IV Ketamine

I started IV Ketamine this past November. I’m doing the treatment every week (for now). I’m hoping to be able to change that to once every three weeks fairly soon. I was resistant to trying IV Ketamine for a while. Then, my depression got extremely bad, and none of my meds or treatments were helping, so I finally decided to give IV Ketamine a try. It works so well, I wish I tried it a while ago.

The IV Ketamine is working very well for me. It’s the reason that I can finally stop the ECT treatments. I’ve actually already started to wean off of ECT, thank goodness.

Another ECT Treatment

I had an ECT treatment just a few hours ago. The treatment went well. I got home and rested on the couch. I keep falling asleep and waking up. It’s somewhat annoying. I don’t mind that I’m falling asleep, I just wish I could stay asleep and actually get some rest. Sometimes, after ECT, I fall asleep for hours, and some other times I can’t fall asleep at all. Today, I’m only getting about 30 minutes of rest at a time, and my body needs more than that. In fact, I’ve fallen asleep about 3 or 4 times while writing this. At this point, I’m going to go lay down and try to get some more rest. Hopefully, if I get some rest, I’ll be able to stay awake and watch a movie.

Restarting ECT

I restart ECT again on Monday. It’s been over six months since my last treatment. I’ve been waiting for about a month to restart ECT, and now that it’s about to happen, I’m not sure if I’m ready. At least I’ve done it before, so it’s not as nerve-racking. My anxiety is so high right now. What do I do if ECT doesn’t work? I know there are other options, but there’s not many left. I’m just nervous and scared. It will work. I’m trying to stay positive.

Apparently, ECT is twice as effective when being used with Clozapine, and even more effective when being used with Clozapine and Lithium. I’m take both Clozapine and Lithium (and many other meds), so there’s a really good chance that this will work for me. I’m trying to stay positive. It’s not easy, but I’m working at it.

They also changed how some of it goes. They now allow one person to go back with you, stay with you until you go under, and then they can wait for you in recovery. That makes it a lot easier for me. My husband already said he will be doing that for me on Monday.

Treatment Resistant Bipolar

My psychiatrist has categorized me as treatment resistant. Basically, that means that I don’t respond to at least two standard treatments. It means I’m non-responsive to the normal treatments that usually work for others. There are a lot of medications that I’ve tried that don’t work for me. I also tried ECT, which worked for a while, but after quite some time it became too much for me to handle.

No matter what, I keep trying, even if I’m not getting positive results. If I don’t try, then there’s no way to find a solution. By trying to work at it, there’s a possibility, no matter how big or small, that something good could come out of it. At least I’m only considered treatment resistant, and not treatment intolerant.

Medication Changes Me: Good or Bad?

I have been taking psych meds since I was 14 years old. Ever since I started taking medication, I have always been on a lot of meds. I currently take eight different psych meds, plus other medication for my physical health. I’ve spent more than half my life on medications, and I’ll probably spend the rest of my life taking medications.

Sometimes the meds help and sometimes they make things worse. Medications always have side effects that need to be treated. It’s a pain in the butt. Meds can cause both physical and mental changes. They tend to change the way I act, which is helpful for bipolar treatment, but sometimes it goes too far. I feel like the medications change who I am to begin with. The mental changes that take place are hard to deal with. Right now, I don’t like to go out in public unless I have to and I don’t enjoy things I used to care about. This sounds like depression, but it’s been this way even through manic episodes. Maybe it’s part of the PTSD. I can never tell what’s what anymore.

Will I ever know who I really am? Am I just going to continue to change depending on my medications? How much change is good, and how much is too much? These are questions I ask myself all the time. I was a different person when I was younger; I was social. Now, I’m nothing like that. I know a lot of it is because of my bipolar disorder, but I wonder if some of it is because of the medication as well. Will I ever really know? I guess I just wonder what’s really me and what’s because of the medicine?

The First Downfall – My Life: Part 3

Just before I turned 17, I met a guy and was immediately attracted to him. Jared had a personality that was appealing to many. He made friends with people easily, but he only let them see the side of his personality that he wanted them to see. For the first couple months of our relationship, he only let me see positive traits. Once we moved in together, everything changed. He became physically and emotionally abusive. He would tell me when I could see my friends. I had to have dinner on the table when he got home, or else. We did a lot of drugs together. I fell for every trick he played and didn’t stand up for myself at all. He had me convinced that I was lucky to have him; he made me believe that no one else would want me. The worst part of it all is that he broke up with me. He said I wasn’t happy anymore. I remember telling him he would regret it. I was devastated. I don’t know why I was so hung up on a guy that treated me like crap, but I was.

At a party, I met a guy who was so sweet. Chris was the exact opposite of Jared, except for the drug use. I started smoking crack when I met Chris. Jared tried to get back together with me, but I finally stood up for myself and told him no. Jared started stalking me at that point, so I became terrified for my safety even more than I already was. Chris and I dated for several months. He kept talking about getting sober, but I wasn’t ready for that. I was completely addicted to crack that it came before everything. I was even with Chris getting high instead of being at the hospital when my dad died. That is one of the biggest regrets I have. Chris ended up getting killed only a few months after we met.

The loss of my father was exceedingly difficult, even though I knew for years that it was coming. He had been sick for many years with cancer and kidney failure. He ended up dying from an infection on October 10th, 2003. He was in the ICU for a while before his death. I miss my father and think of him every day. Losing him was like losing a part of myself. I wish I had been there to support my family, but I was too far into my addiction. I wish he could have seen me get sober.

My drug use was insane, I was almost always drunk or high on something. All of this made my mental health even worse. I was dealing with rapid cycling; I was either manic or depressed at all times. I didn’t want to spend much time with my friends, the few that I had left. All I wanted to do was die. This was probably my lowest point in life. I finally decided I wanted to quit drinking and using, but I couldn’t do it. I wished I was dead every day. I had lost so much in life, but the worst thing I lost was my self-respect.

One day, I had finally had enough. I went to my mom and told her I couldn’t take it anymore. I told her I needed to go back into the hospital. She told me that a behavioral health hospital would not fix things. I needed more than that; I needed to get sober. Apparently, she had already been looking at places to send me. She showed me some of the places she found. I was interested in this one place in Arizona; it was a year-long in-patient treatment center. It treated drug and alcohol abuse as well as mental health. I actually became excited; I finally felt a glimmer of hope. I was scared, but so enthused about the possibility of feeling better, that it actually lessened the fear. Most people don’t go to rehab willingly. I went not only willingly, but eagerly. I was also terrified; the thought of something new scared me, but the depression was so horrible that I felt my only other option was death.

After ECT

ECT went well today. I’ve done it more than 30 times; it’s become normal for me. When I woke up from anesthesia, I felt fine, no pain. By the time I got home, the pain set it, so I had to take a Percocet. I have a pounding headache and my jaw hurts terribly. I’m just waiting for the pain meds to kick in. I wish I could go to sleep, but for some reason, I can’t, I’m just not tired. If I could sleep, it would probably make me feel even a little bit better.

My memory is back to being crappy. I can’t remember where my husband is, although I know I knew his plans before the ECT treatment today. I looked in my calendar and saw that I recently went to visit my family in Connecticut, but I don’t remember any of it. I can’t remember my wedding, that one really bothers me. I went through my wedding album; it brought back some of the memories. That was helpful, but still not enough. I’ll probably watch my wedding video later today. I hate the memory loss. Every time it finally starts to improve, it’s time for another treatment that causes memory loss again. It’s a vicious cycle.

I don’t want to continue (I think I’ve mentioned that many times), but I just do what I’m told to do. One of these days, I’m going to stop being so compliant. I know that my being compliant regarding my psychiatric treatment is extremely helpful, but it’s also exhausting. I’m afraid that one day I’m just going to do what I want to do instead of what I’m told to do. Following my bipolar treatments is overwhelming. I’m going to rest today, or I’m going to clean the house and go play cards with my family. I know I should rest, but I doubt that will happen.

Bipolar and Addiction: There Is Hope

There are various statistics, but it seems that more than 50% of people diagnosed with bipolar disorder also struggle with addiction in some form, such as drugs or alcohol. When a person is diagnosed with bipolar disorder or another mood disorder, and also has a problem with drugs and/or alcohol, it is called dual diagnosis. I was diagnosed with dual diagnosis when I was 14 years old. My drug of choice was crack, but I would do whatever I could find; I also had a problem with alcohol. If anyone is thinking about a rehab, it’s important to research each treatment center you are looking at for yourself or your loved ones to make sure it can properly treat both your mental health disorder and your drug/alcohol addiction.

Dual diagnosis can make it more difficult to treat either disorder, but it’s not impossible. I’ve heard some people say that drugs and alcohol can bring on mental health episodes; and mental health episodes often lead individuals towards drug/alcohol use; both are true based on my own experience.

I know it’s possible to recover from dual diagnosis. I am 11 years sober, which is something I never thought I could say. On April 29, 2004, I went willingly to a yearlong rehab that also helped treat my bipolar disorder, and I have been sober ever since. I even worked there for 9 months after I completed the program. There is always hope, recovery from addiction is always possible. There is no single way to recover from addiction, every person is different. I got sober through the help of a 12 step program. What worked for me may not work for another person.

I feel the same way about treating bipolar disorder. I have tried so many different medications but I have not found the right combination of meds that works for this episode. Even though the meds may have previously worked, or are currently working for many others, it doesn’t mean they will definitely work for me. It’s basically a trial and error situation when treating mental health. That is really hard for me to accept, especially since I’ve been through so many meds. I want a fix, I want to feel better again; I’m not sure how much more patience I have. However, if I could recover from a severe drug and alcohol addiction at 19 years old, then I can hold on to hope for bipolar ‘remission’. I’ve had times in my life when I was not manic, depressed, hypomanic, or mixed. If it’s happened before, it can happen again. Anything is possible.

I Choose a Clozaril Rechallenge

Two weeks ago today, I say my psychiatrist, and we discussed my options for the next treatment method that we would use. This was not the first time we had this discussion. The topic began in November 2015. I kept putting off the actual decision making. My options began as IV Ketamine, MAOIs, or a Clozaril rechallenge. First, I wanted to do some research and then I wanted to discuss it with my mother and husband. Then we decided to do genetic testing and I wanted to wait for the results of that test. The genetic testing showed that I was unable to process folic acid, so I started Deplin, a prescription for L-methylfolate, which allows me to process folic acid. Deplin is known to increase the benefits received from other psychiatric medications. It takes 4 – 6 weeks to see the full effects of Deplin, so I wanted to wait to see how effective it would be for me. Today is the end of the sixth week. While I can see some improvements, such as my productivity, other aspects have had no improvement, like my auditory hallucinations, suicidal ideations, paranoia, and worthlessness to name a few.

I decided that I do need to try another form of treatment because what I’m currently using is not working well enough. I chose to do a Clozaril rechallenge. I am aware of the risks, but I feel comfortable because of the safety measures in place such as the weekly blood work. The first time I tried Clozaril, I lasted approximately 2 weeks before I got a fever and had to stop. I will pay close attention to any possible symptoms including but not limited to dizziness, sedation, blurred vision, increased sweating, nausea, flu-like symptoms, and a fever. I will contact my doctor daily to let him know how I’m doing, especially as I slowly increase my dosage. I am hopeful for this medication to help me.

If Clozaril does not work for me again, then I will have to try IV Ketamine since I am personally against taking MAOIs. I am prepared for just about any situation. I know that I need to have my blood drawn before I begin the medication. Every week I will get blood work done; it will be sent to my psychiatrist and pharmacy. I cannot get the prescription without having blood work done. This will be another adventure; I’m interested to see how it works out.

The Importance of Support Groups

There are many different types of treatment for any mental health disorder including but not limited to various types of medication, talk therapy, family education, rehabilitation, and support groups. I have especially found support groups to be helpful in dealing with and managing my bipolar disorder and PTSD. There are various types of support groups; some are for generalized mental health, while others specified for certain disorders.

I was very reluctant to go to a support group my first time because I was afraid. One of my PTSD symptoms causes me to be terrified of anything, especially anyone, that I don’t know. It’s a challenge for me to simply run errands; the thought of sitting next to another person and talking about my life seemed to be impossible. When I was in Connecticut, I researched support groups at my local hospital and found a weekly group called ‘Depression and Bipolar Support Group’. In the beginning, my mother came with me, she has always been extremely supportive of me in every way. It took many weeks to get comfortable with the others at the group, but soon, these individuals became close friends that I still talk to years later.

Going to a support group where the other people there have the same illnesses as you do is a comforting feature. I moved back to Arizona in 2009 causing me to leave my Connecticut support group and the friends I have there. Again, I was scared to start going to a new support group. Meeting new people and the intimacy of discussing what’s going on in your life and how you’re feeling is nerve-racking for me. My husband came with me in the beginning for this new group, ‘Taking Control’, which is also for bipolar and depression. Over time, the others in this group became my close friends who I still hang out with.

Each support group that I have been a part of has become a huge part of my life. The groups gave me a place to go and talk about my mental health issues where other people actually understand and relate to me. Sadly, my last support group was discontinued, but luckily I still talk to and see some other group members. I have found a new support group for bipolar depression called ‘Bipolar Bears’ (I love the name), but again, I’m extremely frightened to go. This is a new group for me, at a hospital that I’ve never been to, in a part of town that I don’t know. I’ve talked to a close friend from my last support group, and we have talked about going together; we will support each other, while we go to a support group. Now, I just have to get myself to actually do it.

Mental health support groups have helped me get through many difficult times and I suggest them to anyone and everyone who struggles with mental health. Being able to have people relate to the things we go through is a very comforting feeling. Meeting more people that help support you through your life is a blessing. Maybe this post will help me actually get to this new support group. I suppose I’ll find out soon enough.

My Side of the Pole

Bipolar – Mental Health

Tag: Treatment