Clozapine (Clozaril) can be a frustrating medication to be on. You have to get blood work done every month just to be safe because the medication can have some serious side effects. I’ve never had any problems with the possible serious side effects from Clozapine, but I have had problems getting the actual prescription filled every month for the past year.
I go and get my blood work done (on time, like I’m supposed to), but the pharmacy I go to does not have it together. They always deny getting my lab results, so I end up calling the lab and having them re-send the blood work results. The pharmacy has even told me a couple of times that they weren’t there when the lab faxed over my results, which is why they don’t have them. That is complete crap. Even if my results were faxed over in the middle of the night, they should be there waiting for the pharmacy when they open.
Yesterday, I thought I found a new pharmacy. I talked to the pharmacist, and they were able to register me in the Clozapine database; however, they could not accept blood work results from the lab. So, it looks like I’m going to be staying at the same pharmacy I’ve been struggling with for the past year. I guess, I’m just going to have a sit down with the pharmacist and see if I can get everything figured out.
I believe that I’m fortunate for having so much support from my family and friends. However, I have some people who want to understand, but they don’t. They ask me questions such as, “Why are you depressed?” or “What’s wrong?” and I have no clue how to answer them. I’m depressed because I am, not because of something that happened (at least most of the time). I honestly feel that people can’t understand bipolar disorder unless they experience it themselves, and I don’t wish that upon anyone. Nonetheless, I’m lucky to have people in my life that support me and try to understand. They are open to learning and they listen to what I have to say.
This is the first time I’ve written in over 5 weeks. My depression is continuing to control my life. I’m at the point in my depression where I don’t care about much of anything. I could stare at the wall most of the day and not care. My family has been extremely supportive and caring. Honestly, I wouldn’t have gotten through the past many weeks, as well as other times, without them. My mom, aunt, and husband have been wonderful and are always there for me to lean on.
I saw my psychiatrist today and we agreed to taper off a couple of my medications. That was my goal for that appointment. However, no matter how good the changes could be, they also bring up the unknown, which is scary. I’m nervous as to what the med changes could do to me. I know that mania is a possible side effect, but I’m willing to try going off of meds to make sure that I’m not on anything unnecessary.
I’m going to do my best to keep blogging on a regular basis. I know that it’s a great way for me to express myself, plus I always feel good afterwards. I also find other people’s blogs useful.
Nothing feels right. I’m doing the best I can, but I think I’m about to burn out. I’m crying right now and wishing I could change everything. It’s possible that my mother-in-law’s cancer diagnosis triggered something in me. My husband is having a really hard time with his mom’s illness. I wouldn’t expect anything else. I’ve been there, sort of. I lost my dad when I was young. I can’t even imagine losing my mom. I’m here for him to talk to and as a shoulder to cry on, but I can’t change things. I wish there was something I could say that would make things better, but I know that’s not possible.
I feel alone. I stare at the wall and my mind just runs, it runs but there’s nothing there. Every once in a while, my husband asks me what’s going on, but by the time I go to answer him (which is only a few seconds later) I can’t remember what I was thinking. I wish I had a way out, but I don’t. Bipolar is a life-long disorder.
I just have to remind myself that I’ve made it through worse, I can make it through this.
I had another ECT treatment today. It feels like I’m going to have to do this forever. I stopped doing it at one time, and my depression just worsened quickly. Then I had to restart everything. When I restarted, I had to do 2 treatments a week for 4 weeks (at least that’s better then 3 times a week), then once a week for 6 weeks, and since then I’ve been going once every other week. I’m not so sure how well it’s working right now. My depression pretty deep, and my suicidal ideations are almost constant. Even when I try to ignore them or think positively, those thoughts are still there. Even though it doesn’t feel like ECT and all of my meds are working, I know that if I stopped either one of them, either my depression would plummet horribly or I’d go into a major manic episode.
Over this past week, especially the past couple days, my dystonia has gotten a lot worse. I brought it up to my psychiatrist this morning before ECT. He asked me several questions that I answered, but he never gave me a solution. My husband reminded me to email him about it, which I did as soon as I got home. He asked me for a list of all my medications, prescription and OTC, which I gave him right away. Now I’m just waiting for him to call something into the pharmacy for me. Hopefully, whatever he prescribes will help this go away. I can’t stand it much longer.
Today and yesterday have been extremely difficult. Yesterday, I went with my mother-in-law to her doctor’s to get the biopsy results. She finally got a definitive diagnosis yesterday. It’s stage 4 pancreatic cancer. Now, she has to choose what type of chemo she will be doing. I’m extremely impressed by her acceptance as she goes through this.
Naturally, my husband is having a hard time with this. I wish I could do something to make it better, but I can’t. I know if there is anything I can do to help my husband, that he will tell me. That’s one of the great things about him. I know he will always be honest and upfront with me.
I’ve been through something similar. When I was young, my dad was diagnosed with cancer. He died when I was 18. I know how horrible it is to lose a parent, but I couldn’t imagine losing my mom. I’m trying to be supportive to my mother-in-law and my husband, but it’s harder than I expected. Everything that she goes through brings up memories if my father.
I wish I could leave; just get up and walk away from it all. However, even if I could, I wouldn’t. I want to, but that doesn’t mean I’m going to. I don’t want to deal with all of this, but I will. Instead of walking away, I’m going to be as supportive as possible. When I need to, I can vent by writing for my blog or by calling my mom (she’s very helpful).
I have been home for five days now, and I still haven’t gone grocery shopping or done laundry. I plan on doing that stuff every day, but for some good reasons, they keep getting pushed to the next day. Yesterday, my husband and I spent the entire day with his mother getting a second opinion on her cancer. We are very grateful that we went there. The Mayo Clinic was wonderful.
Today, we’re having someone come and spray in and outdoors. I think we’re having it done 4 times a year, just to be safe. I keep finding crickets around the house, so I know it’s necessary.
I have to get my monthly Clozapine blood work done soon. I have enough meds to get me through for another 9 days. Instead of pushing myself way too hard, I will make an appointment for Monday and allow myself to catch up on everything else that I missed while I was away.
Vacation is over. I’m on my way home today. I was worried about checking my bag. It seemed to be extremely heavy. I thought that it was going to be over the 50lb limit. I had no scale to measure it with. Luckily, when I weighed it at the airport, it only weighed 47lbs. Then, I surprisingly went straight through security in the airport without getting stopped by anyone.
I’m early for my flight. I would rather be early than late. I sit down near my gate but far enough away so I’m basically alone. I’m about to be on a 6 hour flight with people all around me. I’ve decided to have as much alone time as possible. I found a group of chairs up against a wall that are off on their own with no one in them. Granted, they are about 30 feet away from the restrooms, but at least no one is coming to sit near me and start a conversation.
I had a great vacation, and I don’t want to leave, however; at the same time, I’m really looking forward to going home. The thing that I really like about this vacation, and pretty much any vacation, is the time I get to spend with my mom. Since she lives so far way from me (about 2,500 miles), I only get to see her about 2 or 3 times a year. Leaving her is hard, but going back home to my husband is good.
I decided to take a break from blogging this past week. I tried to write this past Sunday, but my mind was already in vacation mode. This past week has been wonderful. I love the time I get to spend with my mom. We only had two beach days, but we’re happy no matter what we’re doing, as long as we’re together.
I also get to spend time with a friend of mine who drove three hours last night in a storm to come see me. I hadn’t seen her in probably about two years. She will also be taking me to the airport tomorrow, so I don’t have to take the bus. I’m so happy to see her.
When we were going to bed last night, I noticed a leak in the ceiling. It was getting worse quickly, and there was a crack in the ceiling. It looked like the whole thing was going to fall down. That was not fun to deal with at 1am. Luckily, it did not fall. Someone came to the cottage to check on it this morning, and they will send someone over to fix it either today or tomorrow.
Today is our last day of vacation. I have a lot of packing to do. I’m not sure if everything will fit in my suitcase. I did buy a bunch of gifts for people. I actually got half of my holiday shopping done. It’s probably time to start packing.
I’m sitting at a gate in the airport. It’s not even the gate that my flight leaves out of. It was the empty gate when I got here, so I thought that it would be a good place for me to sit. I don’t like crowds, especially when people are all around me, including behind me. I was sitting for less than 5 minutes, when suddenly everyone else thought that the area I was in would be a great place to hang out. UGH!
I made it through security alright. Granted, I did forget to take my laptop out and remove my phone from my pocket. The excuse that I’m using is that I’m taking a red-eye flight and I’m simply overly tired. That’s a good excuse.
I have decided to take only some of my night meds. I don’t want to take my Clozapine because that knocks me out cold. If that happens, then if someone next to me touches me or if the fight attendants wake me up for some reason, I would wake up terrified. Plus, the Clozapine makes me drool (so annoying). And I don’t mean I drool a little bit. It’s a lot. Way too much. So I will take my night meds, minus my Clozapine, and add in a Valium. So that’s the plan. I guess I will let you all know tomorrow how this all went. I’m hoping for the best (at least I’m going into it with a positive attitude).