I’m exhausted. I’m overwhelmed. I keep feeling like I won’t be able to make it through the day, but I continue to push myself. I’m just trying to get through each day, one hour at a time. Every moment that I make it through is a huge accomplishment.
I suppose that since my husband is struggling with his mother’s cancer diagnosis and he’s worried about his brother, I feel like I need to be stronger. I know that if I were to say this to my husband, he would disagree. I know he only wants what’s best for me, but I can’t help but feel this way.
I pretend to be stronger than I really am, but pretending can only take me so far. However, with every passing day, I feel as if I’m getting worse. Every day for the past month, at least, I’ve thought about going to a psych unit; however, I don’t end up going. I know that I’m not going to do anything, but the thoughts keep running through my mind. I wish I could take a break from my mind. If only that were possible.
Clozapine (Clozaril) can be a frustrating medication to be on. You have to get blood work done every month just to be safe because the medication can have some serious side effects. I’ve never had any problems with the possible serious side effects from Clozapine, but I have had problems getting the actual prescription filled every month for the past year.
I go and get my blood work done (on time, like I’m supposed to), but the pharmacy I go to does not have it together. They always deny getting my lab results, so I end up calling the lab and having them re-send the blood work results. The pharmacy has even told me a couple of times that they weren’t there when the lab faxed over my results, which is why they don’t have them. That is complete crap. Even if my results were faxed over in the middle of the night, they should be there waiting for the pharmacy when they open.
Yesterday, I thought I found a new pharmacy. I talked to the pharmacist, and they were able to register me in the Clozapine database; however, they could not accept blood work results from the lab. So, it looks like I’m going to be staying at the same pharmacy I’ve been struggling with for the past year. I guess, I’m just going to have a sit down with the pharmacist and see if I can get everything figured out.
This is the first time I’ve written in over 5 weeks. My depression is continuing to control my life. I’m at the point in my depression where I don’t care about much of anything. I could stare at the wall most of the day and not care. My family has been extremely supportive and caring. Honestly, I wouldn’t have gotten through the past many weeks, as well as other times, without them. My mom, aunt, and husband have been wonderful and are always there for me to lean on.
I saw my psychiatrist today and we agreed to taper off a couple of my medications. That was my goal for that appointment. However, no matter how good the changes could be, they also bring up the unknown, which is scary. I’m nervous as to what the med changes could do to me. I know that mania is a possible side effect, but I’m willing to try going off of meds to make sure that I’m not on anything unnecessary.
I’m going to do my best to keep blogging on a regular basis. I know that it’s a great way for me to express myself, plus I always feel good afterwards. I also find other people’s blogs useful.
Today and yesterday have been extremely difficult. Yesterday, I went with my mother-in-law to her doctor’s to get the biopsy results. She finally got a definitive diagnosis yesterday. It’s stage 4 pancreatic cancer. Now, she has to choose what type of chemo she will be doing. I’m extremely impressed by her acceptance as she goes through this.
Naturally, my husband is having a hard time with this. I wish I could do something to make it better, but I can’t. I know if there is anything I can do to help my husband, that he will tell me. That’s one of the great things about him. I know he will always be honest and upfront with me.
I’ve been through something similar. When I was young, my dad was diagnosed with cancer. He died when I was 18. I know how horrible it is to lose a parent, but I couldn’t imagine losing my mom. I’m trying to be supportive to my mother-in-law and my husband, but it’s harder than I expected. Everything that she goes through brings up memories if my father.
I wish I could leave; just get up and walk away from it all. However, even if I could, I wouldn’t. I want to, but that doesn’t mean I’m going to. I don’t want to deal with all of this, but I will. Instead of walking away, I’m going to be as supportive as possible. When I need to, I can vent by writing for my blog or by calling my mom (she’s very helpful).
I have been home for five days now, and I still haven’t gone grocery shopping or done laundry. I plan on doing that stuff every day, but for some good reasons, they keep getting pushed to the next day. Yesterday, my husband and I spent the entire day with his mother getting a second opinion on her cancer. We are very grateful that we went there. The Mayo Clinic was wonderful.
Today, we’re having someone come and spray in and outdoors. I think we’re having it done 4 times a year, just to be safe. I keep finding crickets around the house, so I know it’s necessary.
I have to get my monthly Clozapine blood work done soon. I have enough meds to get me through for another 9 days. Instead of pushing myself way too hard, I will make an appointment for Monday and allow myself to catch up on everything else that I missed while I was away.
I spent some time alone with my mother-in-law yesterday. I showed her the notebook I made to keep track of all her medical issues. She loved it and was extremely grateful of all the work I did. The visit went well; we get along great. It was just emotional for me. There were a lot of details in the notes that my mother-in-law didn’t understand. However, I knew what they meant because I heard them a lot from my father’s cancer. Her illness is bringing up a lot of emotions and memories of my dad. I just want to be able to support her and my husband without bringing up stuff about my dad. I’m not sure if that’s possible, but I’ll do my best.
The past couple days have been pretty difficult. I’ve been pushing myself to do things that I normally wouldn’t do. I’m doing these things because I know that they would help my husband and mother-in-law. I know I don’t have to do these things. It’s my choice. I’m choosing to do them because I think it’s a way for me to love and support my husband and mother-in-law.
Saturday night, my husband asked me if I wanted to go play darts. I got ready and took a Valium. My husband really just needed to get out of the house. We had a good time. We met his best friend there and got to meet his new girlfriend, who we both like. The hardest part was walking into the bar and through crowds. I was okay once we got to the dart boards. There were a lot of people there. My husband was very helpful. He made sure to always hold my hand when we were moving around and he stood behind me when there were other people standing behind me.
This morning, I decided to go to church. It’s a Christian church. Again, I took a Valium because I knew this would be more than difficult. I knew it would make my mother-in-law very happy, and it did. About half of it was singing. My husband told me a few times that I could sing along (almost everyone did), but I didn’t want to. I didn’t want to sing along with words that I don’t believe in. Honestly, I have no clue what I believe in. I know that there is a power greater than myself; I’m obviously not all-powerful. However, that’s really all I know and believe at this point.
Going to church today really made my mother-in-law happy. It put a huge smile on her face. She even thanked me for coming and acknowledged how difficult it must have been for me to do so. I’ve been trying to figure out why I decided to go to church. I’m not sure if this is a reason or not, but I chose to go because no one ever asked me to going. Everyone knows I have a hard time with church and God. I wasn’t pushed into doing something I didn’t want to do. I was accepted for who I am, and that’s why I went. I’m not sure if I will go again or not. Right now, I’m completely overwhelmed with life. I wish there was a way to simply pause everything.