Clozapine (Clozaril) can be a frustrating medication to be on. You have to get blood work done every month just to be safe because the medication can have some serious side effects. I’ve never had any problems with the possible serious side effects from Clozapine, but I have had problems getting the actual prescription filled every month for the past year.
I go and get my blood work done (on time, like I’m supposed to), but the pharmacy I go to does not have it together. They always deny getting my lab results, so I end up calling the lab and having them re-send the blood work results. The pharmacy has even told me a couple of times that they weren’t there when the lab faxed over my results, which is why they don’t have them. That is complete crap. Even if my results were faxed over in the middle of the night, they should be there waiting for the pharmacy when they open.
Yesterday, I thought I found a new pharmacy. I talked to the pharmacist, and they were able to register me in the Clozapine database; however, they could not accept blood work results from the lab. So, it looks like I’m going to be staying at the same pharmacy I’ve been struggling with for the past year. I guess, I’m just going to have a sit down with the pharmacist and see if I can get everything figured out.
I have been home for five days now, and I still haven’t gone grocery shopping or done laundry. I plan on doing that stuff every day, but for some good reasons, they keep getting pushed to the next day. Yesterday, my husband and I spent the entire day with his mother getting a second opinion on her cancer. We are very grateful that we went there. The Mayo Clinic was wonderful.
Today, we’re having someone come and spray in and outdoors. I think we’re having it done 4 times a year, just to be safe. I keep finding crickets around the house, so I know it’s necessary.
I have to get my monthly Clozapine blood work done soon. I have enough meds to get me through for another 9 days. Instead of pushing myself way too hard, I will make an appointment for Monday and allow myself to catch up on everything else that I missed while I was away.
I take a lot of medications; most I take daily, and some are taken as needed. I keep very close track of my medications and when they need to be refilled. It’s a big task, but I make sure I’m on top of it all. I have a problem filling my Clozapine prescription every month. I have to do monthly blood work. The pharmacy won’t fill the Clozapine without the blood work results. Filling this prescription is an issue every single month.
Every month, the lab forgets to send the pharmacy my results. It’s always a huge hassle. Even though I filled out the paperwork, I still have to convince the lab to send my results over. I shouldn’t have to call the lab every time. At least I’ve found a way to make the phone call easier and shorter.
I refill my prescriptions about a week early (they can be filled from approximately 3 to 7 days early depending on the script). If I start early (at the 7 day mark), then it’s okay if they run into a problem. I learned this the hard way. Running out of prescriptions is not fun.
I woke up extra early today for some reason, hours earlier than I planned on waking up. Of course, it happened on a day that I can’t eat or drink anything because I’m having ECT done later this morning. I’m always thirsty in the mornings when I can’t drink. Oh well, I’ll just have to deal with it for a few hours.
I can’t do much of anything today since I can’t drive due to the anesthesia. However, tomorrow is going to be an extremely busy day. Tomorrow, I’m supposed to clean the house, bring the dog in for a bath, go to a therapy appointment, go to the bank, get my blood work done, and pick my mom up from the airport. Maybe I’ll start a little early and I’ll begin cleaning the house today. I bet that would make things easier (especially since my husband is having someone over tomorrow to play video games and they say I get in the way when I’m vacuuming.)
Last week, after my last ECT, I came home and tried to sleep I couldn’t. That’s actually happened to me twice now. Maybe if I don’t try to go to bed after today’s treatment, then perhaps I’ll fall asleep on the couch when I’m not trying to. We will just have to wait and see.
I just got back from the vet with good news; they did not need to redo the stitch that Cash pulled out last night. The vet said that the incision site looked good. And even better than that, it didn’t cost anything.
I’m back home now and have a million things to do. I’m having problems getting my Clozapine prescription filled. The pharmacy keeps saying they don’t have my blood work, even when I called the lab and had them fax it over again. I’m going to wait a couple of hours and then try calling the pharmacy again. It’s extremely frustrating.
I also have more tax stuff to do today. It’s the last thing I want to do, but I’m hoping that it will be easier if I do just a little bit at a time.
I feel like I’m being pulled in many different directions. How do I handle all of this? There’s too much going on right now. I need a vacation from myself. I’m just going to do a little bit at a time until everything is done. I wonder when that will be.
I walked into my psychiatrist’s office (let’s call him Dr. E) with my husband and my heart was pounding so hard it felt as if it was going to jump right out of my chest. My anxiety was extremely high, despite the fact that I took a Valium as prescribed and had my husband with me. It was a good thing that I wrote everything down that I wanted to say. I opened my notebook and started reading what I wrote, and he seemed to appreciate what I was saying. He let me ask all of my questions; and he answered every one of them thoroughly.
We decided that I would go back to ECT and I would only do it twice a week to start. That was the treatment that Dr. E thinks is the best approach, and he explained why, so that’s the treatment we decided to go with. I’m so happy that I’m not starting at three times a week. He said that he can give me anti-alzheimer’s medications to help with the memory loss and Toradol to help with the migraines and jaw pain. He’s also helping me work on weight loss.
It was such a successful appointment. I feel like Dr. E really listened to what my husband and I had to say. He approached every one of our concerns and answered everything we asked. Now, I just have to go get a physical from my PCP, get an EKG and blood work..
Starting at the beginning this month, I finally got to do my Clozapine blood work every other week instead of once a week. I can’t believe I made it through 6 months of weekly blood work. There are many worse things that could happen, but mostly, it was just such a pain in the ass. Getting the medication every week was harder than the actual blood work. The lab has to send the pharmacy my blood work. The pharmacist has to receive approval from the Clozapine National Registry. Now that I’ve been doing this for 6 months, I only have to deal with that hassle every other week, which will make my life a lot easier. Traveling will also be a lot easier. I planned my vacation in December around my blood work schedule, so I don’t have to do any blood work or pick up a prescription while I’m away. After doing blood work every other week for the next 6 months, I will finally get to do monthly blood work, which will happen in April. That’s something to look forward to.
Since the beginning of April, I have had to get my blood work done every week due to the Clozapine that I take. However, that won’t last much longer. Starting in October, which will be after completing six months of weekly blood work, I finally get to switch to doing my blood work every other week for the following six months. After that, I get to do my blood work on a monthly basis.
This will make my life much easier going forward. I know I should be excited about this, it is an exciting thing, but I just don’t feel excited. Probably because I’ve been numb to most things lately.
Every week I get my blood drawn to check for any possible side effects from taking Clozapine. The medication can cause many serious side effects, and the blood tests are there to catch the issues before they get too serious. My blood work results are finally all within normal limits. At one point, they got so bad that my pharmacist said they may not be able to continue filling my Clozapine prescriptions. We still have to keep an eye out for any issues since I’m increasing the medication slowly. I’m still doing weekly blood work, but I’m almost half way through it. At six months, I get to switch to every other week. At least it’s something to look forward to.
It’s also been getting easier to get my Clozapine prescriptions filled. I haven’t had to call the pharmacy and see if they have my blood work results, which is what I have had to do up until the last two weeks. I haven’t had to call the lab to have them fax over the results again either. The pharmacist is also no longer questioning my blood work because my results are finally normal. I’m glad this is finally getting easier, it’s about time. All I have to do now is hand the pharmacy my prescription, and 30 minutes later my medication is ready to be picked up.
This week has been full of doctor/medical appointments. I had my blood work done on Monday, talk therapy was yesterday, today was my gyn to treat my interstitial cystitis. I feel like all I do is go from one doctor to the next, over and over again. My blood work went well this week. I saw the woman who normally asks too many personal questions; she’s quite inappropriate. I was told that I should report her, but I didn’t. This last appointment, when I saw her, she only asked how I was doing. She didn’t try to tell me how I should treat and manage my bipolar disorder. I get extremely nervous when I see her, but now I know that I can see her without having her get inappropriate.
My therapy appointment went well. I actually opened up to him a little more than I expected. I told him some things that I’ve been thinking about that I haven’t told anyone else. It felt good to finally get some of the ideas that are running around in my head off my chest. It would have been better if talking about it made it go away. Instead, it just brought the negative thinking to the front of my mind. I keep going over and over it in my mind. I wonder when it will stop. At least I have someone I feel comfortable talking to about it. I’m not comfortable talking about it here yet, but maybe I will one day soon.
My gyn treats my interstitial cystitis, also called painful bladder disorder, by doing an installation. They are very uncomfortable, only sometimes do I yell or swear during the treatment. I’ve been doing the treatments every week for a couple of months now. Today, I found out that I finally get to do the treatments ever two weeks. I’m ecstatic about that.
I wish I could have a week without doctor appointments. I suppose the next time that will happen will be when I go to Cape Cod, although I’ll still have to get my blood drawn in order to get my Clozapine prescription. One day, I believe I will have a doctor-free week. It may not be today or even this month, but it will happen at some point.