I’m exhausted. I’m overwhelmed. I keep feeling like I won’t be able to make it through the day, but I continue to push myself. I’m just trying to get through each day, one hour at a time. Every moment that I make it through is a huge accomplishment.
I suppose that since my husband is struggling with his mother’s cancer diagnosis and he’s worried about his brother, I feel like I need to be stronger. I know that if I were to say this to my husband, he would disagree. I know he only wants what’s best for me, but I can’t help but feel this way.
I pretend to be stronger than I really am, but pretending can only take me so far. However, with every passing day, I feel as if I’m getting worse. Every day for the past month, at least, I’ve thought about going to a psych unit; however, I don’t end up going. I know that I’m not going to do anything, but the thoughts keep running through my mind. I wish I could take a break from my mind. If only that were possible.
For more than a week now, I have had allergies off and on that are extremely annoying. I don’t remember having allergies when I was growing up, but then again, I don’t remember much of anything anymore. My symptoms tend to come and go. I’ve been really tired too. I took a two hour nap this evening, and I’m still tired. The allergies on top of the depression is making life even more difficult. I worry about taking OTC allergy meds, I’m not sure if they will react with the meds I’m already on.
Speaking of medication, I have been tapering off of a couple of my meds. I’m already off the Inositol. I finish taking the Mirapex Monday night, and I finish taking the Donepezil Friday night. I’m hoping that I don’t have any bad reactions by coming off these meds.
Memory loss is a side effect I’ve been experiencing from ECT. I have been on 2 medications to help with memory loss for several months now. When I saw my psychiatrist, I told him that my memory is not improving or stabilizing; at least not from what I can remember. He told me that for his patients that have been on these medications successfully definitely noticed a change. If I wasn’t sure if the meds were helping or not, then they most likely weren’t helpful. So, I’m tapering off of Donepezil and I should be off it completely in under two weeks.
I wonder if there’s anything that can help my memory. If the medications I’ve been trying aren’t helping, what’s the next step? I already write everything down and even record certain things when need be. However, ECT continues to screw with my memory. It appears as if my memory will just continue getting worse because I’m doing ECT once every two weeks.
I wish I could stop ECT. It feels as if my mind and body can’t take much more of it. However, I know that if I stop now, with nothing to replace it, then I’ll slip further into my depression. So instead, I continue to go along with what my psychiatrist wants me to do, as long as he explains the reasons why he wants me to do each specific treatment.
Clozapine (Clozaril) can be a frustrating medication to be on. You have to get blood work done every month just to be safe because the medication can have some serious side effects. I’ve never had any problems with the possible serious side effects from Clozapine, but I have had problems getting the actual prescription filled every month for the past year.
I go and get my blood work done (on time, like I’m supposed to), but the pharmacy I go to does not have it together. They always deny getting my lab results, so I end up calling the lab and having them re-send the blood work results. The pharmacy has even told me a couple of times that they weren’t there when the lab faxed over my results, which is why they don’t have them. That is complete crap. Even if my results were faxed over in the middle of the night, they should be there waiting for the pharmacy when they open.
Yesterday, I thought I found a new pharmacy. I talked to the pharmacist, and they were able to register me in the Clozapine database; however, they could not accept blood work results from the lab. So, it looks like I’m going to be staying at the same pharmacy I’ve been struggling with for the past year. I guess, I’m just going to have a sit down with the pharmacist and see if I can get everything figured out.
This is the first time I’ve written in over 5 weeks. My depression is continuing to control my life. I’m at the point in my depression where I don’t care about much of anything. I could stare at the wall most of the day and not care. My family has been extremely supportive and caring. Honestly, I wouldn’t have gotten through the past many weeks, as well as other times, without them. My mom, aunt, and husband have been wonderful and are always there for me to lean on.
I saw my psychiatrist today and we agreed to taper off a couple of my medications. That was my goal for that appointment. However, no matter how good the changes could be, they also bring up the unknown, which is scary. I’m nervous as to what the med changes could do to me. I know that mania is a possible side effect, but I’m willing to try going off of meds to make sure that I’m not on anything unnecessary.
I’m going to do my best to keep blogging on a regular basis. I know that it’s a great way for me to express myself, plus I always feel good afterwards. I also find other people’s blogs useful.
I wonder how much my medications are working. I take 11 meds plus I do ECT once every two weeks. This does not include the medication I take for my physical health. I take so many meds, it’s hard to tell which ones are working and which ones need an adjustment. I feel like something needs to be adjusted, I just don’t know what. My medications are as follows:
Clozapine 100mg – 4 pills at bedtime
Cogentin 1mg – ½ pill in the am, 1 pill in the pm
Cytomel 50 mcg – 1 ½ pills in the am
Donepezil 10mg – 1 pill at bedtime
Inositol 500mg – 1 pill daily
Lithium ER 450mg – 1 pill 2 times a day
L-Methylfolate 15mg – 1 pill in the am
Memantine 10mg – 1 pill 2 times a day
Metformin 500mg – 1 pill in the am, 2 pills at bedtime
Mirapex 1mg – 1 pill 3 times a day
Tegretol ER 200mg – 1 pill in the am, 2 pills in the pm
I have so much to do lately, but it’s extremely hard to get any of it done. The main reason for the difficulty is because I’m having a hard time remembering just about anything. The ECT is causing a lot of memory loss, despite the fact that I’m on two different medications (Memantine and Donepezil) to help my memory. I can’t remember what I’m supposed to be doing, what I have done, or even what I do or don’t enjoy doing.
I miss my memory. You don’t always realize how important something is, until you don’t have it anymore. I wish I had the ability to respond to people accurately. I wish I had the ability to know what I truly wanted in life. I wonder if there is anything that will help my memory come back. Will these medications ever kick in?
I walked into my psychiatrist’s office (let’s call him Dr. E) with my husband and my heart was pounding so hard it felt as if it was going to jump right out of my chest. My anxiety was extremely high, despite the fact that I took a Valium as prescribed and had my husband with me. It was a good thing that I wrote everything down that I wanted to say. I opened my notebook and started reading what I wrote, and he seemed to appreciate what I was saying. He let me ask all of my questions; and he answered every one of them thoroughly.
We decided that I would go back to ECT and I would only do it twice a week to start. That was the treatment that Dr. E thinks is the best approach, and he explained why, so that’s the treatment we decided to go with. I’m so happy that I’m not starting at three times a week. He said that he can give me anti-alzheimer’s medications to help with the memory loss and Toradol to help with the migraines and jaw pain. He’s also helping me work on weight loss.
It was such a successful appointment. I feel like Dr. E really listened to what my husband and I had to say. He approached every one of our concerns and answered everything we asked. Now, I just have to go get a physical from my PCP, get an EKG and blood work..
Today is my appointment with my psychiatrist. I’ve been looking forward to this but I’ve also been extremely nervous about it. A couple of weeks ago, I emailed my psychiatrist telling him that I wanted to get off of the Clozapine because of the side effects such as severe weight gain, and that I wanted to try IV Ketamine. He responded to me and said that this is something we need to discuss in person and that he didn’t want me to get off the Clozapine. My psychiatrist suggested that I bring my husband with me, so I am.
I was upset when I first received the email, but with the help of my mom and my aunt, I realized that he is looking out for my best interests. I’m going to this appointment with an open mind. I wrote down everything I want to say to him and all of the questions I have. I have decided to do whatever it is that he thinks is best. I trust him and I know that he is looking out for me. I have a feeling I will be going back to ECT, but I’m not sure yet.
I’ve had a lot of anxiety lately and I think that comes from not knowing what the next step is. I have a feeling that my anxiety will reduce after this appointment because I will have a plan in place. I will let you all know how the appointment goes.
Yesterday went well. I got everything done that I wanted to and I was able to visit with my friend. It really helps to be able to talk to someone who completely understands what I deal with on a daily basis. I slept fairly well again last night. I only one up once in the middle of the night and I was able to fall back asleep in about 30 minutes.
I’m preparing for my appointment with my psychiatrist that I have on Wednesday. I’ve written down all my questions for him. During my appointment I plan to stay calm and listen to what he has to say. I know he has my best interests in mind. I have a feeling I will be going back on ECT. I’m not excited about that, but I am open to it if he thinks that it will help me. Treatments and medications usually work for me for the first year or so, but then they stop working. It’s a pattern I’ve seen in lots of the treatments/meds that I try. That’s another thing that I plan on asking my doctor about.