A Very Successful Psych Appointment

I walked into my psychiatrist’s office (let’s call him Dr. E) with my husband and my heart was pounding so hard it felt as if it was going to jump right out of my chest. My anxiety was extremely high, despite the fact that I took a Valium as prescribed and had my husband with me. It was a good thing that I wrote everything down that I wanted to say. I opened my notebook and started reading what I wrote, and he seemed to appreciate what I was saying. He let me ask all of my questions; and he answered every one of them thoroughly.

We decided that I would go back to ECT and I would only do it twice a week to start. That was the treatment that Dr. E thinks is the best approach, and he explained why, so that’s the treatment we decided to go with. I’m so happy that I’m not starting at three times a week. He said that he can give me anti-alzheimer’s medications to help with the memory loss and Toradol to help with the migraines and jaw pain. He’s also helping me work on weight loss.

It was such a successful appointment. I feel like Dr. E really listened to what my husband and I had to say. He approached every one of our concerns and answered everything we asked. Now, I just have to go get a physical from my PCP, get an EKG and blood work..

Psych Appointment

Today is my appointment with my psychiatrist. I’ve been looking forward to this but I’ve also been extremely nervous about it. A couple of weeks ago, I emailed my psychiatrist telling him that I wanted to get off of the Clozapine because of the side effects such as severe weight gain, and that I wanted to try IV Ketamine. He responded to me and said that this is something we need to discuss in person and that he didn’t want me to get off the Clozapine. My psychiatrist suggested that I bring my husband with me, so I am.

I was upset when I first received the email, but with the help of my mom and my aunt, I realized that he is looking out for my best interests. I’m going to this appointment with an open mind. I wrote down everything I want to say to him and all of the questions I have. I have decided to do whatever it is that he thinks is best. I trust him and I know that he is looking out for me. I have a feeling I will be going back to ECT, but I’m not sure yet.

I’ve had a lot of anxiety lately and I think that comes from not knowing what the next step is. I have a feeling that my anxiety will reduce after this appointment because I will have a plan in place. I will let you all know how the appointment goes.

Ultimatum From My Doctor

Today has been unusually rough. I reached out to my psychiatrist because I wanted to change my meds. Specifically, I want to get off of the Clozapine and possibly try IV Ketamine. However, his response was not as I hoped it to be. Basically, it was an ultimatum. Either I go back on ECT or possibly try IV Ketamine, but it would be in addition to Clozapine. If I go off of Clozapine, he will no longer be my psychiatrist; he would only continue to see me for 30 days or until I find a new doctor.

I’m going to come up with a list of questions to ask him at our next appointment on January 11th. My husband will be coming with me. I don’t know what I’m going to do.

I’m off to go see a Coyotes game; hopefully that will make me feel a little better.

Forgetfulness

I tend to forget things. It’s usually trivial stuff. For example, I put detergent in the dishwasher last night, but I forgot to start it. I keep forgetting to pick up my medication at the pharmacy.I forgot to return a DVD to someone. But it’s not just short-term memory that’s a problem. I also forgot a lot about my life in general. The reason I have memories of my wedding is because I watched a video of it (it was a fantastic wedding). I don’t remember my honeymoon. I have very few memories of my teenage years and my twenties. I’m constantly asking my mom to clarify things for me.

Is my forgetfulness from ECT that I stopped in May? I know that used to be the cause, but is it still? My memory has improved, but it’s not what it used to be. Will my memory ever get back to what it used to be? This is why I don’t want to try ECT again, even though my psychiatrist keeps suggesting it. I’m afraid I’ll forget everything.

Never Give Up

I keep trying, over and over again. If it doesn’t work out the first time, I try again. Sometimes it may take me a while, but it’s important not to give up. This can extend to anything in life. Just keep putting one foot in front of the other.

Right now, I’m just trying to get my medications right. In the past 6 months, I went on Clozapine slowly, I went off of Mirapex and then back on Mirapex, I went off of Deplin, and I also stopped doing ECT treatments. I’ve done almost everything my psychiatrist suggested. The only thing I haven’t tried is IV Ketamine; I’m leaving that as an absolute last resort. My emotional state goes up and down, but it hasn’t been healthy or steady for a very long time, probably about 7 or 8 years.

No matter how bad it gets, I never give up. I may not be happy to do certain treatments, but I try. I give each treatment enough time to work before deciding if it’s right for me or not. This time, I’m going to give the Mirapex another couple of weeks before deciding if I need to try something else, which would be IV Ketamine. The most important thing is that I don’t give up before the miracle happens.

Treatment Resistant Bipolar

My psychiatrist has categorized me as treatment resistant. Basically, that means that I don’t respond to at least two standard treatments. It means I’m non-responsive to the normal treatments that usually work for others. There are a lot of medications that I’ve tried that don’t work for me. I also tried ECT, which worked for a while, but after quite some time it became too much for me to handle.

No matter what, I keep trying, even if I’m not getting positive results. If I don’t try, then there’s no way to find a solution. By trying to work at it, there’s a possibility, no matter how big or small, that something good could come out of it. At least I’m only considered treatment resistant, and not treatment intolerant.

The Importance of Memories

I didn’t realize how important memories are until I lost them. I used to be able to remember things very easily, and now I struggle to remember a lot of things. My memory has improved over the last few months, since I stopped doing ECTs, but it’s far from what it used to be. I have a hard time with both short-term and long-term memory.

One day, many months ago, I woke up and didn’t realize that my grandmother had passed away years ago. I forget family memories often, and I feel that those are the most important. I ask people questions all the time, forgetting that I had just recently asked that same question. I have conversations with people over and over, because I forget that I just had that same conversation.

The forgetting is hard on me. I feel as if I annoy people because I repeat myself often. I try to improve my memory, but that’s not an easy thing to do. I feel incapable, less than, and pathetic. My memory has improved a little since I stopped ECT, but will it continue to improve? Am I ever going to get back to what my memory used to be like?

No More ECT

Tomorrow would have been my next ECT treatment. Instead, I talked to my doctor a week or two ago and canceled the appointment. I’ve been wanting to stop these treatments for a while, and I finally did. Now, I’m nervous. I’ve been doing this for 15 months. Even though it’s hard on my mind and my body, it has become normal. All of the “what if’s” are going through my mind. What if ECT actually was helping? What if I slip into a huge manic episode? What if my depression gets worse? What if I have to re-start it, will I be willing to do that?

If I have to re-start ECT, then I don’t get to pick up where I left off. I would have to re-start by going three times a week for a month. Then once a week for four weeks, then every other week for eight sessions, and then finally back to once a month. I can’t do that again. I think I would rather try the IV Ketamine, and that terrifies me. Treatment resistant bipolar depression sucks. I wish I could take a vacation from it. Sometimes I feel like giving up. I know I’m not going to, but I want to. I wish I could be the person that didn’t always do the right thing.

IV Ketamine Scares Me

The other day I made the decision to stop my ECT treatments and to increase by Clozapine dosage. I’m currently at 200mg and will be increasing my dose by 25mg each week until I reach 400mg. This was one of the options my psychiatrist gave me. Another option was to go back to doing ECT three times a week, but I’m not willing to do that at this point. The third option my psychiatrist gave me was to do IV Ketamine. He has been offering this as an option for many months now, but it’s not something I want to do.

IV Ketamine scares me for a couple of reasons. I used to get high off of Ketamine when I was using. That was a long time ago, and I know that abusing Ketamine and using IV Ketamine are two completely different things; the side effects of IV Ketamine are nothing like the effects of getting high off of it. My biggest fear of trying IV Ketamine is the possibility of dissociation. When I would use Ketamine to get high, I would take so much that I would slip into what’s called a ‘k-hole’, which is pretty much a dissociative state. I couldn’t move or speak, but I could still feel everything that was going on around me. The possibility of dissociating scares me, it triggers my PTSD. I always need to be able to protect myself, and dissociation would take that away from me. Plus, the treatments are especially expensive.

The use of IV Ketamine is highly effective, and it works very quickly. It is known to show improvements by the end of the infusion. Maybe my reasons for not trying it are ridiculous, but they are my reasons. I’m not saying that I’ll never try IV Ketamine; I would just prefer to leave it as an absolute last resort.

I Canceled ECT

Today, I called and left a message for the ECT department. I made the decision last week to stop doing ECT and I even talked to my psychiatrist about it; all I had to do to follow through on that decision was to cancel my appointment. I’m really happy that I’m stopping these treatments because it is way too hard on my mind and my body. However, I’m extremely nervous that I could slip into an even worse depression or manic episode. It doesn’t seem as if the ECT treatments have been helping me for quite a while now. My concern is what happens if it was helping and I just didn’t realize it. If I go too long without these treatments, then I would have to start back three times a week, and I can’t handle that.

I’m taking a huge risk by stopping the treatments, but I also have to listen to my body. My husband agrees that the ECT treatments aren’t helping me. He agrees with my decision to stop the treatments. It’s nice to have someone who sees me every day agree with my decision. It makes me feel a little more confident in my choice to stop. I’m curious how long it will take for some of the side effects, such as memory loss, to improve?

Are there other people who have gone through ECT treatments on a regular basis for a while and then chose to stop? If so, what happened when you stopped? How long did it take for your side effects to improve?

My Side of the Pole

Bipolar – Mental Health

Tag: ECT