Psych Appointment

Psych Appointment

Yesterday was my appointment with my psychiatrist. It went really well. I brought a list of everything I wanted to talk to him about, so I wouldn’t forget anything. It was very helpful. He listened to everything I said as well as all of my requests.

I am now off Deplin, because I don’t feel that it has helped at all. He increased my Cogentin at night for the dystonia, just like I asked. He also said I could get off of the Inositol since it wasn’t working either.

I talked to him about the twitches I’m having in my hands that cause me to drop things. He said there was a name for it, but the only solution would be to go off some other meds, such as Lithium and Tegretol. I don’t want to do that at this time. I told him about the extreme nausea that’s been happening this past week, but we both agreed that it’s most likely from Elmiron, which I take for my bladder disorder. The Clozapine is causing the drowsiness during the day.

He is also going to check my thyroid level, Lithium level, Tegretol level, blood sugar level, and cholesterol. I’m very pleased with this appointment.

When I got home, I took a nap that lasted about 6 hours. I don’t know why that happened, but I couldn’t keep my eyes open. I feel better so far today.

Holding On For Dear Life

Holding On For Dear Life

Right now, I am holding on with all I’ve got. The Clozapine has caused a huge weight gain. I’ve gained more than 30 pounds in 3 months. It doesn’t matter how much I workout or what I eat, I just keep gaining weight. I know I made a committment to keep trying Clozapine until I reach my goal dose of 400 mg. I still have another month of dosage increases until I get to my goal. When I say I’m going to do something, I mean it. I want to hold myself to my committment. However, it’s easier said than done.

I told my psychiatrist about the weight gain. He told me that there are some measures we can take. However, he is on vacation, so I have to wait until next week.  So I know that there is something that could possibly help with my weight gain, but I have to wait another week. I understand that everyone is entitled to go on vacation, but waiting even another day is extremely hard, a week is close to impossible. But somehow, someway, I will do it.

The problem with going off of Clozapine, is that there aren’t many other options for me. I’ve already tried ECT for over a year. I don’t want to do IV Ketamine because the thought of dissociation is terrifying for me. I’ve taken so many medications, there aren’t many options left. I keep questioning my future since my treatment options are getting fewer and fewer. This is when I really rely on my friends and family. So far, I have been shown nothing but love and support. I can do this; I can get through this. That’s what I need to keep telling myself.

I Don’t Know How I Feel

I Don’t Know How I Feel

I have had several people ask me how I’m doing lately including some friends, family, and doctors. However, the problem is that I don’t know how I feel. I’m not sure if I’m sad and depressed, angry, frustrated, overwhelmed, fearful, lonely, or anxious. Maybe I’m all of those emotions combined. I know I’m not happy, but that’s about all I know. It’s very strange to be full of emotions, but not be able to pinpoint what any of those emotions are.

When people ask me how I’m doing, I just say I’m fine or I’m okay. It’s so much easier than trying to figure out how I’m really doing. Plus, most people don’t want to hear what’s really going on. The only problem with that, is my therapist wants to know how I’m doing, and I struggle to figure it out when I have therapy appointments.

I’ve thought about using a mood tracking app, but they all ask you questions regarding how you’re feeling and how much you feel each emotion. Since I have no clue what I’m feeling, it makes that extremely difficult. I suppose I’ll have to wait on the mood tracker until I’m able to determine how I really feel.

I’m pretty sure that this is all a part of my depression. It’s another problem to work through, and I will get through it, eventually.

Medication Changes Me: Good or Bad?

Medication Changes Me: Good or Bad?

I have been taking psych meds since I was 14 years old. Ever since I started taking medication, I have always been on a lot of meds. I currently take eight different psych meds, plus other medication for my physical health. I’ve spent more than half my life on medications, and I’ll probably spend the rest of my life taking medications.

Sometimes the meds help and sometimes they make things worse. Medications always have side effects that need to be treated. It’s a pain in the butt. Meds can cause both physical and mental changes. They tend to change the way I act, which is helpful for bipolar treatment, but sometimes it goes too far. I feel like the medications change who I am to begin with. The mental changes that take place are hard to deal with. Right now, I don’t like to go out in public unless I have to and I don’t enjoy things I used to care about. This sounds like depression, but it’s been this way even through manic episodes. Maybe it’s part of the PTSD. I can never tell what’s what anymore.

Will I ever know who I really am? Am I just going to continue to change depending on my medications? How much change is good, and how much is too much? These are questions I ask myself all the time. I was a different person when I was younger; I was social. Now, I’m nothing like that. I know a lot of it is because of my bipolar disorder, but I wonder if some of it is because of the medication as well. Will I ever really know? I guess I just wonder what’s really me and what’s because of the medicine?

Another Day, Another Problem, Another Solution

Another Day, Another Problem, Another Solution

Today, someone is coming to fix the dishwasher. It’s been broken for almost a week, so I’m happy about the idea of having a dishwasher again. However, I do not like the idea of a strange guy in my house. My dog can look scary when he’s barking, but that will only last about one minute before he wants to play and be pet by this stranger. The dog’s no good for protection. Thank goodness my husband will be here. That makes me feel safe. I’m sure the guy coming to fix the dishwasher is a nice guy, but my mind always thinks about ‘what if’ situations.

I’m still feeling like a screw up. I wish I knew how to get rid of this feeling. I keep doing things that I’m good at, hoping to counteract this emotion, but the feeling is still there. It’s an irrational emotion, but it’s what’s going on with me lately. At least I know that this feeling won’t last forever. With my bipolar disorder, I know that no emotion will ever last forever. I will go up and down quite often. So all I need to do is hang on until this horrible feeling goes away.

Pretending to be feeling okay, when you’re not, is exhausting. I do this mostly around my in-laws. I don’t know why. They know about my bipolar disorder and are very supportive. I guess it’s just my comfort level. I’ll open up over time. I’m getting more and more comfortable around them. I think it’s just because we normally spend our time in large groups. I do better one on one.

Feeling Shameful and Screwed Up

Feeling Shameful and Screwed Up

The past couple of days, I’ve been feeling like a total screw up. I feel like I’m doing everything wrong; I’m feeling shame. There are also some things that I’m avoiding because I know/feel as if I’m going to mess it all up. I don’t know where these feelings are coming from. I’m reading into everything that people say; somehow, I can find negative things about myself when others are talking. The “funny” part about it is that people don’t even have to be talking about me for me to find something negative about myself.

I think a lot of it comes from my weight gain. I look in the mirror, and I automatically feel sad and pathetic. All I see is the person I don’t want to be. I feel like I can’t talk to others properly, I can’t stay organized, I can’t workout well enough, I can’t cook right, I can’t get things done, I just can’t do anything right. I wish I knew how to get rid of this feeling. This overwhelming feeling is taking control of my mind and body.

Even though I know that I don’t do everything wrong, I still feel as if I do. I don’t know why that is. For instance, I know I’m a good cook; so why do I feel like the dinners I’m making suck? I’m also a very organized person, but I feel like my house is unorganized and I don’t know how to fix it. I know the truth, but what I don’t know is why I still feel this way even though I know it’s false.

My Tattoos Remind Me

My Tattoos Remind Me

I use tattoos and jewelry as reminders for myself that I have gotten through these times before and I can do it again. My aunt gave me a personalized bracelet that helps me when I’m dealing with suicidal ideations. It reminds me that my family loves me and that I can get through this.

The picture for this post was based on me. The artist was using me as a base of the image. I decided to get this tattoo done after I had gone through a horrible depression. I had also just lost a bunch of weight that I gained during the depression. This tattoo is to remind me that I’ve gone through this before and I can do it again. At this point in life, I do know that I’ve gone through depressions and weight gain before, many times. I do believe that I can get through it again, I just have no clue how long it will take. That is the hard part. It’s hard when you don’t know how long your life will be this way.

I have other tattoos to remind me of other things. I have my father’s plane in flight located between my shoulder blades. On one rib cage is some of the sheet music for Fur Elise, which is also a reminder for my father. On my other rib cage is a quote that reminds me of my friend who was also my AA sponsor. We are still friends, more like family. On my thigh, my tattoo shows my transformation from addiction to sobriety. My back tattoo represents the metaphorical hell I’ve been through with my bipolar episodes and PTSD.

For me, tattoos are a great reminder. They remind me where I’ve been and how far I’ve come. Maybe I should get another one. I think I’ll wait a little while before doing it. I like to make sure I really want one. I don’t want to be impulsive. My old artist is back in Connecticut, but my cousin is a tattoo artist and lives near me.

Slightly Better For Now

Slightly Better For Now

I’m feeling slightly better today. I’m still upset about being labeled totally and permanently disabled, even though it’s what I needed to have happen. At least I’m not crying today like I was last night. Plus, it’s just a label; it doesn’t necessarily mean I’ll be disabled forever, even though it feels like that sometimes. It just sucks because I’m already doing everything I can do and the result is not very good. Oh well, at least I’m trying. I am proud of myself for doing all that I can do, whether it helps or not. If I wasn’t working at being healthy, then I wouldn’t be able to take pride in that aspect of my life.

I talked to my husband this morning about how I’m feeling. He kept trying to make me feel better; it was sweet and thoughtful. At least he cares enough to try. I have to give him credit for that.

I did sleep last night, but I didn’t fall asleep until 5am. I slept for 5 hours, which isn’t too bad. It’s better than not sleeping at all. I find it odd to be depressed but not sleeping very much. Usually, when I’m depressed, I sleep all the time. So does that mean I’m in a mixed state? Or can I have symptoms of both depression and mania, and still be in a depression? I’m not sure how it works. Anyway, hopefully things will continue to improve, even if it’s only one tiny bit at a time.

Depressed and Disabled

Depressed and Disabled

Yesterday ended up being a difficult day. The evening was the hard part. After my husband left for work, this deep heart-rending, wretched feeling set in. I started to feel ashamed of who I am; that is a feeling I haven’t felt in quite a while. I thought it was because of my weight, but that wasn’t it. I spent more time crying tonight than I have in months.

My mom called and we talked for a while. I started to tell her how I was feeling. As I was talking to her I figure out what the issue was. It was that my doctor completed my total and permanent disability paperwork. My therapist was also willing to do the paperwork if I needed it. Because of this paperwork, I realized that I had been on disability for 78 months. Wow, that is a long time. It’s something about being told I’m permanently disabled. I know it’s just a term, but it’s already been so long, and I’m not doing much better. I guess that’s why they diagnosed me as treatment resistant.

No matter what do or how hard I try, there’s always going to be a problem. I’ll go up and down; it will get better and worse, but the possibility of me becoming and staying stable is not likely. When my doctor filled out that paperwork for the total and permanent disability, he did so because he believes that to be true. He doesn’t believe that I will get back to fully functioning. I suppose I don’t believe I will get back to what I had before; a job and a social life. I don’t think everything is a failure; I’m just questioning it all.

The good thing is that I know this will pass. I will have an up-swing again, these feelings will go away, and I’ll deal with the problems of mania. At least my life stays interesting; it’s always something.

No More ECT

No More ECT

Tomorrow would have been my next ECT treatment. Instead, I talked to my doctor a week or two ago and canceled the appointment. I’ve been wanting to stop these treatments for a while, and I finally did. Now, I’m nervous. I’ve been doing this for 15 months. Even though it’s hard on my mind and my body, it has become normal. All of the “what if’s” are going through my mind. What if ECT actually was helping? What if I slip into a huge manic episode? What if my depression gets worse? What if I have to re-start it, will I be willing to do that?

If I have to re-start ECT, then I don’t get to pick up where I left off. I would have to re-start by going three times a week for a month. Then once a week for four weeks, then every other week for eight sessions, and then finally back to once a month. I can’t do that again. I think I would rather try the IV Ketamine, and that terrifies me. Treatment resistant bipolar depression sucks. I wish I could take a vacation from it. Sometimes I feel like giving up. I know I’m not going to, but I want to. I wish I could be the person that didn’t always do the right thing.