After ECT

ECT went well today. I’ve done it more than 30 times; it’s become normal for me. When I woke up from anesthesia, I felt fine, no pain. By the time I got home, the pain set it, so I had to take a Percocet. I have a pounding headache and my jaw hurts terribly. I’m just waiting for the pain meds to kick in. I wish I could go to sleep, but for some reason, I can’t, I’m just not tired. If I could sleep, it would probably make me feel even a little bit better.

My memory is back to being crappy. I can’t remember where my husband is, although I know I knew his plans before the ECT treatment today. I looked in my calendar and saw that I recently went to visit my family in Connecticut, but I don’t remember any of it. I can’t remember my wedding, that one really bothers me. I went through my wedding album; it brought back some of the memories. That was helpful, but still not enough. I’ll probably watch my wedding video later today. I hate the memory loss. Every time it finally starts to improve, it’s time for another treatment that causes memory loss again. It’s a vicious cycle.

I don’t want to continue (I think I’ve mentioned that many times), but I just do what I’m told to do. One of these days, I’m going to stop being so compliant. I know that my being compliant regarding my psychiatric treatment is extremely helpful, but it’s also exhausting. I’m afraid that one day I’m just going to do what I want to do instead of what I’m told to do. Following my bipolar treatments is overwhelming. I’m going to rest today, or I’m going to clean the house and go play cards with my family. I know I should rest, but I doubt that will happen.

Another ECT

I have another ECT treatment today. I do them every 4 weeks; I can’t believe it’s already been that long. I hate going and doing this. It is helpful, but I guess I’m just tired of it. Maybe I would feel okay about it if doing ECTs made me able to reduce the amount of medicine I took, but it doesn’t. The people there are very nice and know me well since I’ve been doing this for more than a year. The procedure doesn’t take long, but I do feel somewhat crappy the rest of the day; mostly headaches, body aches, and memory loss.

I’m too scared to stop. What happens if I stop and it turns out that it was the one thing that was holding me together, in a way. I don’t want to go, but I always go because I’m afraid not to go and because it’s the right thing to do at this point for my treatment. Sometimes, I wish I wasn’t so compliant. Time for me to go now.

Real Neat Blog Award

I would like to thank DecodingBipolar for nominating me for the Real Neat Blog Award. I’m honored that you thought to nominate me. I love reading your blog every day; it’s so easily relatable. Please check out her blog, if you have not done so already.

The questions to answer including my answers:

1. Where do most visits to your blog come from?
Most of the people who view my blog are from the United States. I also receive a good number of views from the United Kingdom and Canada.

2. What is your favorite sport?
I love hockey. My husband brought me to one game, and I’ve been hooked ever since.

3. What has been a special moment for you so far in 2016?
I got to spend this past Mother’s Day with my mom and grandma. It was a simple and wonderful day. Any time I get to be with my family is special to me. Also, I spent the evening with my 8 month old granddaughter last night, and I got to make her laugh and smile. Normally, she laughs at my husband, but this time she laughed at me!

4. What is your favorite quote?
“Better to have, and not need, than to need, and not have.” – Franz Kafka
To me, this quote by Kafka reminds me to stay prepared, and it has been helpful many times in my life.

5. What was your favorite class when still at school?
I loved any math and science classes. I like things that make sense and can be proven. I love having a right and wrong answer to any question.

6. Anything you had wished to have learned earlier?
I wish I had learned to accept myself for who I am earlier. I’m harder on myself than I am on anyone else. I’m still learning how to give myself a break. It’s a task that’s much easier said than done. It would have been nice to start learning to do this sooner.

7. What musical instrument have you tried to play?
I have played many instruments over the years, but the one that has stuck with me is the piano. I started it when I was about 6 years old. Over the years I have also played the clarinet, bass clarinet, oboe, and the alto saxophone. Playing the piano is my favorite, and my next favorite is the saxophone.

I nominate the following:
Story of my Life
Closer to the Middle
Wallflower or Butterfly
Bipolar Strength: Rebel with a Cause
Tony Vega dot Net

The rules are:
1. Put the award logo on your blog.
2. Answer 7 questions asked by the person who nominated you.
3. Thank the person who nominated you, linking to their blog.
4. Nominate any number of bloggers you like, linking to their blogs.
5. Let them know you nominated them (by commenting on their blog etc.)

Time With My Granddaughter

Last night, my step daughter invited me and my husband over for dinner. We were both really excited because it meant that we would get to spend time with our granddaughter, who is almost 8 months old. Sometimes, I have a difficult time getting into ‘play time mode’ with her. My emotions take over and I often can’t help but feel sad because I can’t have children of my own. Of course, it is sad that I cannot have children, but it was a choice I made because I felt (and still feel) that it was the right thing to do. However, I do not want my emotions to get in the way of my relationship with my granddaughter or either of my grown step-kids.

Well, last night was different. It took me a little while to get into the swing of things, but after about 30 minutes, I was able to play with her. I could act goofy, play peek-a-boo, and play tickle monster with her. It felt amazing. She started to laugh for and at me. Simply seeing the joy on her face and watching her smile made my heart fill with delight. The fact that I could make her laugh and smile was breathtaking and I can’t wait to see her again. Plus, I continue to get closer with my step-daughter and her boyfriend. Watching the two of them become responsible adults is so wonderful; I can’t even imagine how great it must feel for my husband to watch them grow into mature and reliable adults.

After my husband and I got home, I started shopping online for clothes and toys to give to our granddaughter. I enjoy the shopping. In fact, I’ve tried to explain to my husband that the shopping is more for me than for her. Now, I just have to wait until I see my granddaughter again in one or two weeks. However, I will get to see my step-son in the next couple days, which is also exciting. I love my family and they do bring me so much joy. They can bring me temporary joy, but the depression is still there. At least they give me a break from it.

Clozapine Side Effects

Today marks 6 weeks that I have been on Clozapine. My psychiatrist has been increasing the dose slowly. I have only been at my current dose of 200 mg a night for 2 weeks. This is the dose that my psychiatrist wants me on until we get the results of my Clozapine level from this upcoming blood work. Things were going just fine, until the past several days. There’s always some sort of problem with me and medications, it can never simply work.

One thing I noticed is that I’m starting to slur my words and sometimes I just have a hard time saying certain words, usually words that have several ‘s’ sounds strung together in a row. It doesn’t happen often, but when it does, it’s very frustrating. I feel like a little kid again with the speech impediment I had until I reached 3rd grade. I first noticed it happening about 3 or 4 days after increasing my dose to 200 mg. My initial thought was that it could be due to the Valium or Percocet. I paid close attention making sure that the slurred speech was still occurring even when I had not taken any Valium or Percocet.

Over the past few days, I noticed another side effect, drooling. It only happens when I’m sleeping, but it gets so bad that my pillow is soaked. Sorry, I know it’s gross, but it’s been happening for about 4 days now. I tend to wake up in the middle of the night and then I have nowhere to lay my head down when I try to go back to sleep. I did some research, and it turns out that drooling is a regular side effect of Clozapine. The slurred speech is also a known side effect, but it’s not very common. I wish I could fix the fact that I tend to get so many side effects from medications. I wonder if it’s because of my Ashkenazi genes.

I told my psychiatrist about these side effects. He said that we can discuss options regarding the drooling the next time I see him, which is on Wednesday. That sounds promising, at least there are options. However, he said that if the slurred speech continues or increases, then I would most likely have to reduce or get off the Clozapine. I’m not happy with that option. There’s nothing I can do about it now. If I do end up having to get off the Clozapine, then I’m sure there is a very good reason for it. Now, I just wait and see…

Who Am I?

I’ve been wondering lately, who am I? I know a lot of different things that are a part of me, but they’re not who I am. For example, I’m a wife, a daughter, a sister, a friend, and a dog owner. I have bipolar disorder and PTSD; these things are also a part of me. I like things to be neat and clean, I like to eat and to cook, and I love family. All of these things are a part of me, but none of them are who I am.

Maybe I’m like a puzzle; each of those things is one puzzle piece. When you put them all together in just the right way, you complete the puzzle and find out who you are. My only problem is that I don’t know where all of my puzzle pieces are. I don’t know most of the activities I enjoy and the things I don’t like. I have a lot of memory loss, making it difficult for me to know any of these things about myself. There’s so much of my past that I don’t remember, how could I ever know who I really am now? My past is a huge part of me, not all of me, and I’m missing so many of those memories.

I suppose that who I am is made up of my past and my present. Every little and big thing about me is a puzzle piece. My bipolar puzzle piece is no bigger or smaller than any of the other pieces; it’s a part of who I am, just like every other piece. I just wish I knew what the final puzzle looked like. Until then, all I know is that I’m not just one thing, I’m many things. I’m made up of so many things, positive, negative, and indifferent.

I’m Not Always Positive, But I’m Always Grateful

I talk a lot about staying positive and how positive thinking is beneficial. Sometimes I feel like a fraud when I talk about being positive because it’s not how I naturally feel. My mind almost always goes to the negative side instinctively. Some people are naturally positive, and others are not. For me, it takes a lot of work to be positive, most of the time I’m faking my positivity. There’s a catch phrase that says, “Fake it ’til you make it.” That’s what I’m doing most of the time. I try to talk and write positively in hopes that eventually I’ll end up believing my own words. Sometimes, when I’m dealing with an anxiety provoking situation, I tell myself over and over, “I can do this.” Even though I don’t necessarily believe myself, it gets my brain to start thinking about something other than what is scaring me. It almost always ends up working out okay. That specific strategy helped me while at the airport, which is a huge anxiety trigger for me.

Lately, I’ve been seeing the negative side of everything. I will vent for a little while, and when I’m done, it turns out that I’ve talked myself through the negativity and into positivity. Even though my mind sees more negative things than positive things, at least I see some positive things. I may start out venting, being angry, and negative; however, it helps that I’m able to end my thoughts on a positive note.

I may not always be positive, but I am grateful. Even though my life has been difficult, it could always be worse. I try to remain grateful for at least one thing, no matter how difficult life gets. Gratitude can seem impossible, but there is always something to be grateful for. For example, despite the difficulty I’ve experienced over the past many years, I still have my sobriety. I’m also extremely lucky to have a family that accepts me and does their best to understand my bipolar disorder. That is more than many other people have. No matter how bad life gets, I can always fall back on these things that I’m grateful for. It’s been very helpful for me to have these things I know I’m always grateful for; my loved ones can remind me of them when I forget.

Lonely From The Inside

So many people think of loneliness as something that’s felt when we’re alone. However, that’s not always the case, especially for those dealing with mental health issues. For me, the worst part of feeling lonely is when I’m with people, especially people I care for, and still feel lonely. It’s a feeling deep in your heart and your gut; it’s an emptiness that can’t be filled. When I’m around others and still feel this loneliness, it can somewhat feels like a rejection; as if the person/people I’m with don’t want me. That’s not what’s actually happening; it’s just my perception of things based off of my emotional state at the time.

When I’m dealing with this loneliness, I often feel better when I’m alone. Right now, I’m alone, which means the loneliness isn’t as bad as it can get, but it’s still there. I’ve been coloring in my adult coloring books for a couple of hours today. It does take my mind off of things, but when I stop, the loneliness floods back in. That’s when I decided to try writing about it. Blogging has been very therapeutic for me; at the very least, I thought it couldn’t hurt. Being able to put my emotions into words is helpful for some reason. I wish I knew how long this would last or had ways to get past it. For now, I just want to get through another day.

Setting Boundaries

It is important for every individual to set boundaries; it is how people take care of themselves. Setting boundaries is a healthy way to build and maintain relationships with ourselves and with others. Just because it’s healthy, doesn’t make it easy. In fact, setting boundaries is one of my most difficult tasks. In fact, it’s something that I usually fail at doing. I don’t really ever say “no” to others. My automatic answer is always “yes”, even when I practice saying “no” and other similar responses. I don’t know if this is because I’m a people pleaser or because I’m scared to turn someone down, although those reasons seem to be related. I’ve been practicing saying “no” to people when they ask me something. This doesn’t mean I should turn people down all the time; I just need to find balance between saying “yes” and “no”. The following are techniques I use to work toward setting healthy boundaries in my life:

Know your comfort level. The first step to setting boundaries is to know what you are and are not willing to do. You have to know your own limits, physically, mentally, and emotionally. Knowing yourself and what stresses you out will allow you to know what boundaries to set.
Practice, practice, practice. I practice saying “no” and giving other responses to questions I know someone is about to ask me. I practice having multiple answers to a question or situation.
Ask for help. I usually ask my mom or my husband to help me determine how to respond to certain situations. My mom helps me practice my responses. It’s not often that I am able to set a boundary, but when I did a couple of weeks ago, I was so proud of myself and couldn’t wait to share it with my mom; she was excited and proud of me. Asking for help is not a weakness; it helps us become stronger.
Begin small. When you start small, it can either be with a simple boundary or by setting a boundary with someone you’re comfortable with. Some boundaries can be as simple as stating what you want; I’m not good at doing that either, but I’m working on it.
Long explanations are not necessary. For example, if someone asks you out to lunch, it’s okay to just say, “I can’t make it, I’m busy then, but thank you for the offer.” The more intricate your reasoning is, the more questionable it appears. There is no need to justify yourself to everyone. You should be comfortable with your response, but you don’t have to make sure everyone else is okay with it.
Stand by your boundaries. Once we finally set boundaries, we need to stand by our decisions. It’s important, but not easy, to stand up for ourselves. I’m still working on it, but eventually I’ll get there.
Stay positive. This is something that is extremely difficult; it’s easier said than done. The first step is to stay away from negative people. When someone you’re with is negative, it’s okay to ask them to change the subject. Walking away is also okay. Our minds go negative so easily, so every time I’m negative, I try to find at least one positive thing.
Put yourself first. Remember, you are important. Your wants and needs are significant. I often don’t stick to my boundaries because I feel guilty or shameful. However, I’ve found out that there’s nothing wrong with putting yourself first. It’s part of taking care of you.

These techniques have been very helpful to me. Setting boundaries is probably one of the things I struggle with the most. I’ve gotten better at it, somewhat, but I still need a lot of practice. I’ll get better with time. In this past two month, I’ve said “no” twice, that’s huge for me.

I Feel Like Two Different People

I often feel like I’m two different people. This is the ‘pretend’ or ‘fake’ person. It’s not that I’m being fake, I’m just holding back. I’m one person when I’m around people I trust, such as my husband and my mom. I can fake being okay and my paranoia, anxiety, and fears decrease. This is the person that I make up; the person I let others see. I can also be this person around other people such as family members and friends. It’s just harder for me to keep up this person. But for some reason, I always feel like I need to put on this other persona. I don’t exactly know why, especially with the people I trust the most. Maybe, I’m just trying to give myself a break from the other person that I am; allowing myself to release some of my anxiety and paranoia. I usually need the help of Valium to do this with people other than my husband and mom.

Then, there’s this second person, the real me. I’m the person who jumps at every little noise. This is the person who sometimes keeps a baseball bat by the door and keeps a knife in my pocket when out for a walk, just in case. My paranoia increases when I’m alone. I have more auditory hallucinations when I’m by myself, although I’m learning to tell which things I hear are real and which are hallucinations. When I leave the house by myself, I’m constantly looking around, especially behind me, so I can see everything that’s happening. I never want to be caught off guard. I rarely ever take anti-anxiety medication when I’m by myself in my house. I prefer to use it when I leave my house or when I with others, that way I can be that other ‘pretend’ person.

I wonder if I’ll ever feel safe again when I’m by myself. Despite the fact that I’m pretending when I’m around others, I do feel safer than I feel when I’m alone. I feel like two different people. Each ‘person’ comes naturally. People I trust tell me I don’t have to pretend to be anyone or anything, but it just happens. For some reason, I don’t feel like I have control over which person appears, it’s just instinctive. Does anyone else have this issue or feel this way?

My Side of the Pole

Bipolar – Mental Health

Category: Bipolar