Insecure, Insignificant, and Worthless Feelings

Going out, whether it’s for fun or to get things done, can be very difficult. I like to isolate, I prefer to be by myself. I’m also extremely hard on myself. Whenever I go out, I have to get dressed, and that is always a reminder of my weight gain. Due to my bipolar, my weight has fluctuated over the years. Right now, I’m gaining weight, which makes me feel bad about myself. Weight gain really messes with my self-confidence. When I stay home, I don’t have to worry about other people judging me; I only have to worry about my own judgments, which is hard enough.

Everyone judges themselves, especially women, but I take it too far and let my thoughts interfere with my activities. I wish it was something that I could fix. If I’m not self-conscious about my weight, then it’s something else. I’m always going to find some way to judge myself. All women struggle with confidence, but not everyone lets those fears and thoughts interfere with their lives. Actually, everyone struggles with confidence, it’s not just women.

I’m not so sure how to get past these insecurities and fears. I’m not sure if I can handle some of the activities that I’ve been asked to do. Not all of my insecurities are due to my weight. I’m also terrified to go to large public events. I have anxiety attacks when I feel trapped and when I’m surrounded by people. There’s something coming up that my husband wants me to go to, and it does sound like fun, as long as I’m going with him. My husband is like my security net, he makes me feel safe no matter where I am. However, we’re not sure if he can go to the event because of work. I tried to explain to him how difficult it would be for me to go without him or with anyone else, but I’m not sure if he understands. I know that he really just wants me to get out of the house more and do healthy things; however, there is a big difference between trying more things and pushing yourself too far.

I wonder all the time if I’ll ever have my old life back; the life where I enjoyed going out to public events and I could manage my life without too many problems. I just want to feel free again; instead, I feel trapped by my fears and insecurities. I’m not sure if I will have that freedom again, but I’m still trying. I feel as if I’m wearing masks to cover up my feelings of insecurity, insignificance, and worthlessness. I pretend to feel good about myself, even when I don’t. I may feel bad about myself, but at least I know that those thoughts are not really accurate. I know that I’m better that I believe myself to be, I just wish I could really believe in myself. Hopefully I will one day, but until then, pretending to be okay is better than nothing at all.

Planning Ahead For My Trip

I’m trying to plan ahead, trying to get ready to go away again for 8 days. I always try to pack for any situation; you never know what you’ll need while you’re away. I’m even going to a different climate, making it even more difficult to pack. I have to go through my closets to find some long sleeve shirts in case it gets cold. I also have to find my suitcase that is somewhere in my garage. I’ve written out the list of everything I need to pack including toiletries, clothes, shoes, medicine, and extras. My plan is to lay everything out on the guest bed and check things off as I pack them in my suitcase.

I still have errands to run. My weekly prescription went through yesterday without any problems, which is the first time that happened problem free. I have to go grocery shopping and pick up my script today. I also want to go shopping for some clothes, mainly pants, if I have the time. All of that has to be done by the end of today. Tomorrow, I’m spending a good portion of the day with my in-laws; it’s my stepdaughter’s first Mother’s Day, and I won’t be available on Mother’s Day to be with any in-laws. I don’t like leaving things to the last minute. Tuesday morning I have to leave for the airport; I will need to be completely packed by Monday night and have my clothes for the day left out on the dresser. I plan on having everything laid out on the bed by the end of the day, and then simply packing everything by the end of the day tomorrow. A few things will be left out that I need in the morning; otherwise I will be ready to go.

While it’s important that I pack everything I could possible need, I also have to make sure I set my husband up so that he has everything he could need. I don’t have to do these things for my husband, but since he works and I don’t, I feel that I should do these things for him. I like to make sure my husband has all the food that he’ll need. I also have a couple of bills to take care of before I leave.

I’ve been told that I plan too much, but I don’t think that’s possible. I’ve been told that some things you can’t plan for, which is probably right, but there’s no harm in trying to plan. The way I plan is by making lists. I’m a very visual person and if it’s written down then it will get done. I try to think of every situation, like going out somewhere fancy and bringing back birthday/holiday gifts, to make sure I will have everything I need. I always believe it’s better to have something and not need it than need something and not have it.

Overwhelmed and Anxious

I have so many things to get done in a limited amount of time. So many things, such little time to do it in; we’ve all heard that before, we’ve all probably said that before. Right now, that seems to be my life, except I feel frozen. I’m struggling to get things done, even some of the smallest things. All I can think about is all of the other tasks I need to complete. It’s weird to have your brain running so fast but also be frozen at the same time. What do I do now? Where do I start? Sometimes I feel as if I’m outside of my own body. I feel as if I’m looking at myself and all the things I need to do, and still can’t get it all done.

I feel off, something feels off and I can’t pinpoint it. Is it because I forgot to take my Clozapine two nights ago? Maybe it’s because I’m on a time schedule? It could be because I’m dealing with what appears to be a minor depressive episode, hopefully it doesn’t get worse. It could just be because I’m about to go on another trip to visit my family. I love my family and we get along wonderfully, but it’s still stressful. I’m really looking forward to seeing my family. I can’t wait to have one-on-one time with my mom, nieces, nephew, aunt, grandma, and more. There are so many people to see, and I have only one week to get it all done in.

My best friend from high school just reached out to me and she wants to get together for lunch while I’m back where I grew up. I haven’t seen or talked to this girl since I was 17 or 18 years old. Now, she wants to catch up and that worries me. Now that I think about it, this is probably why I’m having so many issues right now. This is overwhelming. I tend to have anxiety attacks when I go visit my friends that I see regularly, what will happen when if I visit with someone I haven’t seen or talked to in over a decade. Thank goodness for Valium. I don’t take it that often when I’m in my normal surroundings, but I know I will go through quite a lot while I’m away. I won’t take more than I’m supposed to, but I’m allowed two 10 mg pills a day, and that is a lot to me.

Beyond Frustration – Clozapine Refill Issues

One thing after another, it never seems to end. There is always something that needs fixing or needs to be completed. I had my weekly blood work done on Friday and I’ve been checking for the results a couple of times a day. Normally, it’s done and I get the results the same day or early the next morning. For some reason, this week and last week, it took longer for my results to come through, but they finally did this afternoon. Once I know that my lab results are in, I call my pharmacy to make sure they received a copy. I usually spend the first five minutes of the phone call with them telling me they didn’t receive a copy until they finally look in their fax machine to see it sitting there.

They generally talk down to me, as if I don’t know what I’m doing. Today, the pharmacist kept telling me that they need to receive my lab results every week in order to fill the prescription. If only she would have stopped talking, she would have realized that I’m well aware of that and it was even the reason for my phone call. Shortly after hanging up with the pharmacist, I received a phone call from her. She called to tell me that my white blood cell count was high and she was concerned about filling the script. I explained to her that my count has decreased, improved, since last week and that my only current side effect is fatigue/low energy, but it is almost gone. I told her that I would have my psychiatrist call her. Then, she informed me that she would fill the script, but starting next month any time my lab results are off, they would be required to send my results to a central database location. The pharmacist would no longer be able to decide if it is okay to fill the script or not, someone at the central database would have to decide.

Now, I’m sitting here thinking that I could be taken off Clozapine any time if my blood results are off. I’m basically living week to week, never knowing if I’ll be able to get my next prescription of Clozapine filled. It’s adding on so much anxiety to an already stressful life. My psychiatrist says that they need to be concerned about a low white blood cell count, not a high count; however, I have so many more questions.

If at some point the pharmacy, or central database, won’t fill my script, do I just stop the medication immediately or am I supposed to titrate down off the medicine?
What side effects can I expect from going off Clozapine?
What levels of a WBC (white blood cell count) are good, and which are bad?
Is it bad that my eosinophils count is very high? At what level does that count make a difference?
If I have to go off the Clozapine, what medication would replace it? I’m no longer on Seroquel or any other antipsychotic.
How long would it take for a new medication to start working?
How likely am I to have a major episode if I go Clozapine?

Once I know the answers to these questions, I will let everyone know. Hopefully, I won’t have to worry about any of this. Hopefully, my next blood test results will be back to normal. Until then, I am just going to stress over it all.

I Hate Confrontation

Confrontation scares me, I hate it; it puts me into a panic attack. I keep everything inside and I do my best never to let it out. I would rather hold it all in and be a complete mess, than confront someone about any situation, whether it’s serious or not. I don’t show my anger, I just keep stuffing it down, holding it all in, although I am a pretty sarcastic person. I know that one day I’m probably going to explode, but I just don’t know what else to do with it all.

When I was in rehab, we had to confront each another in a large group setting using the form, ‘When you…I feel…’ format. It may sound somewhat corny, but it does work, when you have the guts to actually do it. I remember when I would have to confront someone, my heart would race so fast and I would start sweating; I would even forget my words, why I was confronting someone, and even how it made me feel. I would do it while I was in rehab because I had to. Now, I do everything I can to avoid it.

I guess I’m afraid to upset other people. I don’t want to hurt anyone else’s feelings or make someone mad. I would prefer to be extremely uncomfortable if it would make other people happy. That sounds weird when I say it out loud, but it’s just how I am. My therapist is trying to get me to work on this, but it’s not as simple as he explains it. Even admitting to myself that I’m angry is difficult for me, why would I be able to tell someone else how I feel?

There are several things that I deal with, such as my anxiety and fears, and I know where those things originate. I think my fear of confrontation probably comes from the same place as my other fears. My ex used to get very physically and emotionally abusive when I would get upset with him. It didn’t take long for me to realize that I just shouldn’t confront him on anything. I guess I just let that issue seep into every other part of my life. At some point, I need to start taking control again. Right now, that’s too scary for me, but I’ll keep it in my mind as an option.

Weekly Blood Work – Same Phlebotomist

I have been nervous for days now about the blood work I had to get done today. Most of my nerves were because of the inappropriate phlebotomist from last week that kept asking me personal questions and telling me what I should do for my bipolar disorder. I have been practicing all week just what to say to her if she was the one drawing my blood again. I was prepared; at least I kept telling myself I was prepared. I was ready to tell her, “I don’t want to talk” if she asked me a question, or to ask for someone else completely. To be honest, I wasn’t prepared. I took a Valium to calm myself out of my anxiety attack and I went to the lab.

I arrived at the lab and stood in line to check in. I made a 2pm appointment, but they were running late. At least my Valium was kicking in, I was able to breathe, my chest pains stopped, I started shaking less, and my mind began to slow. I looked behind the counter and only saw one receptionist and one phlebotomist. Then my heart started to beat a little faster again, it was the same woman from last time. As I walk past her, she asks me “Did you think about what we talked about last time?” I can’t believe that she was that invasive two weeks in a row, better yet, she broke HIPPA laws two weeks in a row. I was surprised, but my response comment came to me quickly. I told her, “Yes, and I’m happy with the way I’m doing things.” I couldn’t believe it, but she actually backed off. The only other things she said was just normal chit-chat, to make time go by quicker. What I said was nothing like what I planned on saying, but it still seemed to work, and that’s all that really matters.

If she says something to me again next week, I will report her. It’s really hard for me to report her or tell her boss about the situation; I’m not sure why it’s so difficult, it just is. My husband keeps telling me I should report her. He’s probably right; I should probably do it for the people she treats after me. Even just the thought of reporting her, or having my husband report her, makes me start to have a panic attack. I don’t know if I could do it; I don’t know if I want to do it.

An update regarding the Clozapine: My fatigue has been decreasing every day and I have no other side effects that I’m noticing. I informed my psychiatrist these facts and that I completed my weekly blood work today. He told me I could up my Clozapine dose to 125 mg. I was so excited when I heard, I was worried he was going to stop the medication because of my blood work results, but he is still allowing me to move forward on my dosages.

Anxiety While Shopping

Running errands is a difficult task for me, and it always seems as if the errands are never ending. I’m comfortable in my own home for the most part, but when I leave my house, all of my fears start to take over. One of my biggest fears is having someone I don’t know come up behind me. My anxiety kicks in when I’m in public. I constantly look from side to side and front to back to make sure I’m aware of everything that’s going on around me.

There are certain stores that I hate going into on my own or at all. These stores have bright and fluorescent lighting, narrow aisles, and large display cases right at the entrance. These aspects cause anxiety and make me feel trapped and uncomfortable. I would prefer to go to a store that ends up costing me more money, than go to a store that brings out my anxiety. Even the regular store that I go to can sometimes cause anxiety; it all depends on how many people are there. It’s important for me to plan when I go shopping to avoid the crowds.

I also hate standing in line when it’s time to check out. There always seems to be someone behind me that doesn’t know what personal space means. This isn’t just at grocery stores; it happened to me the other day when I went to buy dog food. I despise going to the mall. I’ve actually only been once in the past year. I wasn’t alone, and despite that, I was still freaking out on the inside. These are some of the reasons why I try to buy as much as I can online.

There are so many things that I struggle to do, inside and outside of my home, which is why it’s important that I have a support system. My husband is great when it comes to helping me feel safe while we’re out. He will walk behind me so I know that he is the only person directly behind me. This especially helps while standing in lines. When I feel trapped in an aisle, I normally freeze, but he helps guide me through the store. He will put his arm around me, hold my hand, or hold onto my belt loop, making me feel more secure and ensuring that I don’t get lost. I can also go in on my own if absolutely necessary as long as I’ve taken Valium. I have progressed over time with the different activities that I’m capable of doing. Hopefully, over time, some of the regular errands I run will become easier for me to do.

Inappropriate Phlebotomist: Difficult Blood Work Visit

I had quite an interesting visit to the lab today to get my weekly blood work done. I went to the same lab I normally go to, and as usual, I ended up with a new phlebotomist. I signed in for my appointment 10 minutes early and then sat down in the waiting room. Within a couple of minutes, a woman yells my name and says, “Come back and go to room 5”. Normally, they come into the waiting room to call your name and walk back to the desired room with you; I was already off to an odd start. I sat down and she entered the room moments later. I told her that they normally use my right arm.

She looks at me and asks if I’m okay. I said I was very tired, that it’s a side effect of the new medication I’m on, the med that is causing me to have my blood work done every week. Then the odd and inappropriate questions and comments began. She asked what medication I was on that required weekly blood work; I told her it was Clozapine. She asked why I decided to go on this medication; I reluctantly told her I’ve been dealing with suicidal ideations for 5 or 6 months. I didn’t want to answer her questions, but I have a hard time saying “no” to people. She asked if I see a therapist; I said I see both a therapist and psychiatrist; I informed her that I’ve been dealing with this since I was 14. She asked what I was being treated for; I told her I’m diagnosed with bipolar 1 and PTSD. Then she asked why I was diagnosed with PTSD. None of this is any of her business, but I was so uncomfortable and struggle to tell people to back off, so I hesitantly told her it was from a bad relationship.

Then she started to tell me that her husband was schizophrenic and he took medication too, as if that’s supposed to mean something to me and make it okay for her to ask me these questions. At this point, she began telling me what I should do to help my disorders, as if I don’t try to help myself and I don’t know what’s good or bad for me. She told me I should start doing some kickboxing or martial arts, which would help to empower me so I felt better. I told her I would think about it, but she kept telling me that I should do it. I explained that I had a double knee surgery and I have to take things easy, and she told me I was using that as an excuse. She asked if I used meditation; I told her it was something I was working on. Her next question was if I took time journal at all. I told her that I just started a blog and I found it extremely helpful. She responded by telling me that I should write everything out by hand, that typing doesn’t have the same effect. I told her that it works for me, but she kept telling me what I should do.

I called my mom as soon as this appointment was over and told her all about it. I don’t always know what’s appropriate and I needed to make sure I wasn’t overreacting. I wasn’t sure if being offended was necessary, I don’t trust my emotions lately. My mom reaffirmed my emotions. She told me that it was okay to be upset; this woman should not have asked me these questions. My mom told me I was “should on”. She made me laugh and loosen up a little bit. Since I struggle so much with saying no, my mom helped me find the appropriate words in case it happens again. I can say, “I’m not comfortable with this conversation. Can we please stop talking?” She also told me that I could talk to a supervisor if I wanted or I could simply ask for another phlebotomist. Talking to my mom validated the emotions I had about my experience. While I decided I don’t want to do anything about it unless it happens again, my mom helped me feel more comfortable with what I could say if I decide to talk to a supervisor about it. After having a short conversation with my mom, I felt as if I could take control next time; I could decide what I’m comfortable saying. I’m no longer nervous about my next appointment. I always feel more comfortable after talking with my mom.

How Much Longer…?

Do you ever wonder if you can make it? Even if it’s just for one more day, can you handle life that much longer? It seems that no matter what you do, everything is working against you. If you’re anything like me, it’s a daily burden that you have to deal with. I’m constantly asking myself, ‘Am I okay? What if…?’ Sometimes, when I’m able to think positively, instead of asking myself, I tell myself, ‘ I’m okay. Everything is good.’ I say these things even when I know they’re not true; I guess I say them hoping to convince myself that they are true.

I constantly worry about pretty much any situation you could think of. I’ve had some people tell me, ‘Don’t worry, just relax’, and honestly, that makes me want to punch them in the face. Do they really think I would choose to live like this? Would I honestly decide to have anxiety attacks every day and almost never feel safe or secure? Nobody chooses this life; it’s not enjoyable or manageable. Living without control over your own moods is torture. These types of symptoms, the constant anxiety, not feeling safe, and questioning if life is worth it, tear apart a person’s life piece by piece. My support system is the reason I keep going, but it’s not easy. I just want to give up most days, but for some reason, I don’t, I never give up.

I compliment those individuals who are able to live with these symptoms and the other bipolar and/or PTSD symptoms and continue living their lives entirely. Individuals that can go to work, take care of their families, maintain a home, and manage their symptoms are impressive; I admire these people. That used to be me. I had a full-time job, a full-time social life, and I maintained my own home. I miss being able to do that. I’ve been on disability since 2009, and I wonder every day if I’ll ever have that type of life back. Even my therapist is unsure if that will happen; he said so himself. He says that I’m working on learning to deal with these issues better.

I hope I’m not the only one that feels this way; I feel lost enough already, I don’t want to be lost and alone. Although at the same time, I really don’t want anyone, even someone I don’t like, to experience these situations and emotions. All I can do is to stay positive, even if it’s fake, I just think positively. I pretend that things will be okay; if you think something enough, eventually it could come true.

Explaining Mental Illness to Others

I get a lot of comments from people who don’t know that I’m diagnosed with bipolar and PTSD, and also from those that know and simply don’t understand. One family friend simply doesn’t understand. If we are out together in a group and my husband walks away for a moment, I tend to get anxious. I start to look around; making sure that nothing frightening is going to happen while my husband stepped away momentarily. His friend starts to tell me, “Don’t be anxious. Don’t worry, nothing bad will happen. Just relax.” I try to explain to him a little about anxiety and mental health, but he doesn’t get it. I feel invalidated and ridiculous by his comments; I end up feeling as if my emotional reactions are foolish and irrational. I’m not sure if I should bother explaining it to him again. He hasn’t understood it the first 5 times, why would he get it the next time? Even though I often feel uncomfortable in these situations, I accept this guy as a part of my life. I have hope that it will get better over time.

Not everyone is like that individual. I was at a family gathering yesterday for someone’s birthday. It was very obvious that I wasn’t feeling well. I explained that it was due to a new medication. Everyone that I talked to was understanding; some people asked a few extremely personal questions, but not one person was rude or dismissive. There is another person in this family that also struggles with bipolar disorder; they are accepting of her, but they don’t seem to understand much about the illness. Various people asked me questions such as, “Why aren’t you feeling well? How long have you been on this medication? What is this med supposed to treat? Why would you be willing to take something so risky or difficult? Don’t you think you can just get better with time?” Some of these questions were legitimate, some were a bit odd. I answered everything I could, and then I decided to provide some educational information.

I talked about NAMI (National Alliance on Mental Illness) and how it can help those diagnosed with mental illness and their families and loved ones. I talked about the NAMI Family to Family classes that are provided all over the country. I explained that my mother and sister took these classes shortly after I was diagnosed and how helpful it was for them. I described how it helped my mom and sister understand how my brain worked, what they should and should not do depending on the episode, and even how to take care of themselves. The couple people I talked to about this seemed quite responsive and even intrigued. It was really nice to have people seriously interested in what I had to say instead of ignoring me, even when I’m just answering their questions.

In my experience, family has always been supportive and caring; both my family and my husband’s family really seem to care about me and my wellbeing. No one always expresses themselves properly, but I do know that what they do always comes from love. Of course there will be times when they say the wrong thing, but that happens to everybody. In those situations, I need to remember that they didn’t mean anything by it, and that it is okay for me to stand up for myself by saying that my feelings are hurt.

My Side of the Pole

Bipolar – Mental Health

Category: Anxiety and Panic