I Did Well… For A While – My Life: Part 5

After working at the rehab for 9 months, I decided I wanted to move forward with my life. I applied for many jobs in Phoenix. I got a job as a receptionist for a legal compliance and ethics e-learning company. I found an apartment in Phoenix and moved there with a guy I was dating from the rehab, but that relationship didn’t last. I don’t know when our relationship ended, but I think we lived together for about a year. I adopted a dog and named him Cash (after Johnny Cash). He was awfully energetic and liked to chew on everything. I learned how to train him, and he started to behave properly. Cash came with me to AA camping events, which was a blast. At some point, I found a great AA club where I would go to the same meeting every day at 6pm. I don’t like change, so moving was scary. I like to keep a regular schedule. I made a lot of friends at the meeting, but I would only go to that one meeting every day. One of the guys I met was Brandon, who became my best friend. He had the same sarcastic attitude that I have and we got along wonderfully.

I was doing really well at this time in my life. I got a promotion at work, I was able to live on my own, make friends, and maintain my sobriety and my mental health. I took my medication and saw my doctors regularly. I was seeing the psychiatrist that was treating me while I was in rehab. Brandon asked me to workout with him. I told him no for months, and then I ultimately caved and decided to go with him. I was terrified because it was something new, but Brandon made me feel safe. After working out with him once, I was hooked. I loved it. We started working out together 5 days a week. It helped me get through my days at work. I would go to work, then workout with Brandon, and then go to my meeting (often with Brandon). I was happy with this new schedule; it was working well for me.

In the beginning, I wasn’t open about my mental health when it came to my AA meetings. My close friends knew, but that was all. Eventually, I ended up talking about my bipolar disorder in a meeting. I felt as if it wasn’t accepted. Several times, I was told that I didn’t have a mental health problem. It was just an issue to work on through step work. That was a problem for me. I didn’t feel accepted. My mental health was a huge part of my life. Even when I’m doing well, it’s still a large piece of my life. I was stable for years. That had never happened to me before.

My psychiatrist decided to wean me off my meds slowly because I had been stable for such a long period. It was possible that my mental health issues were drug related, so we thought it was worth a try to get off medication. I was down to two medications, and then she took me off the Seroquel. About 4 months later, I started to fall apart. I thought it would be a good idea to go to therapy again because I started to remember things that I hadn’t previously remembered. These memories triggered what was eventually diagnosed as PTSD. With the PTSD coming up and the med changes occurring, it was like the perfect storm. I started having hallucinations and was shaking uncontrollably. My psychiatrist put me on Abilify, but that made it worse. I barely slept for 3 weeks.

My job let me work from home, but after a little while, I couldn’t even manage that any more. I went on short-term disability, which then turned into long-term disability. There were times that I struggled to feed the dog. My mom came out to stay with me for a little while, but she couldn’t be there all the time. I decided to move back to Connecticut because I couldn’t be on my own anymore. I’m lucky that she was able and willing to let me and my dog move in with her. My long-term disability turned in to Social Security Disability.

I thought writing my story would help my memory, and it has; but it has also become difficult for me. There’s a lot that I struggle to remember, and a lot of other things I wish I didn’t remember. I think I’m going to take a break from writing my story for a little while.

Inside My Depression

I’m in it, inside the depression; it has taken my energy, my thoughts, and my will. I’m not myself, but I can’t even remember who I normally am. I can’t seem to get things done. It has been weeks since I’ve cleaned my house. Normally I clean the whole house once a week. I keep putting it on my to-do list, but I never seem to be able to get it done. Anything and everything is close to impossible. Every moment is a fight against myself, and it feels as if I’m losing.

I’ve done this many times before. It’s not my first depression, or my second, or third, and so on. I was diagnosed with bipolar disorder when I was 14 years old. It’s been 17 years that I’ve been trying to manage my diagnosis. I just wish that I could find the peace and keep it just a little bit longer instead of going from one episode to another. I’ve lost track of how many times I’ve been depressed or manic. The most important part is that I get through it every time. No matter how deep the episode is, no matter how hopeless the depression gets, I’ve gotten through it before and I’ll get through it again.

I wish I could get through this quicker. I know this sounds weird, but a part of me wishes I was manic. Then I would at least have energy and be productive. I’m not thinking about the negative aspects of mania, I’m just thinking that I don’t want to feel the depression I’m in. Right now, I’m sleeping way to much (I keep falling asleep on the couch), I feel worthless, I feel empty, I’m overeating, I have a decreased interest in almost everything, and just about everything is irritating. I’m lucky that I haven’t started crying yet, hopefully it will stay that way; I hate it when I cry. When I say I want to be manic, it’s just because I don’t want to deal with this depression. I want what I currently don’t have. It would be best if I could just be even, not depressed or manic, but I don’t know if that’s reasonable.

I will get through today; I always do. I have a great support system. Everyone I know offers their help. My husband just asked me if he could do anything. I thanked him for offering, but there’s nothing he could do. I wish there was something that other people could do, but I can’t think of anything. Simply knowing that people close to me truly care is helpful. Just knowing that they are there to support me makes me feel a little better; right now, every little bit counts.

I’m Not Always Positive, But I’m Always Grateful

I talk a lot about staying positive and how positive thinking is beneficial. Sometimes I feel like a fraud when I talk about being positive because it’s not how I naturally feel. My mind almost always goes to the negative side instinctively. Some people are naturally positive, and others are not. For me, it takes a lot of work to be positive, most of the time I’m faking my positivity. There’s a catch phrase that says, “Fake it ’til you make it.” That’s what I’m doing most of the time. I try to talk and write positively in hopes that eventually I’ll end up believing my own words. Sometimes, when I’m dealing with an anxiety provoking situation, I tell myself over and over, “I can do this.” Even though I don’t necessarily believe myself, it gets my brain to start thinking about something other than what is scaring me. It almost always ends up working out okay. That specific strategy helped me while at the airport, which is a huge anxiety trigger for me.

Lately, I’ve been seeing the negative side of everything. I will vent for a little while, and when I’m done, it turns out that I’ve talked myself through the negativity and into positivity. Even though my mind sees more negative things than positive things, at least I see some positive things. I may start out venting, being angry, and negative; however, it helps that I’m able to end my thoughts on a positive note.

I may not always be positive, but I am grateful. Even though my life has been difficult, it could always be worse. I try to remain grateful for at least one thing, no matter how difficult life gets. Gratitude can seem impossible, but there is always something to be grateful for. For example, despite the difficulty I’ve experienced over the past many years, I still have my sobriety. I’m also extremely lucky to have a family that accepts me and does their best to understand my bipolar disorder. That is more than many other people have. No matter how bad life gets, I can always fall back on these things that I’m grateful for. It’s been very helpful for me to have these things I know I’m always grateful for; my loved ones can remind me of them when I forget.

I Can’t Even Fake Okay

I couldn’t even fake being okay today. I tried, I seriously gave it my all, but between the emotional aspect and the physical side due to medication side effects, I was pretty much a wreck. There was a get-together at my mother-in-law’s house just because, basically to see our granddaughter. Technically, she’s my husband’s granddaughter, but I feel like she is mine as well, and step-granddaughter just sounds weird. She is 6 months old and absolutely beautiful. I wasn’t feeling very well today, I had a lot of physical weakness. I was too nervous to hold the baby because of the weakness; I didn’t want her to get hurt. I have dropped several things I was supposed to be holding, such as dinner bowls, I didn’t want her to be added to that list. So I didn’t have as much time with her as I wanted, and that breaks my heart.

I went to the family get-together in a difficult emotional state to begin with. Earlier in the day, someone seemed upset, so I asked if everything was okay. The response I got was that I ask too many questions and it can be frustrating. The way I took it is that I talk too much; my memory is horrible causing me to ask too many questions, and that I’m overall annoying. I’m sure it wasn’t meant like that, but this is where the bipolar kicks in; my mind always goes to the extremes. So I spent the rest of the day trying not to talk, which is extremely hard for me. My memory is horrible due to ECT and I talk so much and ask a lot of questions because of the bipolar mixed episode that I’ve been in. I guess I don’t take negative feedback very well.

I think it bothered me so much because I don’t feel like I have control over myself, my memory, how much I talk, or what I say. I tried my best to fake feeling happy. I would have tolerated being able to fake feeling okay, but I could barely even do that. I used to think that I could always fake being okay, but today proved that I’m wrong. I don’t want to annoy this person, but if today bothered them because of how much I was talking or asking questions, then I think it must bother them every day. All I can think is that I must annoy this person all the time. Every time I have started to open my mouth that was thought that went through my mind. So I’ve done my best to be quiet, although I know that’s not the best answer. Hopefully tomorrow will be a better day.

Honesty Helps Fix My Lack of Control

It’s extremely difficult for people to manage their bipolar disorder. In fact, for me, it’s probably the hardest thing I’ve ever had to handle. I’ve dealt with the death of my father as a teenager, a drug and alcohol addiction, maintaining sobriety, a previous relationship that was physically and emotionally abusive, and the loss of several friends due to suicide or drug addiction; these things are only a few of the circumstances I’ve dealt with, and for me, none of them compare to dealing with my bipolar disorder on a daily basis.

To me, it feels as if I often don’t have control over my own brain, mouth, and even my body. I frequently find myself saying things that should not be said or doing things that I should not do. My brain is always running, always thinking, it doesn’t take a break. I’m generally thinking about all of the things I did wrong, but I also think about different options I have, I’m on overload. My mind has no balance. It feels as if I have no control over my own mind. It jumps from subject to subject, never thinking any thought completely through. I often act on my emotions instead of logical thinking. I do the best I can to make the right choices, but when it’s left up to my brain, I never know what the results will be like.

I know this sounds weird, but I love rules; any set of instructions or guidelines that I can follow make my life easier. I don’t have to listen to my brain or attempt figure out what the right thing to do is. I don’t worry about my lack of control over myself, I simply do what I’m told is the right thing to do. I have a hard time being dishonest about anything. I know that honesty is the best policy, but sometimes there is such a thing as too much honesty. If I’m not completely honest with others, my mind keeps telling me how horrible I am, and then I can’t function or sleep. I’ve lived the majority of my life without control, following rules gives me control; it gives me power.

I no longer have to struggle to organize my mind to figure out what I should and should not do, I no longer have to worry if every single thing I did was right or wrong, and I no longer have to worry if I can live with the choices I made. As long as I am honest to the best of my ability, I feel free from the bipolar restraints and the lack of control that comes along with it; I can find balance in my life. Following rules and being honest is so much easier than doing anything else; there are already a set of instructions laid out for me, giving my mind some peace and quiet, which is something that almost never occurs. Of course my mind doesn’t stop, and there are still so many thoughts going on in there, but at least I don’t have to figure everything out on my own. I encourage others to try being honest and follow rules if they’re comfortable doing so, even if it’s as simple as following the instructions on a recipe or game. Maybe it will work for you, maybe it won’t, but I hope that it does, because I would really love to share the peace that it brings me.

Blood Work Starts Now

As my husband left for work this morning, he brought the mail inside. One of the envelopes was from my psychiatrist. It contained a weekly standing order for blood work to monitor the Clozaril along with a prescription that I can give to my pharmacy once I hear back from my doctor about my blood work.

I wasn’t nervous until just now. In fact, I was slightly excited to start Clozaril because I was hoping it would help level me out and particularly get rid of my hallucinations. I was thinking that it could be the solution I’ve been waiting for. However, now that it’s time to start the process, my heart started to pound, chest pains developed, my breathing quickened, I became sweaty, I started rocking back and forth when sitting, and I couldn’t remain still when standing. Basically, it was a minor anxiety attack. I didn’t know where my fears were coming from. I don’t like anything new, but this isn’t new. This is a rechallenge. I tried it for the first time last summer with no success.

I still want to believe that it will work out, but right now, I’m not so sure. I worry that my Ashkenazi genes will cause problems again. My mind is going a million miles an hour, and it’s going to some bad places. I keep thinking that if this doesn’t work, then there’s no hope left for me. Technically, I know that’s not true, but sometimes fear takes over the mind. There are still a few other options, even though I really don’t like them, they are there. And there is always research being done resulting in new medications and treatments that are often very successful. Will I ever be a part of the success when it comes to treating my bipolar disorder? It’s been a long time that I’ve been unstable; it just makes me question a lot of things.

I simply needed to get all of these thoughts out of my head so I don’t continue to obsess over all of it. I think this has helped clear my mind even just a little. At this point, I feel calm enough to drive, and that’s all I needed. I have stopped shaking and I can breathe better. I don’t have to leave for another 40 minutes. I’m going to take that time to continue calming myself.

The Importance of Those Who Understand

You know the moment when your bipolar episode takes over, but you don’t exactly notice it until a few seconds after it happened? Well, that happened to me yet again. I’m pretty sure I’m overthinking it, but simply put, I just say things I shouldn’t say. My mouth keeps going because my head won’t stop. I have dozens of thoughts all at once, and for me, I can see the connections. However, I know that what I’m saying doesn’t exactly make sense to others. This may be becoming one of those times, and if so, I apologize.

I openly discuss my bipolar disorder here, and with some of my family, generally with those that I feel or have shown to be understanding. Mental health is not an easy thing to understand, and I don’t want to put too much stress on anyone by telling them what’s happening, but I may have just done that. It will probably all be okay, but my mind has played out at least 30 different scenarios where I get in trouble. I wish I could stop this senseless thought wondering, but it’s part of who I am, and I just need to learn to deal with it a little better.

This is another reason why I find support groups so helpful. The friends that I’ve made at the support groups I’ve previously joined are there to help me through all sorts of events, even the ones that are only in my mind. I have become close with these individuals and I’m so grateful for that, especially with one individual. It’s a give and take relationship, but we empathize with and encourage each other. In my opinion, having someone who can empathize with me can make all the difference. Empathy is about being able to understand what someone is feeling because you have experienced it on your own, while sympathy is simply recognizing someone’s emotions and providing support. It makes me feel so much more comfortable knowing that I am not alone. That every thought and action, no matter how extreme, is also felt by others who love me.

This is not to negate the love and support from my family. Honestly, I prefer that they don’t completely understand my emotional state, I don’t wish that upon them at all. I’m grateful for the individuals that do not struggle with mental health issues. But for the individuals that can relate, it’s important to stick together. My husband keeps trying to get me to go to a new support group, and I put it off because I’m afraid. Yet now that I think about it, only good things can come from it as it has before.

Mixed Episodes – Feelings of Depression are Too Much To Handle

I feel worthless and pathetic pretty much every day. If I’m lucky, I’ll get a 20 or 30 minute reprieve during the day where I still feel horrible, but I don’t necessarily wish I was dead. I have not been lucky today. I am continuing to experience a lack of sleep and an excess amount of energy. My productivity is ongoing, I continued to deep clean various parts of our house and organize everything I could find. However, even though I remained physically energetic, my emotional side diminished into an even deeper depression.

From the moment I woke up today, I felt as if I could do nothing right. My mental state has been overall unworthy. My feelings are menial, shameful, worthless, insignificant, pathetic, stupid, and undesirable just to name a few things. Just as an example to the depths of my emotions, I watched a movie that is absolutely hilarious, but I wasn’t able to laugh at even one thing. I just stare at the TV, watching the movie and trying my best to sit still, and I listen to others laugh hysterically.

Normally I am capable of faking how I feel. I just put on a ‘happy mask’ and I don’t let people see how I’m really doing. I have been waiting all day for even the smallest part of my emotional state to change, but there have been no improvements. Honestly, I don’t really expect anything to change, I don’t deserve to feel better.

Tomorrow morning is my next ECT treatment. I’m not looking forward to it, but I will be extremely grateful if it can help even out my mixed episode. Feeling this depressed but not being able to sit still is extraordinarily excessive. It’s too much on my brain and my body. I wish I could allow myself to give up, but that’s not something I allow myself to do.

Never-ending Bipolar: Keep on Trying

Lately, my bipolar feels like a never-ending staircase. The longer I’m on it, the harder it gets; as if I’m never going to win. Does anyone ever ‘win’ when it comes to mental health? Maybe, if you’re lucky, you can have a few months of remission, but then it starts again.

I wasn’t even doing that well a couple weeks ago, but I was a whole lot better than I am right now. I found out about a friend who took his own life, and that triggered another episode for me (according to my doctor). I wasn’t even close with this guy anymore, but he was a good man. Apparently, it brought up every other death I’ve gone through. Not to mention I’m jealous that he had the guts to do it and he’s finally at peace. Why does my brain think like that? That’s a sick thought. I don’t want to commit suicide; I could never do that. But I can’t stop thinking about it.

I wonder what life is like for people who have control over their own thoughts and actions (I can’t always control myself during episodes). I keep doing all of the things that I know have helped in the past, and I’m trying some new methods as well. The only other thing left to do is wait; I get to wait to see if something is going to work.

I know what my life is going to be like. I will have many manic episodes, depressive episodes, and mixed episodes throughout the years. If I’m lucky, I’ll have a few months in between where I feel good, and that’s it. Maybe I’ll be able to work again someday, maybe I’ll be able to make new friends (I’m currently too scared to meet new people), maybe I won’t spend at least half my income on mental health medical bills. Instead of wondering what could be, I just need to live in the moment. Today, in my mixed episode, I will be productive and do the best I can to manage my anxiety/panic attacks and my overall episode. I will keep climbing those stairs in hopes of a better solution in the future.

My Side of the Pole

Bipolar – Mental Health

Tag: Negative Thinking