Excited About A New Blogging Opportunity

I have so many things I need to get done today, but I’m having a hard time doing them. I’m not being lazy; I’m just overwhelmed with things to do. I have already gotten my blood work done, went to the gym to workout, went bowling with my husband, played cards with my mother-in-law, and did a bit of blogging (not in that order). However, there’s so much more to do. I still need to shower, cancel my upcoming ECT appointment, meditate, clean/organize the house a bit, and contact a couple of friends. I just don’t know where to start; probably with the shower.

A couple of months ago I applied to be a blogger for the International Bipolar Foundation. Yesterday, I received a response from them. They said I can choose to be either a guest blogger or monthly blogger. I’m so excited. I need to get started on this as well. I feel honored that the IBPF organization wants me to write for them. Getting started on this is more important to me than cleaning and organizing my house. I think I will shower and then meditate. Hopefully, that will relax me enough to keep writing today.

Standing By My Decision – I Actually Did It!

I was very nervous about my psych appointment yesterday; I was so nervous that I even had an anxiety attack. I’m not used to telling anyone what I want, especially when it’s different from others want. Standing up for my own desires is nerve-wracking for me. I prepared for my psych appointment yesterday by writing down exactly what I wanted to say. I told my psychiatrist that I wanted to stop ECT because it has become too hard on my body and my mind. I’ve been doing ECT for close to a year and a half, and I just can’t take it anymore. I explained my reasons and to my surprise, he was okay with my choice. He explained that he respects my choice; I couldn’t ask for more than that. I’m very happy with the outcome of that appointment.

He gave me several options about what we could do moving forward. He told me I probably wouldn’t like a couple of the options, but he was going to mention them anyway. I’m glad he did mention them (without any pressure). It was nice to see all of my options at once, even though I didn’t like most of them. Together, we decided to slowly increase my Clozapine up to 400mg a night. We will increase the dose by 25mg each week until we reach our target goal of 400mg. We are increasing slowly to hopefully avoid some negative side effects such as dizziness, fevers, and drowsiness. It will take two months to reach our goal. I will see him in three months. This gives me time to get to the target dose and then allow my body to adjust to the dose for a while. I’m really hoping that this change will help. The Clozapine has helped quite a bit so far, I have a feeling that it will continue to help.

My husband pointed out to me that this is the first time that I made my own decision regarding my mental health, and stuck by it. He was proud of me. To be honest, I’m proud of myself. I know it sounds a little ridiculous to be so happy about this decision, but it’s a huge step for me.

Do You Have Negative Thoughts Like I Do?

I always do everything I’m told, and I think it’s catching up with me. I don’t want to cause any problems, but I feel like I need a vacation from my life, from myself, from my health. Just out of curiosity, I’m wondering how many people have had the same thoughts as the following:

I’m always compliant with my medications and my treatments. Sometimes I just want to say screw it all and not take my meds. I wonder how much they’re really helping anyway. What’s the point of taking all these meds without knowing that they are definitely working?
I’m an insomniac. The Clozapine has been helping me sleep for the most part lately, but I still wake up several times throughout the night. Why do I keep forcing myself to fall asleep? For some reason, I’m always hungry when I wake up. Maybe I should try to see if I get tired on my own. I’m an insomniac; I have problems sleeping, not getting tired.
Sometimes, I’m get tired of doing the reasonable or rational thing. On occasion, I just want to do whatever I feel like doing without people saying it’s because of my mental health.

These are just a few of the things that have been going on in my mind lately. I think I’m just a bit frustrated with everything, and I’m wondering if other people have similar thoughts as I do. If others do have these thinking issues, what do you do to get through them?

Overanalyzing Everything

I wish I knew how to control my thinking. Everything can be going just fine, and then one thing happens, like someone gives me an attitude, and I automatically start going through all of the possible reasons they could be mad at me. How self-centered am I to think that just because someone has an attitude it has something to do with me? There could be a thousand different reasons for that individual to have an attitude. I really need to get over myself. I always think that I’m doing something or everything wrong. I even tend to do the same thing when someone is giving me a compliment. I think that instead of actually giving me a compliment, that person is pointing out that I finally figured something out.

Yesterday, when I was with my granddaughter, I heard a couple of people say, ‘Wow, you’re getting really good with her.’ Instead of hearing a compliment, I hear them saying how bad I used to be with her. Then I start getting frustrated; it’s not like I had children of my own, this is my first time dealing with an infant. I really down that people are giving backhanded compliments. People are probably saying how they really think and feel, and I’m just overanalyzing everything. I’m actually mentally exhausted from always over-thinking everything for no real reason.

Trying to cut myself some slack is a lot easier said than done. I really do think that almost everything I say or do is wrong in one way or another. No matter how hard I try, it’s impossible to please everyone. Maybe I should just work at doing things that will make me and my husband happy. The only problem with that is that I don’t even know where to start.

Psychiatry Appointment

Late tomorrow afternoon, I have an appointment with my psychiatrist. I’m really nervous about this appointment. He is going to go over my Clozapine blood level with me and change my dose. I’ not really worried about that, but I have just decided that I don’t want to do ECT anymore. I’ve been thinking about this for a while now, but I finally made my decision (I think). Right now I’m going every four weeks. So at the very least, I could just start by taking an extra month off and seeing how that goes. If it’s a disaster, then I can think about going back on it.

I wrote down on paper what I want to say to him because I don’t normally stand up for my opinions.I don’t like any type of disagreements. Since I wrote it down, then I know I will be able to say exactly what I want to say. I’m going to tell him, ‘I am no longer willing to do ETC treatments. The stress on my body, the memory loss, and the loss of words in conversations is too much for me. It has been this way for a while. I tried putting it off, but I can’t wait any longer. I’m not willing to do the Ketamine treatments at this time.’ Hopefully I can stick by what I say. There’s a better chance of that happening since I wrote down what to say.’ I’ll let you all know how it goes.

Celebrating My Husband’s Birthday

Today is my husband’s birthday. We’re going to celebrate at his mom’s house with anywhere from 5 to 19 people. I wish I knew how many people to expect. However, I should be used to this by now. This is how it usually ends up going for every birthday and holiday. I’m looking forward to seeing my step-kids and my granddaughter. I have a good relationship with my step-kids; it’s always nice to see them and be a part of their lives. I get along with everyone in his family; I just sruggle with not knowing what I’m walking into. I also struggle with crowded spaces, but it will be fine. I’m grateful to get together with his family.

I plan on taking today off from working out. My husband and I have been enjoying great workouts. Yesterday we ended up just doing cardio, but it was a good workout. I’m hoping to lose some weight; I’ve gained a lot of weight during this depression that I’ve been going through. To be exact, I’ve gained 39 pounds. That’s way too much; it’s time that I turn this around. And it’s so much easier working on losing weight with my husband. I’m happy to have the support and encouragement; we are there to help each other reach our goals.

Managing My Health

Sometimes I feel like all I do is go to doctor appointments, pick up my prescriptions, and manage my prescription refills. This week, I have two doctor appointments and another appointment for blood work. That’s about how many appointments I have each week. I feel pathetic. Most of my life is spent attempting to manage my health, especially my mental health.

My current meds are: Lithium 450mg twice a day, Tegretol 200mg one in the am and two at night, Cytomel 37.5mcg in the am, Clozapine 200mg at night, Deplin 15mg at night, Mirapex 1mg three times a day, Inositol 500mg in the am, Depo Estradiol injection weekly, Depo Testosterone injection monthly, Valium 10mg twice daily as needed, Percocet 10mg as needed up to four times a day, and Zofran 4mg once daily as needed. It’s difficult to manage this many medications, but I do it pretty well. I’ve gotten used to it; I’ve developed a system so I get all my meds filled on time without missing a day.

I have an appointment with my psychiatrist on Thursday to discuss my Clozapine dosage. I’ll probably end up with more than one medication change. I’m hoping to get off the Deplin. It’s really expensive and it doesn’t appear to be making a difference. We’ll see what happens on Thursday.

Physically And Mentally

My body is just as screwed up as my brain. I had my first surgery when I was 16 years old; it was a cardiac ablation. My heart rate would randomly jump from normal up to 200 or more, and I would pass out. A year later, I had a tonsillectomy. In 2009, I had surgery on both of my knees. A year after that, I had a tubal ligation, which I will explain. I had a total hysterectomy in 2014.

The tonsillectomy is pretty much self-explanatory. I chose to have my tubes tied in 2009 when I was living in Connecticut. This was after my total breakdown. My psychiatrist had to write a letter explaining that I knew what I was doing and was making a sound decision. I decided that I have a hard enough time managing my life. I’ve had ups and downs; no matter how hard I try, I can’t always take care of myself. I’ve seen many people struggle with being a parent; it weighed on them so heavily. I didn’t want that to happen to me or my child. I decided it was better for me not to have a child. For me, this was the right decision, but it has been really hard. It’s been extremely difficult for me to not be able to have children. I often cry uncontrollably because of that fact. A year later, I ended up having to have a total hysterectomy because of severe endometriosis.

I pretend to be okay with the fact that I can’t have kids of my own. I’m a 31 year old grandma, who has never been a mother. Of course I wish I could have kids, but if I had to do it all over again, I would still make the same choice. I made the decision because it was the right thing to do for me, not because it was easy.

Right now, the most difficult problem I deal with physically is the interstitial cystitis. I currently get treatments every week; sometimes I can stretch it out to as much as every 3 weeks. The treatment involves getting catheterized so the doctor can put medicine directly into my bladder. This problem has been getting worse over time. I also have chronic bronchitis and pneumonia among other conditions, but luckily that’s not acting up as well.

I know that I’m luckier than many people, but I’m also worse off than a lot of others. Why do I have to have both physical and mental health problems? Why are all my problems chronic? Living with and managing physical pain as well as mental health is exhausting.

Getting Through The Days

I went to the gym with my husband today. We had a great workout. I’m proud of myself for not pushing too hard. I normally push past the pain, and then I end up regretting it later. I’ve had a lot of knee pain over the years. I had a double knee surgery to correct the misalignment of my knees in 2009. I know that I’m going to need another knee surgery at some point, but I don’t want that to be any time soon. So it’s important not to push myself too hard on certain exercises, such as weighted squats and lunges.

After our workout, we went to visit with my father-in-law. We don’t see him often enough. He’s so nice and easy to get along with. We’re going to see him tomorrow too. My husband’s birthday is on Wednesday, he’ll be 42. I told him it’s like turning 21, twice. We’ll see his mom on Wednesday; she wants to through a ‘party’ for him. I’m a bit apprehensive because I don’t know who will be there. I just found out that she invited some aunts, uncles, and cousins. I like everyone; that’s not the problem. It’s just difficult when there are that many people in one house. My husband even said that all he wanted was for me, his mom and her boyfriend, his brother, and his kids to get together; but that’s not what’s happening. Plus, we want to see our granddaughter. The more people who are there, the less time we get to spend with her.

No matter what the circumstances, it will all work out okay. It just means that I will probably end up taking a Valium before I get to the party. There’s nothing wrong with that. It’s just another thing that adds stress. But I’d rather have too much family than not enough of it. We’re lucky to have loving and caring family on both sides; his family and my family. Having family that cares and supports us is wonderful.

I Did Well… For A While – My Life: Part 5

After working at the rehab for 9 months, I decided I wanted to move forward with my life. I applied for many jobs in Phoenix. I got a job as a receptionist for a legal compliance and ethics e-learning company. I found an apartment in Phoenix and moved there with a guy I was dating from the rehab, but that relationship didn’t last. I don’t know when our relationship ended, but I think we lived together for about a year. I adopted a dog and named him Cash (after Johnny Cash). He was awfully energetic and liked to chew on everything. I learned how to train him, and he started to behave properly. Cash came with me to AA camping events, which was a blast. At some point, I found a great AA club where I would go to the same meeting every day at 6pm. I don’t like change, so moving was scary. I like to keep a regular schedule. I made a lot of friends at the meeting, but I would only go to that one meeting every day. One of the guys I met was Brandon, who became my best friend. He had the same sarcastic attitude that I have and we got along wonderfully.

I was doing really well at this time in my life. I got a promotion at work, I was able to live on my own, make friends, and maintain my sobriety and my mental health. I took my medication and saw my doctors regularly. I was seeing the psychiatrist that was treating me while I was in rehab. Brandon asked me to workout with him. I told him no for months, and then I ultimately caved and decided to go with him. I was terrified because it was something new, but Brandon made me feel safe. After working out with him once, I was hooked. I loved it. We started working out together 5 days a week. It helped me get through my days at work. I would go to work, then workout with Brandon, and then go to my meeting (often with Brandon). I was happy with this new schedule; it was working well for me.

In the beginning, I wasn’t open about my mental health when it came to my AA meetings. My close friends knew, but that was all. Eventually, I ended up talking about my bipolar disorder in a meeting. I felt as if it wasn’t accepted. Several times, I was told that I didn’t have a mental health problem. It was just an issue to work on through step work. That was a problem for me. I didn’t feel accepted. My mental health was a huge part of my life. Even when I’m doing well, it’s still a large piece of my life. I was stable for years. That had never happened to me before.

My psychiatrist decided to wean me off my meds slowly because I had been stable for such a long period. It was possible that my mental health issues were drug related, so we thought it was worth a try to get off medication. I was down to two medications, and then she took me off the Seroquel. About 4 months later, I started to fall apart. I thought it would be a good idea to go to therapy again because I started to remember things that I hadn’t previously remembered. These memories triggered what was eventually diagnosed as PTSD. With the PTSD coming up and the med changes occurring, it was like the perfect storm. I started having hallucinations and was shaking uncontrollably. My psychiatrist put me on Abilify, but that made it worse. I barely slept for 3 weeks.

My job let me work from home, but after a little while, I couldn’t even manage that any more. I went on short-term disability, which then turned into long-term disability. There were times that I struggled to feed the dog. My mom came out to stay with me for a little while, but she couldn’t be there all the time. I decided to move back to Connecticut because I couldn’t be on my own anymore. I’m lucky that she was able and willing to let me and my dog move in with her. My long-term disability turned in to Social Security Disability.

I thought writing my story would help my memory, and it has; but it has also become difficult for me. There’s a lot that I struggle to remember, and a lot of other things I wish I didn’t remember. I think I’m going to take a break from writing my story for a little while.

My Side of the Pole

Bipolar – Mental Health

Category: Bipolar