Prescription Assistance Program Denial

This evening, I brought the trash and recycling outside. On my way in, I checked the mailbox; there was some junk mail and a letter from Johnson & Johnson Prescription Assistance Program. I’ve been waiting for this letter. I held it in my hand as I walked quickly to get inside my house so I could open it and hopefully find out that they accepted my application.

I opened the letter quickly and started reading. It says, “Thank you for applying to our Patient Assistance Program…Unfortunately, after carefully reviewing your application, we’ve determined that you do not meet the eligibility requirements at this time…” The second I read the word “Unfortunately” I knew they were rejecting my application. This is very upsetting for me. The medication is for a bladder condition I have called interstitial cystitis. It’s very painful and causes many bladder problems. The medication was going to give me the possibility of no longer doing installations (catheterization to insert medication directly into the bladder). I do these installations every week.

The medication costs $500 to $800 per month without insurance. With my insurance coverage, it costs $230 per month. While the insurance does cover quite a bit of the cost, there’s still a lot left to be taken care of, especially since it would be in addition to all of my psychiatric medications. The letter gave several reasons why they may have denied my application. The only one that seems to fit is that you need to be uninsured for the prescription product needed. Even though my coverage for this medication is crappy, it’s still there, and that’s what they are basing their decision on.

This sucks, and is ridiculous (sorry, just venting). This is not the answer I was looking for, but I will have to deal with it. Maybe I’ll try the medication for a couple of months to find out if it would even work. If it does work and I want to continue taking it, then I can figure out how to deal with it at that time. If it doesn’t work, then there’s no reason to be stressed and upset about it. I’m going to have to think about it for a little while before making a decision.

Help with Weight Gain

I slept horribly last night. I woke up 3 times in the middle of the night. I think the trouble I’m having sleeping is related to the sadness and difficulties I’m having with my weight. My weight gain causes my depression to get works. Of course, when I’m sad and depressed, I tend to eat more. It’s a vicious cycle.

I hate wearing jeans. I only have a couple of pairs left that even fit me. It was suggested to me to try wearing skirts or dresses. It was a great suggestion. I have a lot of skirts that fit me very well, and they are extremely comfortable. I may need some new shirts, but at least I have some clothes to wear that I am comfortable in. I wish I had thought of this sooner. I think that since I will be comfortable in the clothes I’m wearing, it will help with the depression and crying.

I’m looking forward to the day next week that I can contact my psychiatrist again for help with my weight gain. He said that there are several measures he could take to help me. I eager to find out what they are and see if any of them will work.

Holding On For Dear Life

Right now, I am holding on with all I’ve got. The Clozapine has caused a huge weight gain. I’ve gained more than 30 pounds in 3 months. It doesn’t matter how much I workout or what I eat, I just keep gaining weight. I know I made a committment to keep trying Clozapine until I reach my goal dose of 400 mg. I still have another month of dosage increases until I get to my goal. When I say I’m going to do something, I mean it. I want to hold myself to my committment. However, it’s easier said than done.

I told my psychiatrist about the weight gain. He told me that there are some measures we can take. However, he is on vacation, so I have to wait until next week. So I know that there is something that could possibly help with my weight gain, but I have to wait another week. I understand that everyone is entitled to go on vacation, but waiting even another day is extremely hard, a week is close to impossible. But somehow, someway, I will do it.

The problem with going off of Clozapine, is that there aren’t many other options for me. I’ve already tried ECT for over a year. I don’t want to do IV Ketamine because the thought of dissociation is terrifying for me. I’ve taken so many medications, there aren’t many options left. I keep questioning my future since my treatment options are getting fewer and fewer. This is when I really rely on my friends and family. So far, I have been shown nothing but love and support. I can do this; I can get through this. That’s what I need to keep telling myself.

Happy 4th of July

Happy 4th of July to everyone. This is a holiday where people like to get together with friends and family. People throw parties, grill, watch fireworks, and enjoy the company of others. However, that is difficult for me. I don’t do well at parties with lots of other people. When my husband asks me what I want to do today, I don’t always know what to say. I would rather stay home tonight and make sure the dog doesn’t freak out with the fireworks that will be going off. I’m using my dog as an excuse so I can stay home where I’m comfortable.

Sometimes I feel like I’m dragging people down because I don’t want to go out to family/friend parties, even though people tell me that it’s not a problem. I do push myself to do things that I’m uncomfortable with often. However, a 4th of July party is not something I can push myself to do. Maybe next year.

The past few days have been rough and I don’t know why. Nothing has changed that I can think of. I’m extremely tired and been having a big problem getting started each day for the past several days. Life is just overwhelming at this time, but I know it will pass eventually. I just have to hold on until these difficult times pass.

Fireworks Fear

The 4th of July is coming, and that means fireworks. I’m not a fan of fireworks because of the noises they make. In my neighborhood, people started setting off fireworks last night. They will do so every night and they will do more and more each night. They even set them off during the day. I’m not trying to be un-American; I’m just saying that fireworks scare me. Loud noises that come out from nowhere and happen over and over again terrify me. It’s a PTSD trigger.

My dog normally barks at fireworks and never stops barking, but last year I got him a ‘ThunderShirt’. The shirt is like a giant hug and is meant to help keep dogs calm. It works like magic. My dog may bark once, but then he goes and lays down. At least I don’t have to deal with my dog barking nonstop all night long from the fireworks.

The fireworks started last night. One really loud one went off, and I thought it was a gunshot. It’s not uncommon to hear gunshots in my neighborhood at night. My dog barked once and then went to bed. I wouldn’t mind the fireworks if they only happened one night, on the 4th of July. But instead, it’s at least 4 or 5 days of fireworks and loud noises.

I do my best to manage my fears. It scares me a little less since I already know that the fireworks are coming. I can prepare myself for them. Some nights, like on July 4th, I will take a Valium, which will allow me to actually enjoy the fireworks and celebration. Do other people have this same fear and problem?

Medication Changes Me: Good or Bad?

I have been taking psych meds since I was 14 years old. Ever since I started taking medication, I have always been on a lot of meds. I currently take eight different psych meds, plus other medication for my physical health. I’ve spent more than half my life on medications, and I’ll probably spend the rest of my life taking medications.

Sometimes the meds help and sometimes they make things worse. Medications always have side effects that need to be treated. It’s a pain in the butt. Meds can cause both physical and mental changes. They tend to change the way I act, which is helpful for bipolar treatment, but sometimes it goes too far. I feel like the medications change who I am to begin with. The mental changes that take place are hard to deal with. Right now, I don’t like to go out in public unless I have to and I don’t enjoy things I used to care about. This sounds like depression, but it’s been this way even through manic episodes. Maybe it’s part of the PTSD. I can never tell what’s what anymore.

Will I ever know who I really am? Am I just going to continue to change depending on my medications? How much change is good, and how much is too much? These are questions I ask myself all the time. I was a different person when I was younger; I was social. Now, I’m nothing like that. I know a lot of it is because of my bipolar disorder, but I wonder if some of it is because of the medication as well. Will I ever really know? I guess I just wonder what’s really me and what’s because of the medicine?

Feeling Shameful and Screwed Up

The past couple of days, I’ve been feeling like a total screw up. I feel like I’m doing everything wrong; I’m feeling shame. There are also some things that I’m avoiding because I know/feel as if I’m going to mess it all up. I don’t know where these feelings are coming from. I’m reading into everything that people say; somehow, I can find negative things about myself when others are talking. The “funny” part about it is that people don’t even have to be talking about me for me to find something negative about myself.

I think a lot of it comes from my weight gain. I look in the mirror, and I automatically feel sad and pathetic. All I see is the person I don’t want to be. I feel like I can’t talk to others properly, I can’t stay organized, I can’t workout well enough, I can’t cook right, I can’t get things done, I just can’t do anything right. I wish I knew how to get rid of this feeling. This overwhelming feeling is taking control of my mind and body.

Even though I know that I don’t do everything wrong, I still feel as if I do. I don’t know why that is. For instance, I know I’m a good cook; so why do I feel like the dinners I’m making suck? I’m also a very organized person, but I feel like my house is unorganized and I don’t know how to fix it. I know the truth, but what I don’t know is why I still feel this way even though I know it’s false.

No More ECT

Tomorrow would have been my next ECT treatment. Instead, I talked to my doctor a week or two ago and canceled the appointment. I’ve been wanting to stop these treatments for a while, and I finally did. Now, I’m nervous. I’ve been doing this for 15 months. Even though it’s hard on my mind and my body, it has become normal. All of the “what if’s” are going through my mind. What if ECT actually was helping? What if I slip into a huge manic episode? What if my depression gets worse? What if I have to re-start it, will I be willing to do that?

If I have to re-start ECT, then I don’t get to pick up where I left off. I would have to re-start by going three times a week for a month. Then once a week for four weeks, then every other week for eight sessions, and then finally back to once a month. I can’t do that again. I think I would rather try the IV Ketamine, and that terrifies me. Treatment resistant bipolar depression sucks. I wish I could take a vacation from it. Sometimes I feel like giving up. I know I’m not going to, but I want to. I wish I could be the person that didn’t always do the right thing.

I’m Exhausted but Can’t Sleep

I can’t seem to fall asleep tonight. I have no clue why. My routine is the same, nothing has changed, except for the fact that I’m not asleep. I feel my eyes getting heavy, but when I close them, my mind starts to wander. It goes faster and faster; no one can be expected to fall asleep under those circumstances. So I decided to come out to the couch. Maybe I will get tired there. I turned the TV up a little to try to cover up the background noise in my mind.

As the minutes go on, I feel like I’m getting closer to falling asleep. I’m going to go lay down and try to go to sleep again.

Anxiety and Bills

I just got back from working out with my husband, so my anxiety is already increased. I checked the mail and found some of my husband’s medical bills. I’ve been dealing with their billing department for months now because they messed up the bill by billing the wrong insurance company several months ago. Now, it’s all figured out. I did verify that the bills are correct at this point. However, I’m not happy because it’s a huge bill. On Monday, I’m going to have to call the billing department and set up a payment schedule. It’s all extremely stressful and nervewracking. I think I might go take a Valium to help me get through the day.

I like to stay on top of my bills, but I couldn’t do that with this because the billing department screwed up to begin with. At least this huge bill will mean that my husband has met his deductible, so as long as we stay in network, which we will, there will be no more bills. I’m hoping the billing department will accept a payment plan. Otherwise, we can’t pay it. I’m sure they will, most people don’t have the capabilities to pay such large bills all at once.

Right now, I just have to work on reducing my anxiety. The gym and the bills have made my anxiety pretty high. I wish I could lower it myself, but I still have to run some errands, which makes me nervous. I don’t take my Valium often. A one month’s supply generally lasts me about three months. I suppose it’s time to get ready to go run errands. Hopefully, it will work out without an anxiety attack.

My Side of the Pole

Bipolar – Mental Health

Category: Stress