I can’t believe it, but I actually got my Clozapine prescription filled on the first try. That’s the first time that’s ever happened. Hopefully it will continue like that.
I had plans today to spend time with my husband and his family. First, we grilled some steaks and then played cards with his mother and brother. Then we went to karaoke with his father and brother. I don’t mind doing these things; in fact, I enjoy spending time with my husband’s family. The only part of it that I don’t like is making plans ahead of time. I never know how I’m going to feel when it comes time to follow through with any plans I’ve made, but I guess that’s why I take Valium. Even if I don’t feel up to it, taking medication helps me follow through with plans that I’ve made.
I know that my depression has been weighing on my husband. He already has enough on his mind. Between his mom’s cancer, his brother’s possible heart problem, and his own back problems, he has enough to deal with. The fact that he cares about me is wonderful, but I feel like I’m a downer on life in general; I’m just putting a bigger strain on life. I hate being a drag to others. I wish there was a way around all of this, but there isn’t. So, I just have to accept life the way it is, and maybe things will improve over time.
Memory loss is a side effect I’ve been experiencing from ECT. I have been on 2 medications to help with memory loss for several months now. When I saw my psychiatrist, I told him that my memory is not improving or stabilizing; at least not from what I can remember. He told me that for his patients that have been on these medications successfully definitely noticed a change. If I wasn’t sure if the meds were helping or not, then they most likely weren’t helpful. So, I’m tapering off of Donepezil and I should be off it completely in under two weeks.
I wonder if there’s anything that can help my memory. If the medications I’ve been trying aren’t helping, what’s the next step? I already write everything down and even record certain things when need be. However, ECT continues to screw with my memory. It appears as if my memory will just continue getting worse because I’m doing ECT once every two weeks.
I wish I could stop ECT. It feels as if my mind and body can’t take much more of it. However, I know that if I stop now, with nothing to replace it, then I’ll slip further into my depression. So instead, I continue to go along with what my psychiatrist wants me to do, as long as he explains the reasons why he wants me to do each specific treatment.
I believe that I’m fortunate for having so much support from my family and friends. However, I have some people who want to understand, but they don’t. They ask me questions such as, “Why are you depressed?” or “What’s wrong?” and I have no clue how to answer them. I’m depressed because I am, not because of something that happened (at least most of the time). I honestly feel that people can’t understand bipolar disorder unless they experience it themselves, and I don’t wish that upon anyone. Nonetheless, I’m lucky to have people in my life that support me and try to understand. They are open to learning and they listen to what I have to say.
This is the first time I’ve written in over 5 weeks. My depression is continuing to control my life. I’m at the point in my depression where I don’t care about much of anything. I could stare at the wall most of the day and not care. My family has been extremely supportive and caring. Honestly, I wouldn’t have gotten through the past many weeks, as well as other times, without them. My mom, aunt, and husband have been wonderful and are always there for me to lean on.
I saw my psychiatrist today and we agreed to taper off a couple of my medications. That was my goal for that appointment. However, no matter how good the changes could be, they also bring up the unknown, which is scary. I’m nervous as to what the med changes could do to me. I know that mania is a possible side effect, but I’m willing to try going off of meds to make sure that I’m not on anything unnecessary.
I’m going to do my best to keep blogging on a regular basis. I know that it’s a great way for me to express myself, plus I always feel good afterwards. I also find other people’s blogs useful.
Nothing feels right. I’m doing the best I can, but I think I’m about to burn out. I’m crying right now and wishing I could change everything. It’s possible that my mother-in-law’s cancer diagnosis triggered something in me. My husband is having a really hard time with his mom’s illness. I wouldn’t expect anything else. I’ve been there, sort of. I lost my dad when I was young. I can’t even imagine losing my mom. I’m here for him to talk to and as a shoulder to cry on, but I can’t change things. I wish there was something I could say that would make things better, but I know that’s not possible.
I feel alone. I stare at the wall and my mind just runs, it runs but there’s nothing there. Every once in a while, my husband asks me what’s going on, but by the time I go to answer him (which is only a few seconds later) I can’t remember what I was thinking. I wish I had a way out, but I don’t. Bipolar is a life-long disorder.
I just have to remind myself that I’ve made it through worse, I can make it through this.
I had another ECT treatment today. It feels like I’m going to have to do this forever. I stopped doing it at one time, and my depression just worsened quickly. Then I had to restart everything. When I restarted, I had to do 2 treatments a week for 4 weeks (at least that’s better then 3 times a week), then once a week for 6 weeks, and since then I’ve been going once every other week. I’m not so sure how well it’s working right now. My depression pretty deep, and my suicidal ideations are almost constant. Even when I try to ignore them or think positively, those thoughts are still there. Even though it doesn’t feel like ECT and all of my meds are working, I know that if I stopped either one of them, either my depression would plummet horribly or I’d go into a major manic episode.
Over this past week, especially the past couple days, my dystonia has gotten a lot worse. I brought it up to my psychiatrist this morning before ECT. He asked me several questions that I answered, but he never gave me a solution. My husband reminded me to email him about it, which I did as soon as I got home. He asked me for a list of all my medications, prescription and OTC, which I gave him right away. Now I’m just waiting for him to call something into the pharmacy for me. Hopefully, whatever he prescribes will help this go away. I can’t stand it much longer.
These questions are from Therapy Bits: Who asked to hear my experiences with bipolar symptoms, how I manage them, and how they effect my life.
I don’t remember most of my experiences due to the side effects of ECT. The biggest, most memorable experience was in 2009. My doctor tried taking me off my medication slowly, because he thought that it was possible that my mental health issues could have been caused by my drinking and using (I’m now sober 13 years). We found out the hard way that I really do have bipolar disorder.
I went into a major manic episode. It was so bad that I couldn’t work. I worked for home for a while, but even that got to be too much for me to handle. I was unable to handle my life due to my manic and then my depressive episodes. I moved in with my mom because I couldn’t manage my own life and I needed someone close to me to do that for me. I’m lucky that I had someone in my life that was willing to help me out.
My bipolar disorder turned my entire life upside-down. I’ve been on disability since 2009, and I can’t seem to get things back together. I continue to go through episodes and I have to deal with the side effects from the treatments I use. This biggest side effect is memory loss and confusion, which are from ECT. I have both short-term and long-term memory loss. I tried stopping the ECT treatments after I had been doing them for quite a while, however, once I stopped the treatments, my depressive episode came right back. I’m not sure if I’ll ever be able to stop ECT again; I’m too worried that I’ll end up going back into another manic or depressive episode.
I’ve been dealing with my bipolar disorder since I was 13 or 14 years old, and I know that it is something that I’ll be dealing with for the rest of my life. Going to a psychiatrist, a therapist, and taking medications is second nature for me. I actually take 13 different psych meds, which is a lot to manage. At this point, I go to ECT once every 2 weeks. I used to go to a bipolar support group once a week, but I stopped going a while ago. I still talk to and see some of my friends from that group, which really helps. This blog has also helped me manage my bipolar symptoms.