, the pharmacy told me they didn’t have the results without even knowing my name. Then I told them my name and said that the test results normally go straight into my file. Less than a minute later I was told again that they don’t have the test results.
I called the lab and left a message for them asking them to resend my blood work to the pharmacy. Today, I will call the lab again just to make sure they got my message, and then I will call the pharmacy again. If I’m still having difficulties, then I will just show up at the pharmacy and ask to speak to the pharmacist. I really wish it wasn’t this difficult getting my Clozapine script filled.
Today, I start two new medications. They are Donepezil (Aricept) and Memantine (Namenda). Both of these medications are meant to treat the memory loss that goes along with Alzheimer’s and dementia. I’m taking it because of the severe memory loss that I experienced the last time I did ECT. I’ve only been doing ECT again for the past two weeks, and I’m already experiencing some memory loss and cognitive changes. I’m trying to stay positive about starting these two new medications. I’m hopeful that they will help with the memory problems.
I’m not a fan of adding new medications to my already huge list of meds. However, if the new medications can help fix a difficult side effect of the ECT treatments, then I am 100% willing to try them out. I’ll try the meds for a couple of months, and if they don’t help out, then I will stop them.
I’ve only had two ECT treatments so far and my memory is already getting worse. I’m already forgetting where I put things, what movies I’ve seen, and other normal day-to-day things. Last night, I made a to-do list for all of the things I have to do today; however, I’m looking at my list and I don’t know what everything means. I wrote Cigna on my list, but I have no clue what I’m supposed to do with that. Neither me or my husband is insured by Cigna. I’m hoping that eventually it will come to me.
My psychiatrist started me on medication for Alzheimer’s. He prescribed two medications. One is Donepezil, which I will start tonight. The other prescription is not ready yet. I’m hoping that these new meds will help with my memory loss.
I walked into my psychiatrist’s office (let’s call him Dr. E) with my husband and my heart was pounding so hard it felt as if it was going to jump right out of my chest. My anxiety was extremely high, despite the fact that I took a Valium as prescribed and had my husband with me. It was a good thing that I wrote everything down that I wanted to say. I opened my notebook and started reading what I wrote, and he seemed to appreciate what I was saying. He let me ask all of my questions; and he answered every one of them thoroughly.
We decided that I would go back to ECT and I would only do it twice a week to start. That was the treatment that Dr. E thinks is the best approach, and he explained why, so that’s the treatment we decided to go with. I’m so happy that I’m not starting at three times a week. He said that he can give me anti-alzheimer’s medications to help with the memory loss and Toradol to help with the migraines and jaw pain. He’s also helping me work on weight loss.
It was such a successful appointment. I feel like Dr. E really listened to what my husband and I had to say. He approached every one of our concerns and answered everything we asked. Now, I just have to go get a physical from my PCP, get an EKG and blood work..